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9 months post operation # spinalfusion #Backsurgery

Hello i do hope you all are well. I needed to vent and get some advice!
In my case I'm not so lucky.
Before surgery my symptoms of pain were shooting down my legs, my lower legs and feet going numb, my facilities were slightly reduced(was peeing and pooing about 50% less then before) not able to walk to the bathroom,
. My procedure was said to take about 4.5 hours, it took 7.5 hrs they said nothing to my husband so he was stressed out. Then going into the Operating room we had been told it would be MINIMALLY INVASIVE,.
SO they replaced 2 disks l4 & l5 and open nerve facet holes, and do the fusion...
I had L3-L5 fusion but i believe something went wrong while in surgery for me. There are a few reasons why I think this.
My fusion was January 3 2023. When i woke up after SURGERY along my left side that was not cut open on , it felt as though i had a chemical burn along my side and my hip down to my knee, a large painful lump also on the left side my non opened side, the 2 incisions on my back not clean cut incisions, looks like a damn 5 year old cut my open and not even centered properly , then 2 other incisions 1 about pinky length the other about 6 inches long. Post operation now 8.5 months. I am left partially immobile about 50% of the time, imagining at 2 months showed that i had a NEW crack in L5. Still severe pain, my whole groin is f------numb. I am a married wife and mother. I have never been one to sit and do nothing I'm going crazy from pain. My husband tries to understand and at first had no understanding what i was going thru bc his back surgery was a success back in 2006. But it was just a disc removal.
I am at a loss of what to do. I need to find an attorney, but getting discouraged the few i had talked with would not take my case due to their large case load they already had


# A hard journey

I was diagnosed with scoliosis in 1999. Received disability. I am now 74. Now hEDS plus comorbidities from this disease. I am losing connective tissue in my spine. It is hard to breathe though my lungs though lungs are heathy.
I am bedridden except to be able to get to bathroom and kitchen. Thankful for that. My pain is still uncontrolled. In 2006 I attempted suicide. I was a hospice nurse. I put 10 expired fentanyl patches on my body. Those patches were needing to be destroyed. Over the years, I stockpiled those expired patches. ER doctor said it was a miracle I survived. You would think I would have died. Sadly I survived. It pissed me off I had failed.
Recovery was at the Utah University Hospital then 6 months in a skilled nursing facility.
I am contemplating going to Sweden for doctor assisted death with dignity.
I am not religious. I have no issue with suicide.
I am researching Doctor assisted death with dignity in Sweden.
I do not believe suicide a sin
I have uncontrolled pain
I can’t do this anymore.


An interesting development

#Doctors #Scoliosis Hi. How is everyone today? Before we officially go into fall I would like to share a interesting development that has quietly taken shape. I was looking through my test results & noticed one that was tucked in there. My spinal scans from the spinal specialist & whats hypocritical of him is when he told my mom that everything is normal. Yet the report said otherwise. They noted a dextroscoliosis of 26 degrees in my neck, a 13 degree levoscoliosis in my upper spine & a marked coronal imbalance measuring 18.1cm or 7 inches. So what does this mean? Well, a few things it means a rare form scoliosis called cervicothoraric scoliosis in combination with degenerative signs in the cervix & a laryngocele with other findings on brain scan this would point to a little known condition called klippel feil syndrome. BUT WAIT! there is one very profound problem nothing in my genetics mentions any gene related to klippel feil. however, this caught my attention. There is a locus on 8p22.2 that is known to cause laryngeal malformation. This condition is autosomal dominant. My mom has complained about hearing loss & a stooped posture in her neck for years that isn't being cured by chiropractics. Now I'm starting to wonder if my degenerative disc disease of the neck & these new findings will point us toward a new diagnosis. Unless it's just a spinal injury but considering the development of a zenkers diverticulum & prior pinched nerve causing dizziness (radiculopathy). It's also associated with jaw disorders like micrognathia of which I have.

Anyways, everyone. . .have a great fall & wonderful new year. ;)


I'm new here!

Hi, my name is krish_bouy. I want to know more about this Scoliosis treatment

#MightyTogether #Scoliosis

1 reaction 1 comment

I’m new here!

Hi, my name is Meo86. I'm here because I would like to meet other people to help me with my struggles I have and I would love to help other too.

#MightyTogether #Anxiety #Depression #PTSD #ADHD #AutismSpectrumDisorder #Migraine , scoliosis and domestic abuse

4 reactions 2 comments

The Struggle

I was diagnosed with R/A at 27 yes old. At the time

I had 3 children under the age of 5 yes old.

I am now 70 years old and still on this side.

I had life saving surgery a 1 1/2 years ago

and now have an ostomy.

I have been living at a decent hotel for the last

1 1/2 years.

I also, have severe scoliosis and use a walker.

I have had some great remissions that have allowed

me to travel and to, participate in my sons lives.

Three years ago I fell out of remission and at my age

it has been a serious challenge.

Forgive me for my writing because I type with my

right thumb.

My advice: Seek out Disability through State

or Federal Government and use an agency that specializes in this work

Develop hobbies with others.

Find a sense of humor.

I find people that have suffered and fought to be:

the deepest in love and life.

Love yourself you are beautiful the way you are.

Hard task. I know. But, you are not alone.

I send you Strength & Love Teri

1 reaction

Serious illness finally overcoming after long fight.

#ChronicIllness Hi there. My name is Nick. I'm 6.3ft & love to swim, work at my job, listen to podcast, sometimes games & Am a music lover. So I've got quite the story to tell for this group. So, About a year & a half ago I got a pinched nerve that caused me to put my head down. I moved houses & got a job & saw a chiropractor to get the pinched nerve taken care well it back fired & I got changes in posture & severe muddy poop. Prior to this I had lack of awareness that there was a problem & serious lacrimation at night with serious fatigue that would make me feel terrible even when napping. During 18 month long diarrhea escapade I got dark urine/dehydration, funny anal sensation, nearly fainted, got exhaustion issues. I saw neurology, spine specialist, ent, saw 2 physical therapist, saw a neurologist then that same neurologist canceled on everyone for a 5 month vacation & switched general doctors. I got 2 ct scans, an mri, An x-ray, & multiple blood panels, genetics testing (both of which weren't significant enough) though they found carrier for cep290 & chromosome 4p microduplication. They found some mild spinal abnormalities like degenerative cervical bones, some vitamin deficiencies, mild scoliosis of the mid back, mild lumbar retrolisthesis, porencephaly, laryngocele, & finally after not figuring where the abnormal poop is coming from. A immunoglobulin test revealed I have mildly decreased IgM levels for reasons unknown. I hope that seeing a gastroenterologist in a month finally reveals what's been going on. I do have some inflammation just under the sternum (liver?) Anyways hopefully this story gets out there.

8 reactions 2 comments