Mayo Clinic

Good morning!
I'm checking in with my mighty people! I’ve been in migraine and awake for three days. I’ve been functioning like this for almost 15 years. My chronic pain prevents me from sleeping. Then everything gets worse from there. No sleep equals increased pain. I need some love and support today. I’m hurting so bad. It’s a horrible feeling. If I can get some rest, the pain will ease a bit. The cycle continues like Ground Hog Day in the movie. I am referred to return to the Mayo Clinic in Rochester, MN. Does anyone have contacts for support and housing in Rochester? I plan on moving there to get the care I so desperately need.
I’m open and willing to receive ALL suggestions! I genuinely need your strength!!! I’m hopeful the new tech at Mayo will help reduce my pain. Reducing bits and pieces would be life-changing for me.
I’m on my own with no medical care support. It has broken my heart not having anyone to care for me.

I appreciate your support!
I am so grateful for ALL of you!
Thank you so much for your support!!! 🤗🩷#PrimaryBiliaryCholangitis
#Headache #Migraine #RareDisease #misdiagosed #ChronicPain #MayoClinic #Insomnia #showmejeanie

I’m exhausted for no reason, but I am here. I came alone today on purpose. Kind of needed to prove I could. I took a Lyft and momentarily stumbled getting out, but now I’m eating.
But I shocked myself at a thought I had. Usually I come here and am so grateful and say 10 times “damn I’m lucky.”
Today I saw a beautiful older nicely dressed lady on a scooter. She was killing those corners.
For a brief moment it was like “shit this is my future.” Not in a sad oh woe is me way. Not in a defeating way, but in an “ok if that’s what happens, that’s what happens, “ kind of way.
I am often told, “ you will be fine.”
In response to that i ask “well what if I’m not.” I have to be as prepared as possible. Not just for me but for everyone in my life.
Chronic illness doesn’t go away, you just learn to accept and manage.
Adapt and Overcome!
Semper Gumby!
PS I am more than happy to answer questions privately. Just send me a PM!