SmallFiberPolyNeuropathy

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    I realized I hadn’t updated my “medical conditions” list on my medical ID bracelet site in awhile. I realized after looking over my list that most of my conditions are “invisible”, except for my knee problem that I wear a knee brace for and sometimes use a cane. So often, I feel overwhelmed by the number of conditions I live with (Am I a “bad seed”?) and the physical and emotional pain that they cause; even the ones that have been “repaired” have come with lingering pain from scarring, incomplete cure or subsequent Dx. I’m thankful for my caring husband and a few really close friends who understand to a point. But even they get tired of my need to share my emotions about what I’m going through. I’m thankful for this group who gets what I mean and can give support without judgment or weariness.
    I’m no longer able to work fulltime; I used to be an educator in various special education programs as well as in schools.
    I try to help others who have conditions like mine as well, so I’m not just a “taker”.
    Here is my list. Dates indicate either diagnosis date or surgery date.

    Right inner ear imbalance 1998
    Narcolepsy 1999, 2021
    Allergies - plants, animals, foods and meds
    Asthma
    Hypothyroid
    Sliding hiatal hernia 2011
    Sphincter of Oddi dysfunction Type 3 2007 - result of gallbladder removal 2005
    Diabetes Type 2 1996
    GERD 2005
    Mild/moderate disc degeneration neck & low back and mild spinal stenosis
    Slip & fall back injury 10/15- MRI Nov 2017 SI joint injury
    Fibromyalgia - 1995
    Sleep apnea 2019
    History of ruptured ovarian cysts 2006 -
    Recurrent tingling/"electrical shocks" all over body 2007 - diagnosed as Small Fiber Polyneuropathy 2020
    Scoliosis (curved and twisted)
    Right knee cartilage deterioration (injured 1979 & 1986) - diagnosed permanently dislocated kneecap 2019
    Arthritis - neck, hips, knees, hands
    Carpal Tunnel syndrome - 2019
    Bursitis - left hip 2017
    Recurrent "tennis elbow"
    Plantar fasciitis and tendonitis both feet - custom orthotics 1991
    Fatty liver
    Cardiac "regurgitation"
    Major Depression,
    Anxiety, C-PTSD, possible BPD
    Multiple concussions (5)
    Multiple whiplash injuries
    Vaginal Hysterectomy with Rectocele and Cystocele repairs - 2018 - Urinary incontinence
    Frequent Migraines

    #Multiplediagnoses
    #ChronicPain #MentalIllness

    #SuicidalIdeation
    #Trauma
    #SexualAbuse #SexualAssault
    #ChronicIllness
    #PostconcussionSyndrome #SmallFiberPolyNeuropathy
    #InvisibleIllness
    #Vertigo
    #Migraine

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    Community Voices

    Another Neurologist Appointment tomorrow. #Fibromyalgia #ChronicPain ##SmallFiberPolyNeuropathy

    I’m going to yet another neurologist tomorrow. I’m hoping this one doesn’t tell me to get a hobby so I won’t think about my pain like the last one.
    I’m praying he will agree to do the leg biopsy to check for Small Fiber Polyneuropathy. I’ve read several articles that suggest it could be the cause of Fibromyalgia. What a relief it would be to find out for sure. Please say a prayer for me! I will let the #Fibromyalgia community here what I find out!

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