Ankylosing Spondylitis

I have Ankylosing Spondylitis, Fibromyalgia, and recently had a bilateral pulmonary embolism. I’m on a million medications which don’t ever really help my pain during a flare up. My specialty doctors have quit hearing me I think because they are so tired of hearing me “complain”. I cannot for the life of me finish PT because I work full time and I just got written up for missing so much work (being I. The hospital for 4 nights, er visits, days where I literally could not move)…. I was recently sick and was forced to come into work with a fever of 101.3. I’m tired. I’ve been told by my rheumatologist and PT that “this is something you’ll just have to get used to”.

I’m ready to give in. I live on a farm, 3 years ago I was able to do all of this stuff by myself but now, ever since my diagnosis, it takes all I have just to brush my teeth and put on clothes.

I’m so lost. I don’t feel seen. I don’t feel heard. I feel invisible. And aside from being in constant pain everyday, that’s the worst feeling.

I am not ready to quit working, but I’m so scared that I’m going to be fired for something I have absolutely no control over.

I’ve tried seeking therapy, I did online therapy and was told by the therapist that I needed to seek out another therapist to help me.

I’m broken.

Just something to remind us all..
#MentalHealth
#Anxiety
#Caregiving
#PsoriaticArthritis
#Migraine
#DistractMe
#Arthritis
#AnkylosingSpondylitis

Never forget that change can be beautiful! The Fall shows us that! Hope this finds you well, and remember to take care of YOU! 🧡
#PsoriaticArthritis
#MentalHealth
#Anxiety
#Arthritis
#Caregiving
#AnkylosingSpondylitis
#ChronicPain
#Migraine
#DistractMe

Remember to show yourself love and kindness. You're important, and I hope this can remind you to show that same kindness to you, as you share with others! 💜
#Anxiety
#PTSD
#MentalHealth
#AnkylosingSpondylitis
#PsoriaticArthritis
#Migraine
#DistractMe
#Depression
#Selfcare
#Arthritis

It's hard to sit down. It's hard to stand up. It's hard to get into and get out of bed. It's hard to turn in bed. It's hard to bend down. It's hard to get up. It's even hard to walk. This is because of the severe pain. #AnkylosingSpondylitis #ChronicPain

Thinking about you today, and wishing those who celebrate, a very happy Easter and/or happy Passover 💜
#MentalHealth
#Anxiety
#AnkylosingSpondylitis
#Arthritis
#Caregiving
#ChronicFatigue
#Depression
#Migraine
#PTSDSupportAndRecovery
#DistractMe