PEM

Join the Conversation on
9 people
0 stories
3 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post

How to deal with PEM “tired and wired”?

I have dysautonomia and pretty bad PEM sometimes. I don’t feel the chronic fatigue however my energy span runs out quicker and if I overdo it the crash happens. Because of my dysautonomia I am prone to tachycardia and palpitations. I would describe PEM as tired and wired instead of just tired/drowsy. I tried using ubiquinol or coenzyme q10 but they all caused palpitations and jitterness even after one dosr which was frustrating. I am taking ivabradine and as needed metoprolol and occasional xanax.
Any suggestions on how I can further cope with this and any supplements/lifestyle changes that have helped? #ChronicFatigueSyndromeampME #PostexertionalMalaise #PEM #Dysautonomia #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome

3 comments
Post
See full photo

CHRONIC FATIGUE #PEM

My arm was shaking to hold the camera SMH #ChronicFatigue Hard being a mommy like this I beat myself up cause I don’t want her to see me in bed all the time but I don’t have a magic potion 🧪 I can’t make it go away she’s thirteen and I been ill almost all her life so she knows but I still relentlessly feel guilty. #MomGuilt