Pseudotumor Cerebri

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Pseudotumor Cerebri
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    Totally confused

    #PseudotumorCerebri . I was diagnosed a month ago and boy has it been miserable. However they didn’t exactly tell me what it is just that fluid builds up creating pressure. One if my friends says it’s like having a brain tumor without the tumor. Which I can believe. So can someone explain what this is to me please.


    Storm Pain Distraction Ideas Needed!

    Hi. My name is Brandy. I’m 43, and currently live in Phoenix, Az. Today & tonight we had/have a series of rain and wind storms rolling in and out. I suffer from a slew of medical conditions including Arthritis, Bursitis, Fibromyalgia, Pseudotumor Cerebri, Chronic Pain, Ankylosing Spondylitis, spinal issues, and the list just keeps going! I did semi okay during the day today. Did a lot of snoozing’ with my puppy. But as more and more storms come through my pain levels are skyrocketing! I’ve already taken my pain meds, anti-inflammatories, anxiety, and other meds that help me. I’ve done the heating pad thing, the stretching thing, and tried watching TikTok and YouTube to distract my brain from my soaring pain levels. What ideas do you have to help deter my brain until I can get comfortable enough to fall asleep? Thanks in advance!

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    Formerly Avid Readers?

    Any other avid readers lose the ability to read books because your brain can't focus, create mental images, or, some days, even read a sentence? It's driving me crazy.
    I keep bringing books home in the hopes that it'll get better one day, but I now have a shelf of books I haven't touched. #Fibromyalgia #ChronicPain #ChronicIllness #PseudotumorCerebri


    First Neurophthalmologist appointment next week... any advice?

    So I have my first appointment with a neuropthemolegist (still can’t spell sorry) next Thursday and I’m not sure what to expect. I’m quite nervous and would love to hear about other’s experiences to quell some of my anxiety. The one thing I have heard about this particular doctor is that she is very thorough and the appointment will probably take like 3 hours so... any advice is greatly appreciated!
    #IIH #iihwarrior #IdiopathicIntracranialHypertension #BenignIntracranialHypertension #PseudotumorCerebri #IntercranialHypertension #doctorsappointment #Advice #AdviceWelcome

    1 comment

    Has anyone’s speech ever been affected by pseudotumor? Scans came back normal but one of my drs said it could be possible.



    Wish me luck!

    This week, I had to make the decision to go back to work. I have been waiting for disability for almost a year. I’m separating from my wife and have no source of income so I am forced to put my health at risk in order to survive. How long will I be able to sustain this? This year has been so rough with dealing with new diagnoses, worsening health and surgeries. I just want to be able to take care of myself and I’m scared I’m not going to be able to.
    #Lupus #Fibromyalgia #Endometriosis #IrritableBowelSyndromeIBS #PseudotumorCerebri #MentalHealth


    Question for #HEDS peeps who have easily tearable skin.

    Alright so I finally invested in some KT tape for my joints, as its less bulky for work, which is fantastic and works well. However, no matter how delicately I pull off the tape, my skin ALWAYS gets torn.
    Any tips on how to be able to use the tape but not tear up amd further scar myself?
    #EhlersDanlosSyndrome #ChronicPain #ChronicIllness #MightyQuestions #JointHypermobilitySyndrome #PseudotumorCerebri


    Just Nighttime Thoughts

    You know, sometimes I just feel lazy in my pain. I feel so fatigued that I don't make the effort to stop it but rather just wallow in it. But I'm wonder why I even do it. I truly don't have anything to stop the pain. NSAIDS work a little but if I take a lot I get rebound headaches. Cream and lotions do a bit, TENS unit, heat, and ice do a bit. But nothing eradicates it. Because of my low NSAID usage, doctors don't believe I qualify for higher pain medication.
    However, like I wonder, why even try to alleviate pain temporarily if nothing works? That's a spoon or two of effort I could save.
    Can anyone else relate, or am I just unmotivated?
    #EhlersDanlosSyndrome #hypermobileehlers-DanlosSyndrome(hEDS) #ChronicPain #ChronicIllness #MentalHealth #CheckInWithMe #PseudotumorCerebri #Tachycardia #Asthma #IrritableBowelSyndromeIBS #AcidReflux