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✨Memoir Spotlight✨—“Ugly” by Robert Hoge

Robert Hoge was born with a giant tumor on his forehead, severely distorted facial features and legs that were twisted and useless. His mother refused to look at her son, let alone bring him home. But home he went, to a life that, against the odds, was filled with joy, optimism and boyhood naughtiness. Home for the Hoges was a bayside suburb of Brisbane. Robert's parents, Mary and Vince, knew that his life would be difficult, but they were determined to give him a typical Australian childhood. So along with the regular, gruelling and often dangerous operations that made medical history and gradually improved Robert's life, there were bad haircuts, visits to the local pool, school camps and dreams of summer sports. “Ugly” is Robert's account of his life, from the time of his birth to the arrival of his own daughter. It is a story of how the love and support of his family helped him to overcome incredible hardships. It is also the story of an extraordinary person living an ordinary life, which is perhaps his greatest achievement of all.

#themightyreaders #BirthDefect #LimbDifference #LimbAmputation

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5 Young Adult Books Featuring Characters With #Cancer

Being diagnosed with #Cancer is really hard. Finding a book with characters to “guide you” along the way shouldn’t be. So here are 5 YA books featuring characters with #Cancer :

1.”Ask My Mood Ring How I Feel” by Diana Lopez

This read combines the challenges of growing up, Tex-Mex culture, with facing a mother’s cancer diagnosis and how to cope. The author’s aunt was diagnosed with #BreastCancer , so readers should hopefully find this might align with some of their experiences (I hope). It’s the summer before eighth grade, and Erica “Chia” Montergo is feeling so many things that she needs a mood ring to keep track of her emotions. She's happy when she hangs out with her best friends, the Robins. She's jealous that her genius little sister, who has #ObsessiveCompulsiveDisorder , skipped two grades. And when Erica's mom is diagnosed with #BreastCancer , she feels worried and doesn't know what she can do to help. When her family visits a miracle room in a famous church, Erica decides to make a promise to God in exchange for her mom's health. As her mom gets sicker, Erica quickly learns that juggling family, friends, school, and fulfilling a promesa is stressful, but with a little bit of hope and a lot of love, she just might be able to figure it out.

2.”Brave Enough” by Kati Gardner

Author Kati Gardner tells her story authentically, as she had a #LimbAmputation and #Cancer . *This might be triggering for readers who are battling addiction. Teenager Cason Martin is the youngest ballerina in the Atlanta Ballet Conservatory. She never really had a choice of whether she learned to dance or not. Her mother, the conservatory's artistic director, has made all the decisions in Cason's life. But that's about to change. Cason has been hiding an injury, and it's much worse than anyone imagines. Davis Channing understands all too well what it's like to give up control of your life. He's survived #Cancer , but his drug #Addiction nearly killed him. Now he's been sober for seven months and enjoying his community service at the hospital. But just when he thinks he's got it together, Davis's ex-girlfriend, who is still battling her #Addiction , barrels back into his life. Cason and Davis are not friends. But, as their worlds collide, they will start to depend on one another. Can they both be brave enough to beat the odds?

3.”Finding Balance” by Kati Gardner

Jase Ellison doesn’t remember having #AcuteLymphoblasticLeukemia when he was three years old. His #Cancer diagnosis only enters his mind twice a year. Once at his yearly checkup at the oncology clinic and when he attends Camp Chemo in the summer. No one in his “real” life knows about his past, especially his friends at Atlanta West Prep. Mari Manos has never been able to hide her #Cancer survivorship. She wakes every morning, grabs her pink forearm clip crutches, and starts her day. Mari loves Camp Chemo—where she’s developed a healthy crush on fellow camper Jase. At Camp, she knows that she’ll never get “the look” or have to explain her #LimbAmputation to anyone. Jase wants to move on, to never reveal his past. But when Mari transfers to his school, he knows she could blow his cover. That’s the last thing he wants, but he also cannot ignore his attraction to her. For Mari, she only wants to be looked at like a girl, a person, and not only known for her #Disability . But how do you move on from cancer when the world won’t let you?

You can find author Kati Gardner’s blog at authorkati.com.

4.”The Fault In Our Stars” by John Green

Despite the tumor-shrinking medical miracle that has bought her a few years, Hazel has never been anything but terminal, her final chapter inscribed upon diagnosis. But when a gorgeous plot twist named Augustus Waters suddenly appears at #Cancer Kid Support Group, Hazel's story is about to be completely rewritten. Insightful, bold, irreverent, and raw, The Fault in Our Stars is award-winning author John Green's most ambitious and heartbreaking work yet, brilliantly exploring the funny, thrilling, and tragic business of being alive and in love.#LungCancer

5.”Don’t Die, My Love” by Lurlene McDaniel

Julie Ellis and Luke Muldenhower have always been school sweethearts. Now both are in high school and deeply in love. Luke, a talented football player, is almost certain to receive an athletic scholarship to a top college. And no matter what her parents say, wherever Luke goes, Julie intends to follow. When Luke can't shake what he thinks is a virus, Julie persuades him to see a doctor. Luke's test results are alarming, but Julie believes their love is stronger than anything. Can love survive, now and forever?

I hope that every reader can find a book to relate to in this list 💞

#themightyreaders #Cancer

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Books With #RareDisease Representation

Many health challenges don’t get enough representation in literature. I think that definitely needs to change. Finding more common conditions in books is hard enough, but when you have a rare disease, it can be even harder to find yourself represented in a book.

That’s why I decided to compile a list of some YA books that contain characters with rare diseases. I hope some people can find a book to relate to on this list!

”Cursed” by Karol Ruth Silverstein Erica “Ricky” Bloom’s life has taken a turn for the worse. As if dealing with high school, her sister’s transition to college, and her parents’ divorce wasn’t enough, Ricky is diagnosed with #JuvenileIdiopathicArthritis . Ricky uses profanity to cope with her #ChronicPain , until her coping mechanisms are foiled by a boy with a diagnosis of#AcuteLymphoblasticLeukemia in his past and a snooty, but well-meaning, teacher. It turns out that not everyone is as they seem.

2.”100 Days” by Nicole McInnes

Agnes is not exactly like every other teenage girl. She likes pretty dresses, sewing, and music. She has a best friend. But Agnes has a disease that makes her appear several times older than her chronological age— #Progeria . With the help of her friend and an unexpected ally, Agnes’s last 100 days are her living her best life. But will the three friends be able to accomplish what counts before time runs out?

3.”How We Roll” by Natasha Friend

Quinn’s life changed when she was diagnosed with #AlopeciaAreata , which is not easy for anyone, let alone a high-schooler. A humiliating experience causes Quinn and her family to move. Quinn attempts to make friends, which proves difficult. Quinn meets Nick, who has #LimbAmputation because of a car accident. Can both Quinn and Nick learn to trust and let each other in before they build their walls too high?

4.”Midnight Sun” by Trish Cook

Seventeen-year-old Katie Price has a rare disease #XerodermaPigmentosu m that makes exposure to even the smallest amount of sunlight deadly. Confined to her house during the day, her company is limited to her widowed father and her best (okay, only) friend. It isn't until after nightfall that Katie's world opens up, when she takes her guitar to the local train station and plays for the people coming and going. Charlie Reed is a former all-star athlete at a crossroads in his life—and the boy Katie has secretly admired from afar for years. When he happens upon her playing guitar one night, fate intervenes and the two embark on a star-crossed romance.

5.”Everything, Everything” by Nicola Yoon

Madeline Whittier has #SevereCombinedImmunodeficiencySCID , which means she can’t leave her house. But one day, she sees a mysterious boy named Olly. And Olly makes her want everything—including things she can’t have. Like love.

Art of Feeling” by Laura Tims

Samantha Herring has been in constant pain ever since the car accident that injured her leg and killed her mother. After pushing her friends away, Sam has receded into a fog of depression until she meets Eliot, a carefree, impulsive loner, who is unable to feel any pain at all. At first, Sam is jealous. She would give anything to not feel the pain she’s felt for the past year. But the more she learns about Eliot’s medical condition #CongenitalInsensitivityToPain the more she begins to realize Elliot’s self-destructive tendencies. In fact, Eliot doesn’t seem to care about anything—except Sam. And as they grow closer, they begin to confront Sam’s painful memories of the accident, memories that hold a startling truth about what really happened that day.

Happy reading! 📚💖

#themightyreaders #RareDisease

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Losing my mind

I had an ankle fusion in 2001, an ankle replacement in 2010 and I’ve been doing amazing since. I’ve been having pain in this ankle lately and I noticed that my I was walking on the side of my foot. So I went and saw my ortho surgeon. X-ray shows that I had a complete and total ankle failure. My bones have been crushed and ground up, the bottom of the replacement is upside down and the fusion no longer exsists. Another replacement is off the table and there is not enough bone to do a fusion. The only thing that is left to do is to have my foot/ankle amputated. I’m beyond scared!!
#depressed #scared #Arthritis #LimbAmputation

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I'm new here!

Hi, my name is angelicar92780. I'm here because I have lived since 1981 as a full double leg amputee.

#MightyTogether #LimbAmputation

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I’m new here!

Hi, my name is briggsy96. I'm here because I have recently become a double below knee amputee and am looking to gain some more insight into it all.

#MightyTogether #LimbAmputation #Migraine

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Quick Tip Thursday: Keep Your Socks Loose By Not Wearing Tight Socks Or Elastic Stockings

Wearing tight socks and elastastic stockings prevents blood flow to your feet.

Looser fitting socks and stockings allow better blood flow, preventing future foot problems, which is a crucial aspect for people with diabetes.

#DiabetesType2 #Diabetes #DiabetesType1 #ChronicIllness #Feet #LimbAmputation #Health