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I’m new here!

Hi, my name is nancynurse331. I'm here because I have Myxofibrosarcoma that has metastasisized to my lung. I'm looking for someone else who has this cancer and what they have done for treatment.

#MightyTogether

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Just Richard

Indeed peace please give me the time to say peace of mind body and soul is the darkest light, from the darkness soul.
Indeed a man with no family to call his family, family?
Indeed that's the new world I live in now, the cry is called crying out loud.
Indeed I see the light from the darkest room in this room, from the embarrassments I live in from the so called family now I see how money is the rule of evil!
Indeed that's the pain how much pain is to much, WOW and it still painfully pain!
Indeed that's my mental health system inside of me dealing with the tears of hurt a shame of the so-called family and friends!
Indeed one day about this time I was posting something on my mind at that time, and someone wrote something that maked me feel real bad inside of me.
The Mighty community is good all the time to me and thanks to the one's that listen, that give me that peace of mind I look forward to from the special people, like me.
Indeed my mother my best friend is pass away from cancer and I miss my best friend!
Indeed to not honor your parent's is bad, I honor my parents but my so called sisters didn't!
Indeed and I tried calling no help at all just greedy want the money!
Indeed my mother no funeral for her I try to Green miles one day back to back just me and mom do.
Indeed the image's of her suffering in my face is more pain mom do took a hole out of me, that green miles worked I was about 95 lb soaking wet from 160 lb!
Indeed my mother is inside of me dealing with the tears of hurt a shame of the so-called family got me like a ghost!
Indeed its good to be back here to the mighty community
see y'all soon peace and love just richard.

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Inactive ingredients: these are important too!

A little over a month ago, I posted about noticing a change in my medication’s effectiveness after the manufacturer changed and how I suspected it was the dye used because I felt repulsed by the taste when I took my daily dose.
Turns out, after reading my medication info pamphlet, the dye used was most definitely the issue. Yesterday, my doctor ordered a different dose for me to start - it’s the same manufacturer, just higher dose, so the dyes used are different to help distinguish appearance.

The troublesome inactive ingredient for my lower dose is the controversial Red dye 3 - banned in multiple countries and scientists have petitioned the FDA to have it completely banned with no action taken except for banned use in cosmetics.

While noted that the cancer was a result from high doses of daily ingestion, it’s commonly used in the US and it’s fair to suspect any prolonged daily use would ultimately cause same result. With some comparative endocrinology knowledge, the mechanism for how it causes cancer in rats by reducing T3 circulation and increasing TSH secretion is not something that would only impact rats. It’s an endocrine disrupter - and the hormones involved would be considered applicable to humans’ processes as well; insanely low dose or high dose does not necessarily make a difference.

This may also explain weird fatigue, upset stomachs, and increase in migraine attacks for myself recently after 2 months of ingesting my daily medication made with this Red dye 3. Luckily, recent blood tests show my TSH levels are within normal limits, but there has been an increase since the change occurred and in December of last year.

Lastly, Red dye 3 has been shown to have hyperactivity and hypersensitivity side effects, too, which would explain why my ADHD medication didn’t seem as effective.
While my new dose has a less controversial red dye (red dye 40), I will be mindful to be aware of side effects and notify my doctor to specifically prescribe for manufacturers that do not use the controversial dyes. This could cause delays in receiving my medication, but it’s better than continuing to ingest something that can give me cancer and causes my medication to be less effective.

So just a reminder how important it is to check those inactive ingredients because they DO make a difference.

#ADHD #ChronicFatigue #ChronicIllness #ADHDInGirls

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Being alone

Being alone is a tricky thing because even though we have an evolutionary instinct to find fulfillment through social groups and romantic partners, neither will actually fulfill us. It's so easy to believe that if only we had the social or romantic status that we dream of that it would make us happy, but how many people do you know (including yourself) who have found either of these and still felt lonely? There is of course nothing wrong with either. But as long as you place your worth on an external person or object, you will ultimately be left unsatisfied and will either want more or want something new. Be comfortable being alone first, and then let whatever fruits of this world come in and out of your life. Does anyone practice this?

As a way to better share advice with you all, I make video responses to your mental health questions.

The last video I made was about what to do if you find yourself distracting yourself from painful thoughts and what that could mean. If this sounds relevant to you, you can check out the video here:

www.instagram.com/thomas_of_copenhagen

Otherwise, if you have any questions about mental health, please post in my group and I will try to make a video response specifically for you.

~ Thanks to all. Thanks for all. ~

Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

195 reactions 44 comments
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What will you prioritize on your to-do list today?

Mighties, let’s share what we’re prioritizing today from our to-do list. Whether it's running a time-sensitive errand, wrapping up a specific project at work, taking some time for much-needed self-care, returning a phone call, grocery shopping, or even updating your personal or family calendar, we are cheering you on to get 👏 it 👏 done!

Mighty staffer @xokat is going to try and finish cleaning out her fridge and churn out some work-related writing since she wasn’t feeling very well yesterday and admittedly got behind. (It happens!)

P.S. If "all" you do today is surviveand make it through, that absolutely counts and we're really proud of you. 🫶

#52SmallThings #CheerMeOn #CheckInWithMe #MentalHealth #Caregiving #Anxiety #Depression #ChronicIllness #ChronicPain #Cancer #Autism #ADHD #RareDisease #Disability

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What routines are important for you to include as you plan out your day?

From waking up or going to bed at a certain time, taking a shower, writing a to-do list, or taking intentional time out for self-care and relaxation, including a few routines can be helpful in creating structure and consistency to our day-to-day schedules.

What routines do you find important to include when you plan out your day? Why are those routines important?

#52SmallThings #CheckInWithMe #MentalHealth #Anxiety #Depression #RareDisease #Disability #ChronicPain #ChronicIllness #Caregiving #Autism #ADHD #Cancer

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What’s your most low-maintenance health condition?

We talk a lot on The Mighty about the symptoms, experiences, emotions, and diagnoses that impact our day-to-day — some of us are more weighed down by physical illnesses, while others manage an all-consuming mental illness or caregiving role. But one perspective we don’t talk about as much are the conditions that we just kind of… forget about? (We know, we know, sounds fake. 😅)

Whether it’s because you’re in remission or very rarely experience flares or episodes, have another condition that causes more trouble, or live with a diagnosis that you were born with and don’t really put that much concerted, conscious effort into managing it — it’s time to choose your “golden child.”

For Mighty staffer @xokat, it’s definitely her rare headache disease, SUNCT syndrome. Thankfully she hasn’t been in a pain cycle in over a year and a half (it’s very common for the disease to enter long periods of remission), and she only takes one preventive medication to keep the attacks at bay. Other than that? Absolutely out of sight, out of mind. It’s very rarely something she thinks about, plans around, or talks about. What a treat!

What’s that low-maintenance condition for you?

#MightyMinute #ChronicPain #ChronicIllness #RareDisease #Disability #MentalHealth #Anxiety #Depression #Caregiving #Cancer #Autism #ADHD

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Smile

Has anyone smiled this morning? What made you smile? If something is holding you back, what is it? I'd love to help if I can.

As a way to better share advice with you all, I make video responses to your mental health questions.

The last video I made was in response to @myshel who asked about how to silence the mind. If this sounds relevant for you, you can check out the video here:

www.instagram.com/thomas_of_copenhagen

Otherwise, if you have any questions about mental health, please post in my group and I will try to make a video response specifically for you.

~ Thanks to all. Thanks for all. ~

Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

99 reactions 21 comments