PEM

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    Question

    How to deal with PEM “tired and wired”?

    I have dysautonomia and pretty bad PEM sometimes. I don’t feel the chronic fatigue however my energy span runs out quicker and if I overdo it the crash happens. Because of my dysautonomia I am prone to tachycardia and palpitations. I would describe PEM as tired and wired instead of just tired/drowsy. I tried using ubiquinol or coenzyme q10 but they all caused palpitations and jitterness even after one dosr which was frustrating. I am taking ivabradine and as needed metoprolol and occasional xanax.
    Any suggestions on how I can further cope with this and any supplements/lifestyle changes that have helped? #ChronicFatigueSyndromeampME #PostexertionalMalaise #PEM #Dysautonomia #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome

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    CHRONIC FATIGUE #PEM

    My arm was shaking to hold the camera SMH #ChronicFatigue Hard being a mommy like this I beat myself up cause I don’t want her to see me in bed all the time but I don’t have a magic potion 🧪 I can’t make it go away she’s thirteen and I been ill almost all her life so she knows but I still relentlessly feel guilty. #MomGuilt