macular degeneration

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I’ve been divorced and single for 36 years.

I’ve told people who’ve asked that it was because I hadn’t found the right person, when in actuality they hadn’t found me. In my depression I wasn’t available for a healthy relationship and men steered clear. I went on many first dates, but that was the extent of my love life.
Until now. While just “graduating” from weekly therapy, I’m finally stable and able to sustain a healthy relationship. He’s understanding, gentle and kind. And he showed up just when I wasn’t looking. ♥️ #Depression #Fibromyalgia #PTSD #MacularDegeneration #Arthritis #HashimotosThyroiditis #AutoimmuneImmunodeficiency

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Debbie

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@debbiejohnson460

Distract Me 1y

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More often than not, Grady here mirrors my emotional health.

#SuicideLossSurvivor #RapeSurvivors #PTSD #ComplexPosttraumaticStressDisorder #Epilepsy #Fibromyalgia #EssentialTremor #hashimotos #MacularDegeneration

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Jocelyn G

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@jocybear619

Macular Degeneration at 31? #MacularDegeneration #VisualImpairment #VisionLoss #Blindness

In July 2020 I was diagnosed with Macular Degeneration. According to my Eye Doctor, my risk factors put me at risk of "vision loss" at 60% in the next 5 to 10 years.

That was a massive pill to swallow considering I was 30yo with 3 small kids and had never even heard of MD before. I did a ton of research and could not find any articles or medical journals related to MD in people younger than 50yo. Hence the name "Age Related Macular Degeneration"

After a 2nd opinion at a facility known for their state of the art technology, it was confirmed. And yet, I find myself wondering ... how can this be?

I go back and forth between believing it, and then freaking myself out if I feel like I'm noticing visual changes to Total denial and not noticing a damn thing.

Am I crazy? Am I just losing my shit? Am I really seeing visual changes and ignoring them? Or manifesting visual changes because I'm thinking about MD?

Is there anyone else around my age with this condition? I need to know I am not crazy or making this up.

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lucyanne_p

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@lucyanne_p

I 4y

I was wondering if there were others who suffer from Advanced Macular Degeneration who can tell me what to expect.

#Idontknowhowtousehashtags
#MacularDegeneration

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Deaf 4y

How to get help? Can't get an ASL interpreter for a doctor's appointment?! Aren't they required by law to provide one?

I'm Deaf on my right side HoH on my left... I speech read to supplement my hearing... even with a crossover device. Now that everyone is wearing face masks, I'm at a loss... and I was told "we don't do anything like that here" when I asked about getting an interpreter for my next appointment! Aren't they required by law to provide one when a patient requests it? It's hard enough getting my questions answered... but I can't understand the dr even if he will answer. #Deaf #HearingLoss #PTSD #rheumatiodarthritis #retinaldetatchment #MacularDegeneration #Fibro #Migraine #Anxiety #Disabled #ASL

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Cat C.

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@blueeyedwhitecat

MacularDegeneration 4y

I have macular degeneration... and vitriol detachment

#MacularDegeneration #RA #ChronicPain
I developed a hole in my vision tonight... in my "good" eye... possible start of retinal detachment... I'm terrified. With everything else I'm dealing with, I don't know how I will get thru this... calling eye dr tomorrow. I'm feeling so lost and helpless and hopeless ... and I'm usually fairly optimistic #Migraine #Fibro #Anxiety #PTSD