Complex Regional Pain Syndrome

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Complex Regional Pain Syndrome
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I’ve always had a hard time letting go. Whether it’s people, words, or objects. I think part of it is being neurodivergent. My brain clings to things too tightly.

It’s not just sentimental items, though those are the most obvious. I still have my old stuffed animal tucked away in my closet because it was once my security blanket growing up. I have a bunch of ripped paper wristbands from concerts I attended over the years because it’s a joyous memory. I’m used to holding onto old newspaper clippings, movie stubs, hotel key cards—all of it stashed away in shoeboxes because I never seem motivated enough to organize them into a scrapbook. To anyone else, they’d look like random junk. But to me, they’re the gatekeepers of my memories. It’s proof that those moments mattered and left a lasting impression on me.

This is embarrassing, but I have attachments to clothes and shoes. Believe me, I love clearing out space and making room for something new, but at the same time, it stings to let it go. I hold onto them for as long as I can. I can’t tell you how many old band tees I’ve collected since my teenage years that I still haven’t parted with. They carry memoires of a version of myself that once existed. Donating them feels a little like saying goodbye to that person, and I’m not always ready for that.

And it’s not just physical things. Emotionally, I hold on just as tightly. I live with intense RSD (rejection sensitivity dysphoria), which means that words spoken to me, especially painful ones, stick. I replay them, revisit them, and often they live rent free in my head far longer than they should. Maybe that’s why I cling so hard to objects that hold joy and memory.

The truth is, I’ve made peace with the fact that I’m not great at letting go. My shoeboxes of ticket stubs and keys, my closet full of clothes, and my old stuffed animal aren’t clutter to me. They’re possessions that make me feel like me. They remind me of where I’ve been, who I’ve been, and the memories worth keeping. That in itself is reason enough to me to hold onto.

“We keep the things we can’t let go of because they hold the pieces of who we were.”-Unknown

#MentalHealth #neuro #ADHD

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I'm new here!

Hi, my name is Kendra. I'm here because I have been diagnosed with CRPS and hope to be able to find resources to help in this season of the journey. I have lived in constant pain for 14 years and am doing my best to fight to live a normal life and walk into my calling with faith, purpose, and passion! God has been my firm foundation through it all, and has provided miracles when they fight gets harder to fight. Amidst the pain... #myheartrejoices

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Stimming

Stimming can be funny sometimes. I do a lot of verbal stimming. So a few times a day I'll sing the corn song from tiktok "It's corn! A big lump with knobs. It has the juice! (It has the juice) I can't imagine a more beautiful thing. It's corn! I can tell you all about it! I mean, look at this thing! When I tried it with butter, everything changed!" My spouse always laughs and now often joins me for this one. I'll also randomly say "woohoo!" (I play a lot of Mario Kart) And I hum one of the Pokémon route songs from the older games (can't remember which) What is one way you notice yourself stimming or what are some funny stims you have?
#neurodivergent #neurodiverse #Neurodiversity #NeurodevelopmentalDisorders #IntellectualDisability #IntellectualDisabilities #LearningDisability #LearningDisabilities #Disability #ADHD #audhd #Autism #AutismSpectrumDisorder #AspergersSyndrome #Aspergers #SensoryProcessingDisorder #Anxiety #Depression #ObsessiveCompulsiveDisorder #MentalHealth #Spoonie #MightyTogether #CheckInWithMe #DistractMe #Dyslexia #Dyscalculia #Dysgraphia #Dyspraxia #TouretteSyndrome #Hyperlexia #RejectionSensitiveDysphoria #RSD

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Stimming

Stimming can be funny sometimes. I do a lot of verbal stimming. So a few times a day I'll sing the corn song from tiktok "It's corn! A big lump with knobs. It has the juice! (It has the juice) I can't imagine a more beautiful thing. It's corn! I can tell you all about it! I mean, look at this thing! When I tried it with butter, everything changed!" My spouse always laughs and now often joins me for this one. I'll also randomly say "woohoo!" (I play a lot of Mario Kart) And I hum one of the Pokémon route songs from the older games (can't remember which) What is one way you notice yourself stimming or what are some funny stims you have?
#neurodivergent #neurodiverse #Neurodiversity #NeurodevelopmentalDisorders #IntellectualDisability #IntellectualDisabilities #LearningDisability #LearningDisabilities #Disability #ADHD #audhd #Autism #AutismSpectrumDisorder #AspergersSyndrome #Aspergers #SensoryProcessingDisorder #Anxiety #Depression #ObsessiveCompulsiveDisorder #MentalHealth #Spoonie #MightyTogether #CheckInWithMe #DistractMe #Dyslexia #Dyscalculia #Dysgraphia #Dyspraxia #TouretteSyndrome #Hyperlexia #RejectionSensitiveDysphoria #RSD

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What do I do?

I have so much shit on my plate right now, I'm so overwhelmed!!! Between needing to pack, try and get money for storage, figure out how to safely make it down 4 flights of steps and back up to do laundry while barely able to stand up, get the trash out, all my appointments from home health to Drs ... I'm so exhausted! I can't do it all myself. Didn't mention I have 21 days to find a place and move out...

I have no help. The home health people don't help with anything, just vitals, nagging, notes, and exercise... I just think, "Okay b*tch my blood work is normal I'm not dehydrated, take the water crap and shove it. " Hell, between them and my family they just smile and nod when I say "i haven't been eating much cause I don't feel safe cooking, can't sit or stand long enough."

My family, "Be grateful you have family to help..." then when I need help, "Can you offer maintenance a few bucks to do it for you?" wtf?

I want out. I don't want to be in pain anymore.

( no religious replies, please.)

#overwhelmed #Stroke #POTS #CRPS

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