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Nica Davkybu
 • 
·
@nica27
Plaquenil 3y

#Plaquenil

Well, my Rheumatologist put in a script for 90 days. Apparently I was lucky to even get my 30 day script. I'm not sure what's going to happen when that runs out... Pharmacist said they aren't filling more than 14 day supply right now. I'm not looking forward to finding out. Can't even get a refill on the one NSAID that does not mess up my stomach, no doctor's appts. Starting to fret.
#Plaquenil #sjogrens #ChronicPain #UndifferentiatedConnectiveTissueDisease #Anxiety #InflammatoryBowelDiseaseIBD

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jbaglini
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@jbaglini
autoimmune 4y
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Life with being able to get plaquenil #Plaquenil #Lupus

Soooo the government told everyone that plaquenil which im on fixes the virus which is NOT actually proven to be true. I take this drug for the massive amount oof auto immune diseases i have including lupus, I get very very very sick with out it and now all the fucking pharmacies are out of it. Im gonna pray that when i need it refilled in 14 days shit is different but i doubt it ☹ here comes the mouth ulcers, oral thrush, stomach ulcers, eye infections, skin lesions, nails falling off,all my hair falling out worse then it is now, vomiting, diarrhea, and my immune system killing me and my organs instead of anything else including the virus... and all the other wonderful auto immune symptoms i get all at once when i don't have that med #autoimmune #scared #sjogrens

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Alana
 • 
·
@alanaspencer26
Plaquenil 4y

Anybody else with #RheumatoidArthritis on Plaquenil?

Keep seeing on the news that Plaquenil is working miracles for the coronavirus. Had a long chat with my pharmacist when picking up after this had been approved by the FDA. He said he believes it will kill the virus and that I should try to relax because if the drug does what they say, I have a very low chance at getting it (which is great considering my nonexistent immune system thanks to methotrexate). Anyone else talked to doctors or pharmacists about this? Or has anyone else on Plaquenil looked into this? #Plaquenil #RheumatoidArthritis

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Tay
 • 
·
@gryffindorspoonie
words 4y
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A Day at a Time

Some days are tough.
Trying to make it through the day in pain.
With a headache because of the new medication.
Making it through a work week because it needs to be done but struggling to hold it together on the inside because emotions pile up.
Allowing myself to get back into writing and art because I need an outlet.
I wrote something out already but the app glitched and now I’ve lost my muse.
Basically I’m tired.
I’m in pain.
I’m trying my best to stay in a positive light and make it through each day.
I have a support group.
Sometimes I feel like I’m just not understood but I know that’s partly because I don’t always share how I feel.
I won’t say when things upset me because it can be draining for me to try and explain why it upset me.
#words #Lupus #Prednisone #Plaquenil #MCTD #raynauds #sjogrens #RheumatoidArthritis

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CarissaMcD
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@carissamcdonald
Christmas 4y

lost

I have been in a sea of trying to get my doctor on track with me.
I have been dealing with candida that has taken over my mouth sense before #Christmas and so far she has thrown #Diflucan at it and #nystatin rinse at it along with me doing a #candida cleanse nothings working.
Now she wants to cut my #Topamax because I’m wanting to change from my #Plaquenil to #Benlysta due to my chronic #Nightmares that make me feel like I’m suffering a #HeartAttack nightly. When I do sleep…
Anyone have any sort of experience in these areas?
TIA!!
#Fibromyalgia #BipolarDepression

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Cathi Paige
 • 
·
@tiredgrandma62
4y

Has anyone had to stop taking #Plaquenil for #Lupus, and had any side effects after they stopped taking it?


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Lauren Michelle
 • 
·
@lo_younger
5y Sent from app

#CheckInWithMe #Plaquenil #Medreaction #Lupus

So I started plaquenil yesterday and had one of the most severe reactions to it. My legs wouldn’t stop spazzing/shaking, my arms went completely numb and cold. I felt dizzy, sick, tired, and pretty much every extreme side effect of the drug. We went to the ER, cause I couldn’t put weight on my legs or walk. After a high dose of steroids, some strong anti anxiety meds, and prayer, things got better enough for me to go home. Thankfully I only took half a dose to start bc my rheumatologist was scared of something like that happening (hence only being on methotrexate until now) Time to try a new drug. Send some prayers and good vibes my way today ♥️

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Malinda Duncan
 • 
Lupus
8y

Why It Took Me 3 Years to Write About My Lupus Diagnosis

Three years.  I am a writer by nature.  However, in three years, I have not written about my lupus diagnosis. When I was first diagnosed, I wanted to be able to pour out my feelings on paper and tell others about lupus to raise awareness for an underfunded disease. I wanted people to understand living with lupus. I [...]
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