Coronavirus Disease 2019 (COVID-19)

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    Seeing therapist tomorrow

    Hi. Am seeing therapist tomorrow.
    It's been a while.
    I hope I can get there and not worry.
    She had covid so I was worried about that.
    I think at least my mood has been OK.
    So we can talk about difficult things.
    Am seeing some friends today. But am very nervous as I am in most social areas.
    Scared of saying too much.
    Or not saying enough. Can take it as it goes. #social anxiety #CPTSD #Depression .

    8 reactions 5 comments
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    CMT post COVID

    Has anyone else here caught COVID, and found the progression of their CMT pick up in speed? I had COVID a little over a year ago, right at the start of 2022, and while I didn’t get that sick, this past year my levels of neuropathic pain have really increased quite a lot, and I’ve definitely noticed that I’ve lost more muscle in my lower legs than I would have expected to over one year, when I’ve made sure to continue to use those muscles as much as I can bear. I also have started to have serious cramping in my hands several times a day.
    Last I looked into Charcot-Marie-Tooth and COVID, there wasn’t really any information beyond ‘probably not a great combination’, so I’m wondering if there’s anyone with first hand experience with all this.
    I’ve heard COVID referred to as a stress test on your body— any conditions you were unaware of will be brought out so you are aware of them, and any conditions you already knew about or had symptoms of will be made worse, which really does feel accurate for what it’s been like for me this past year
    #CharcotMarieToothDisease

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    I’m new here!

    Hi, I'm here just to get some thoughts out. Like a lot of people (I imagine), I've kind of gotten a lot more antisocial after the COVID-19 pandemic began. And um, just looking for some good listeners, and I'll try to lend an ear too.

    2 reactions 1 comment
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    #FND how are you all me and my other half have got covid it’s horrible every one stay safe 💕 roll on summer 😎

    1 comment
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    The article below is full of great ideas on how to find a good new doctor…please add your own experiences, tips and suggestions

    Great article that talks about the importance of good bedside manner, doctors that listen, checking your insurance at the start of your search, asking good questions and do your homework of course! It has lots of good ideas especially at the end under “Finding a good fit”…like…

    “…During that first visit, think about how the doctor and office staff make you feel, HHS advises. If the doctor doesn’t make you feel comfortable, show respect for what you have to say, know your medical history, and spend enough time with you, then they might not be the one for you.”

    www.everydayhealth.com/healthy-living/new-survey-asks-what-d...

    #MentalHealth #Depression #Anxiety #Disability #PTSD #Selflove #Selfcare #ChronicIlless #ChronicPain #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #COVID19 #Migraine #Headache #PeripheralNeuropathy #Concussion #BrainFog #ParkinsonsDisease #balance #EssentialTremors #Memory #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #ADHD #RareDisease #ChronicFatigue #IfYouFeelHopeless #Hope #Faith #FuriouslyHappy #Belief #Love #help #GettingHelp #InsideTheMighty #TheMighty #MightyTogether #DistractMe

    8 reactions 2 comments
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    Rough.

    A couple years ago I was diagnosed with Cyclothymia. - Borderline Bipolar. Not considered Bipolar because I always had #stability and worked extra hard because I was a single mom. Up until last year I left my job of 5 years for More money. My life went downhill after that. The day I after I put my 2 week notice in I caught long term Covid and almost died. Lost my vision couldn’t walk or take. Some how I recovered. As soon as I did my kids moved out. I went into a deep depression and lost my job. My kids haven’t spoken to me since they left with a father that was gone the last 6 years. It affected my performance so I was let go after 6 months. And this week a tornado hit my storage and I lost everything. I spent the whole day yesterday in bed crying. I some home had managed to not turn to drugs and alcohol. Trying to cope and feel this but it’s getting out of hand. I go to the gym every day. Just reaching out for kind words and help really. What are some positive ways you guys and girls handle stress. What books have you read that helped better understand what your going through. #struggles #Bipolar #Cyclothymia #basicallybipolar #thinline #help #thissucks

    41 reactions 14 comments
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    Thai Prison and Suicide

    Do not ever love with all your heart, I have been married for 15 years, I have given him a kid, and faithfulness, we sing together, we cook together, I do not do substances, just drink a little and have been serving him all these years, I'm jealous, I woke up jealous, he's seeing all these lawyers and doctors and bringing elderly to appointments so I don't see him much, my pre teen wants to go to Thailand, he wants to go to Thailand, I want a comfy bed and breakfast in the hills of Ireland with family which I have never had, in the last 8 years during which time I have had almost, and I mean almost no contact with extended family I have been incarcerated twice at his request, one time for singing Zac Brown, A Mother's Love, when I fancy myself Sweet Annie and him Sweet Mikey, another for defending my father after he is stuck in rooms for 2 weeks at a time due to wrong covid restrictions at the time of the Ottawa truckers protest, I cry a lot, there's been extreme fighting all year this year and sometimes I shroud our Mary Icon as for her not to see this shit, I would wear a baboushka if he wanted me to, I go to church, and take care of everyone, as does he, I don't want to go to Thailand, I think it's a place for escorts, we have never been on a vacay in 7 years, and then never out of the country only the odd week at a cottage every 3 years, I'm a cottager, and unless broken hearted usually whole there, last time I was incarcerated it was three or four days in a locked room and 2 weeks in a ward, the time before was 5 weeks in a locked ward, I'm really balanced, but often abused, and my family comes into money sometimes, but i dont think that's it, i think its trips and cheating, I don't want him to go with an escort or another woman or man of interest since I love him and don't want this, also when we did go to Wasaga, kid and him spent most of the time inside watching Corey Feldman documentaries while I was at concerts or shopping or swimming, and our dog ate the tv cable, broken confused heart, yeah ya'll are beautiful but so is the Ocean in Canada, and women or men on their deathbed even if it's just due to a broken heart, hard working wife, neglected, sad, for 15 years, but still the same, splain that to me, ouch, sorry to be so negative

    2 reactions 1 comment
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    How we process our diagnosis effects our outcome.

    My cup runneth over. The cup is half empty or is it half full. What is the lens we see ourselves through to make these judgements

    I thought my cup was full enough till it wasn’t. And this was acceptable but now my life may be running out of time. How can that be. I do yoga I eat well I volunteer. Yes it’s your turn, sorry.

    It was not only my turn, it was my partners turn as well. He has been living with a terminal leukemia diagnosis for five years when my heart begins to lag behind.
    We have both entered this end of life arena not yet 70.

    In hindsight I witness the grace of this experience I would receive the news that emergency open heart surgery was required. I had hiked thirteen miles the month prior and something broke loose. It was during Covid times. I thought me just sick.

    As we all did during Covid we found ways to look for meaning in these confusing times. My partner and I were two days into a four day online meditation retreat with Mountain Cloud of Sante Fe. A woman named Virginia would tell a story about a Buddhist nun being told she was going to die of her cancer. He wanted her to be alarmed it seemed. She thought I am my cancer and was not to be rattled. I took that in. Impermanence

    We sat at our table to process the meditation gathering event happy to be doing it. The call came in. You need emergency open heart surgery. We missed it on the first look
    I hang up. A deer in the headlights He makes all the reservations while we sit at table still me hardly able to focus. Done. I stand. I say I’m going out to our camper to process alone and leave. In a good marriage we have processed most things together so this was different.

    I lay on the bunk and hear my mind say the words open heart surgery and my body starts to panic. I have never experienced panic mode. It started at my head with thought and traveled all the way down my body picking it all up together when I remembered Virginia. I am my cancer she said. I am my heart. And the trembling stopped

    I called to mind they looked again and found it after I requested it. I wasn’t getting better. They listened to me. This is good. I immediately came back to the cabin to relieve my best friend.
    And the dance began

    Where is my cup now. Shouldn’t it be full. I’m feeling pretty mighty. I am hiking seven miles already one month into recovery. It’s pretty full. Two months and one day after open heart surgery and the day after being given a clean bill of health, I get a call at eight pm. What a hard call that must have been being my doctors my friend and we live in a small Alaskan town. We see a blip on your last ultrasound. It could be nothing

    It wasn’t nothing, I would turn down the only option in the medical profession that would insure me a long life. I said I have loved my life. I will not be tethered to the system on my way out. I will live with this cancer along with my partner He is considered an outlier being five years past his expiration date.
    So we live
    Isn’t that what the mighty do?

    We are finding our way into an alignment not felt before as it’s just gotten real. Everything matters. Everything belongs. We are discovering new ways to approach a very dire piece of news not falling apart but thriving.

    If we can learn to listen to what our bodies are saying and filter out the white noise of what you should be doing, like our doctors, family and friends trying inform , we may just be able to hear, it is my belief these diseases are messages to help us change how we live and move through the world.

    Feeling mighty comes in many packages. I am delighted the real might showed up when needed so we may keep it real continuing to help others along our way.

    3 reactions 2 comments
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    Covid at 73 - dark times

    My husband and I have been very careful over the last two years to not contract Covid.

    I have comorbidities of lung disease and afib and kidney issues. My husband is healthy with severe joint issues . My husband is our food shopper and always wears a mask in public. On Jan 2 he began to feel very ill with a terrible headache and sore throat. He stayed in bed two days. I tested him and he showed positive right away. I was staying in the living room. That night I experienced terrible drowning coughing, fever of 102 and excruciating body pains. I tested that morning and was negative. I spoke to our Doctors who said I would be positive the next day. They were correct. From this time on is a very lonely and frightening ordeal. There was no caregiver as each of us were struggling. His sickness caused vertigo and weakness and headaches. Mine, perhaps due to my lung disease centered upon my chest and awful weakness.
    We lost our sense of smell and taste. On day six I warmed up soup and ate it. I always drank tea.
    The pervasive feeling of being so ill and so alone really overwhelmed us. It is day 18 now and we now get up and move to living room couches. We are unable to clean, do laundry or put away our Christmas tree which we have grown to dislike.
    I know I sound terribly whiny but so many people have said Covid isn’t bad- and we are two old souls who say - wrong. We long for a “ good” day when we can do our chores and feel happy. This is our Covid- day 18.

    7 reactions 3 comments