Hi, my name is Goodluck12. I'm here because I believe I have arachnoiditis. This is probably caused by my major scoliosis surgeries several years ago. Now, I have trouble walking as my legs are very weak. The surgeries have also caused me to have spinal stenosis and I walk bent forward.
I like to know if anybody else have these problems. I would appreciate hearing from you. Thanks.
#MightyTogether
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I’ve been thinking a lot about my scoliosis this week after seeing a specialist for private care. I had surgery at 15 to correct a 50 degree curve, which to this day I regret because it was a decision I made based off how I looked and how much pain I was having rather than any information about curve progression or potential risks to my lungs. I don’t think it was a good decision and I want to look into this further. For now I will just say I have suffered Chronic Pain ever since and I have been attempting to unpick the ableism I have experienced because I am tired of feeling so angry all the time. I just want to understand why. I hope this message reaches other scoliosis sufferers because I would love to talk about it.
“He told me my pain was in my head”: mitigating testimonial ...
I read this article this evening and was happy to find a support network for teenage girls. www.curvygirlsscoliosis.com
I would be interested to hear what other people think about their scoliosis. I have an idea in my head that it was a silly thing to have surgery for pain and looks when I feel that the surgery itself was more traumatising then just living with a curvature.
So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.
Having such a messy schedule is its own problem but sleeping best during the day is still true to me.
I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.
So I was up from 1Am to 6AM.
Now I am at waking at 6AM and then 3pm though it is forever Changing.
My best advice is to listen to your body, what does it NEED??
Not just want but Need too?
You are the You expert, show em how it is done!!!
#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica
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Cute Lil Rosie Fluff on a lazy Saturday ✨️✨️
I do love my puppy snuggles 💕
Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.
We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.
One day, tomorrow a new dawn. Deep breaths, bring it on!!!
Or rest up for tomorrow 😉 you know yourself best! ❤️❤️❤️
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #Psychosis #PanicAttack #PanicAttacks #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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My brother is returning from his mission for our church. We are members of the church of Jesus Christ of Latter-day Saints and members who go on missions go for 2years.
This is a picture with my camera flash so you can see the sparkles of silver and gold in the acrylic paint I used for the sword.
The hilt is a Phoenix which actually looks decent if I do say so myself lol
In the middle my mom will write the words:
"Well done thou good and faithful servant.Thou hast been faithful. Enter thou into the joy of the lord"
Oooh I am so excited to give it to him!!!
He has thrived as a missionary and I am so darn proud of him!!!
What do you guys think of my sword??
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #CheerMeOn #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MightyTogether #MemoryLoss #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts #Sleepwalking #Scoliosis #sciatica #ShinSplints
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If I told you I see the beauty in you, Would you begin to see it too?
Please feel free to comment!
Proof the hurricane was very very bad but not so bad that we gave up.
It was absolutely scary but soooooo blessed to have a house, candles, water, food, and that our power was turned on 2 days before we had estimated. Hallelujah for that my friends!!!
And I kept Rosie close so we would both stay safe if not melted from the insane heat in our area and with extra humidity. Yuck!
Just suck in some air but try not to choke as humidity tries to drown you 😅
I prayed and pray still that all of you can quickly get any help you need.
The best thing EVER was being able to cancel appointments from this week- whoop whooop!!! 🥳🤭
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #CheerMeOn #Eczema #Upallnight #gallstones #MightyPets #WakingNightmares #Sleepwalking #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints
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I love to try new teas though only herbal. There are SO many I love how the world has millions of flavors to enjoy!!
My favorite is mint and sleep teas.
That incredible peace your first sip gives 👌
I have gotten everyone I know into teas and my mom has become obsessed with her Chocolate tea. On her hardest work days she takes her tea to work.
(I like my Chocolate cocoa tea best lol but hers is okay too and she has become a humongous fan of coconut creamer with it.)
She is lactose intolerant so tea makes her happier than cocoa with milk though she very much misses indulging.
My body is slowly becoming intolerant too so I can have milk every once in a while.
Peppermint hot cocoa always just makes me so happy!
Soothing goodness on any rough or easy day 😋😋😋
Do you prefer tea on rough days or easier self-care days?
Yay to the best self care aka tea 😁❤️✨️❤️
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #musclespasms #MemoryLoss #MightyTogether #Migraine #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Sleepwalking
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Cutest little Rosie pup!
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #plantarfasciitis #Psychosis #PanicAttack #PanicAttacks #PTSD #MentalHealth #MightyPets #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #musclespasms #MultipleAutoimmuneSyndrome #Sleepwalking #Scoliosis #sciatica #ShinSplints
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