So I thought all my symptoms added up to being perimenopausal. I took a course of prednisone and blood work all normal for me. Talk to my psychologist and rheumatologist. No med changes and no illnesses. Not in my head and not lupus except that it might be because what else screws with every part of body. Sometimes I wonder what isn’t broken?
#lupussucks
Nausea, feel feverish, headache, fatigue. Mouth sores hurt. Depressed. Just feeling down low and venting, I guess. #Lupus #lupussucks #Vent
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In a major flareup, the North Pole slipped, fell, and has taken up residence in Texas #NotOK , and my depression is horrible. I am grateful to have a son who loves me and does what he can at the age of 20 years old. Soon my son and I will move to Ft. Worth to live close to my best friend #bestfriendsrock where we can live close to a warm and loving family. In the mean time I do so wish that the North Pole will take it's frigid air and snow back to where it belongs. God bless everyone!
Inside of my head/ body
#MultipleDisabilities #Dysautonomia #POTSLife #TPN #Crohnies #MastCellActivationDisorder #Msstrong #Blindness #lupussucks I could go on and on #tired
Joined today. I had started to pour my heart out, then the app froze. That’s my life though 🤪 When something can go wrong, it always does. I have lupus, fibromyalgia, myofascial pain syndrome, and I’m sure others yet to be diagnosed. In the last few months though, the right upper back, shoulder side burns like hell. Massages are not cutting it. I might need an MRI. I’m so used to be in pain that I tend to put things off. I need something though....soon. Can i win the lottery too? #MyofascialPainSyndrome #lupussucks #FibroFog
I have been in a flare since January 1st. I think I'm starting to go into remission, but I literally have not cleaned my house since the flare started. I have been so weak, in a wheelchair, and have a little support system and I'm stubborn as well and don't accept help from others out of shame. Any suggestions on how to get this overrun house cleaned and back into a home again, without shane and embarrassment?
LETS TRY AND GET THE HELP AND SUPPORT WE NEED.
Please Read and Share. Help it go Viral!
#SLE #Lupus #LupusWarrior #SelenaGomez
I have sent to my local MP Mike Freelander, to try and get the support and help for all lupus/ SLE & invisible disease warriors that we need?
Email is below.
Dear Mike,
My name is Tania Schembri, my son was seen by you just before you started the MP journey.
I am writing to you in hope that you may be able to get a change put through to the government and make much needed changes for those living with SLE Lupus and other invisible chronic diseases.
I was diagnosed with SLE Lupus when I was 17, it affects my lungs, bones, joints, blood, cognitive function, kidneys were affected during both miracle pregnancies, which at 34 I have just undergone a hysterectomy due to severe menorrhagia, endometriosis & PCOS, as well as chronic fatigue, clinical burnout due to a chronic illness which also has caused medical anxiety and depression.
These are just some of the symptoms I have, with it also affecting my nerves but still undergoing tests for peripheral Neuropathy.
Like the Majority of Lupus, SLE Warriors and so many other invisible diseases. This is not covered under life insurance or income protection as it is classed as a terminal illness, yet Centerlink and NDIS don’t cover it as it goes in and out of remission.
With stress playing a big part on our already compromised immune systems. Our drs and specialist visits, not forgetting our medication or tests and procedures we may need at any given time, it plays a big toll on our financial situation, family life, work life, social life and mental health.
Please the many Warriors living in Australia let alone Macarthur region need your help to get it recognised for help and better support systems in place.
I am happy to discuss this further with you, if you could be so kind as to put some of your precious time aside.
Thank you in advance for reading this email.
It would be greatly appreciated if you could respond to this email also.
Look forward to hearing from you.
Kind regards
Tania Schembri
So I was in a relationship and the cause of my break up or at least the excuse given was because of my Lupus and RA. During flares and then a 7 day hospital stay, it was hard for them to understand my needs even though they went to the dr with me on their own accord and wanted to learn about my illnesses. I learned from an abusive marriage, how to take care of myself when not feeling good or DR/ER visits. Overall though, dating sucks nowadays already on top of my own complications. Being told they basically don’t want to have to take care of you, really sucks.
Guess I am a wee angry bc I am the “horrible” friend bc I couldn’t do things. I am the bad one. But when I was out and asked my friend to a meal she said no bc of her disease... I understand that but ugh.... and then I was told my house the floor was cluttered but the last time she was at my house we had the flooring tore up and replacing it.... yeah well plank flooring does that.
#FamilyAndFriends
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