Dysgraphia

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Why We Need to Embrace Not Fear Labels

A common fear I hear from parents and caregivers is not wanting their child to be labelled. There can be so much resistance to getting a child assessed or accepting the diagnosis due to this unnecessary fear. Yet we need to embrace not fear labels.

The label is key to opening the door for supports. Without a label, people will make assumptions (often incorrect) about the child and their abilities.

I get the resistance to labelling. There’s the fear of people not seeing the child behind the diagnosis. But there’s a greater risk of not getting the supports needed without the label.

In my advocacy work, I often hear from parents and caregivers who know their child may have a disability, but don’t want to go through an assessment. Why? They are afraid an autism, ADHD or other designation will hold their child back from reaching their potential.

The opposite is true.

I’ve heard many stories of kids struggling for years with reading, writing and/or math, only to find out the child has dyslexia, dysgraphia and/or dyscalculia. This means years of the child getting frustrated and thinking they were stupid, to later find out they have a learning disability that requires specific supports.

Once the child has the label, parents, caregivers and educators can tailor the supports to meet their needs. And more importantly, the child can begin to understand how their brain works and the supports they need.

While this may seem simple, it rarely is.

Some comments I’ve heard from parents and caregivers include:

I’m holding off on having the assessment as I’m not prepared for the answer
I don’t want my child to be seen as different
I’m not there yet in accepting the diagnosis
I need time to process. When I’m ready I’ll get my child assessed
…and so much more

One common theme with the above statements – a lot of use of the word I. I’m holding off, I’m not ready yet, I need time to process.

As a mom, I get it. It can be hard to change the story you’ve created about your child.

But here’s the thing. You need to put the I in the background and focus on what’s best for your child.

Instead, think about their needs. They need to understand how their brain works. They have a right to the supports they need to be successful. They deserve to know the full picture.

I tell parents and caregivers to look at a learning or developmental disability diagnosis like you would a diabetes diagnosis. If your child was struggling with fatigue, weight loss or gain, constantly feeling unwell, you’d be pushing the doctor to figure out what’s going on. Once the child was diagnosed with diabetes, you wouldn’t wait to put them on the medication they need or inform the school of their medical condition. Rather, you’d do what was needed to make sure they’re cared for and healthy.

The same approach should be taken with a development or learning disability. Time is of the essence, and we need to focus on what’s best for the child, putting aside our own fears and insecurities.

Labels also bring understanding. An understanding of your child’s uniqueness, abilities, strengths, stretches and areas of growth.

Read the full story: Why We Need to Embrace Not Fear Our Kids' Labels — Learn Pa...

Why We Need to Embrace Not Fear Our Kids' Labels — Learn Patient Advocacy

A common fear I hear from parents and caregivers is not wanting their child to be labelled. There can be so much resistance to getting a child assessed or accepting the diagnosis due to this unnecessary fear. Yet we need to embrace not fear labels.
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Hello I'm New

Hello! My name is Kathleen and I have a slew of mental health issues! At 16 I was tested at the Gifted Development Center in CO.
I have Sensory Processing Disorder
Dyslexia
Dysgraphia
Dyscalculia
Auditory and Vision Processing Disorder.
At 21 I was in college but then I had a nervous breakdown, so I had to leave. Within the year I was diagnosed with rapid cycling Bipolar 2 with physio.
I am a Christian, homeschooled, writer and lover of literature. I also help out on my families homestead, Joyful Noise Home-in-Stead. I love animals 😻. This pic is with my new kitty Milo. He is a great emotional support buddy!! #loveanimals #Bipolar #SPDwarrior #poloarwarior

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I think i have disgraphia. so do people who know me well, im fairly sure its related to my ADHD & autism. can lifelong cptsd/dissociation worsen it?

If you have dysgraphia &/or discalculia (& know more or less for sure or are diagnosed with it) how does it show up for you? Can one cause the other? Seems to be more a handwriting thing for me. Constantly writing things down wrong. As an adult learner back in school as a STEM student its about 10x worse than it was before the DID and trauma started to surface hardcore. I *know* exactly what i mean to write it just takes like 3-4x to actually write it down correctly. I know what im doing wrong but it just will *not* come out of my pencil the right way. Letters, numbers, symbols, equations, makes no difference. The more anxious or triggered or dissociative we are as a system the worse it is. Some of us dont seem to struggle with it at all, but it seems from inside like its just masking same way as some of us show our other ND traits far less obviously than others. We're afab. Were a lifelong ND survivor of substantial trauma over multiple decades. We mask it all. Some are better at giving the appearance of not being who they actually are.....idk if any of this makes sense at all.... #Dysgraphia (undiagnosed)

diagnoses:
#ADHD #Aspergers #Autism #Trauma #developmentaltrauma #CPTSD #DissociativeIdentityDisorder #DissociationDisorders #Anxiety

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I'm new here!

Hi, my name is MyGalSAL. I'm here because I was diagnosed with ADHD at 61. I'm probably autistic, dysgraphia and dyscalculia both scream my name.

#MightyTogether

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Teachers & Parents 🧭

ADHD, ASC & LD hosts periodic meetings for teachers and parents online to discuss neurodiversity and any problems you are having.

ADHD, ASC, & LD Europe’s Social Media for Parents and Teachers, about Family Life and Education for Neurodiverse Children and Young People - autism, ADHD, Dyslexia, Dysgraphia, Dyscalculia and Dyspraxia, and coexisting conditions

Social Media - linktr.ee/ADHD_ASC_and_LD_Belgium

@ADHD_ASC_and_LD_Belgium | Linktree

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Neurodiverse Adults zoom meetings 🧭♾

We meet every two weeks as a group of Neurodivergent adults (including ADHD, autism, dyspraxia, dyslexia, dyscalculia, dysgraphia, everyone is welcome - diagnosed or self-identified)

Wednesday June 8, 1:00 PM EDT (07:00 PM Brussels time)

Join Zoom Meeting
us02web.zoom.us/j/82970954687

Meeting ID: 829 7095 4687
Passcode: 758426

Tuesday June 21, 1:00PM EDT (07:00 PM Brussels time)

Join Zoom Meeting
us02web.zoom.us/j/85046273028

Meeting ID: 850 4627 3028
Passcode: 026829

Social Media for Neurodivergent Adults and their Work / Life balance:
linktr.ee/NeurodiverseAdults

#support #neurodiverseadults #navigatingneurodivergence #network #zoom #nd

@NeurodiverseAdults | Linktree

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Parents and Teachers of ND Students 🧭♾

From time to time teachers and parents meet to discuss neurodiversity and any problems you are having.

Social Media for Parents and Teachers, about Family Life and Education for Neurodiverse Children and Young People - autism, ADHD, Dyslexia, Dysgraphia, Dyscalculia and Dyspraxia, and coexisting conditions.

www.facebook.com/groups/addysasc

Social Media - linktr.ee/ADHD_ASC_and_LD_Belgium

#resources #support #assistance #navigatingneurodivergence #parents #teachers #neurodiversity #nd

@ADHD_ASC_and_LD_Belgium | Linktree

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Dysgraphia

Do any of you on here have Dysgraphia, I have a few questions:

How does this affect your daily life? Does writing on a computer make things better than writing on paper or is it about the same? I have ADHD and know that Dysgraphia is a comorbidity of ADHD

#ADHD #Dysgraphia

dysgraphia

We’re a community that supports each other by sharing our experiences.
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