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    Community Voices


    I was recently started on #tegretol to replace #Topamax because it caused me to have metabolic acidosis. I have noticed in the last few days that I have been super forgetful, saying things that I’ve already said, and the #BrainFog has been real. Has anyone else had this issue with tegretol? If so does it get better over time?
    #MultipleSclerosis #AutonomicDysfunction #TrigeminalNeuralgia #SmallFiberNeuropathy #PosturalOrthostaticTachycardiaSyndrome #Gastroparesis #Epilepsy #Portacath #TPN

    7 people are talking about this
    Community Voices

    When you feel ignored by professionals

    I had been having #Migraines since 12 and I had had enough at 33. So my family doc prescribed #Topamax/Topiramate. Everything was going well, no migraines, until insomnia, #Anxiety and #Paranoia. At first I thought it was me until it got worse and went to see a #Therapist. The place I go states I need to see the psychiatrist at least once and as soon as I told her that my mom was bipolar, from what I remember as a kid, she immediately diagnosed me as such. I had even brought up Topamax and said a lot of this started around the time I started taking that, could it be that? She said no, I don't think so. Prescribed Latuda and moved on. I had an adverse reaction to it when mixed with #trazodone(for insomnia); stopped Trazodone and continued Latuda at 20 mg. My mental state got worse after going up 40 mg. Went back down but, still didn't feel right. Moved on to #Lamictal. Every appointment I kept discussing Topamax. Both the therapist and psychiatrist ignored my pleas. So two weeks ago I stopped Topamax with the help of my family doc finally listening to me. Today I feel like myself after so many months of not being heard. Everyone kept saying these two docs are the best at what they do and I'm over here a complete mess. After also being lied to about hospital policy. I had to find out on my own by the hospital's website and forms they gave me about seeing both docs at the same time.
    I don't know what to do now. I feel lost as far as how I was treated eventhough I came to them for help. All bc of #Topamax. The fact that I had to find out on my own is sad. When you go to a #MentalHealth specialist for help they act like they are superior and you have no authority over your mental state. You know how your mind makes you feel and everything that's feels different. I believe a second, even a third opinion is helpful bc not everyone is right all the time even doctors.

    3 people are talking about this
    Community Voices


    I have been in a sea of trying to get my doctor on track with me.
    I have been dealing with candida that has taken over my mouth sense before #Christmas and so far she has thrown #Diflucan at it and #nystatin rinse at it along with me doing a #candida cleanse nothings working.
    Now she wants to cut my #Topamax because I’m wanting to change from my #Plaquenil to #Benlysta due to my chronic #Nightmares that make me feel like I’m suffering a #HeartAttack nightly. When I do sleep…
    Anyone have any sort of experience in these areas?
    #Fibromyalgia #BipolarDepression

    2 people are talking about this
    Community Voices

    Anyone else prescribed Topamax for Fibro? #Fibromyalgia #Topamax

    I went to see my Rheumy last week and he added a bunch of new meds, including Topamax. He said it's to help with my Fibro pain. Has anyone else been prescribed this or had experience with it?

    5 people are talking about this
    Community Voices

    advice with topamax to help with anxiety

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    Community Voices
    Community Voices

    How long have you been on Topamax?

    #Topamax I’ve been on Topiramate for around 6 months lost loads of weight which I love but I just hate the fact I can’t function without them! I have awful headaches/migraines. I don’t like the side effects either like mood swings, forgetting things etc. How do you cope? 😌

    Community Voices

    I just started month 2 on Emgality for migraines. I am supposed to wait until April to wean off Topamax, but I’m asking my doctor if I can stop taking it Monday. I think it’s making me sleepy and fuzzy like I can’t get my brain to turn on all the time. It helps with headaches, but I can’t keep sleeping all the time. This med is taking my life away. I’d rather be in pain and present than half awake and not myself. Has anyone had similar experiences on Topamax/topirimate?

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    Community Voices

    Has anyone been prescribed topiramate (topamax) for their BPD and has smoked weed ? Did any of you have any weird experiences? I’ll personally never in a million years ever mix the two again. I won’t go back on those meds and my interactions with cannabis have not been the same since. #BorderlinePersonalityDisorder #Topamax

    Community Voices

    I Do Not Like Green Eggs and Ham (a Medication Parody)

    I do not like these new pills,
    I do not like climbing a steep medical hill.
    I do not like this side effect,
    And how my system is feeling wrecked.
    I do not like how this pill makes me feel,
    I do not like the change in food appeal.
    I do not like feeling tired,
    Has this medication backfired?
    I do not like this tingling sensation,
    Or what it does to my mental cognation.
    I do not like adding pill one, two, three,
    I do not like feeling like I'm on a pill shopping spree.

    Yet, I do not like the daily pain,
    And maybe this will break that throbbing chain.
    I do not like laying in a dark room,
    I do not like letting the pain consume.
    I do not like letting the pain win,
    So this treatment wheel I will spin.
    Treatment one, two, three...
    What will it be?

    I do not like losing hope,
    So I will not give up, NOPE, NOPE, NOPE.

    #Medication #ChronicIllness #RareDisease #Migraine #MentalHealth #ChronicPain #SideEffects #MentalHealth #Topamax

    18 people are talking about this