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Kindness wins

Two weeks ago I wrote a post on LinkedIn about a special moment I had with my daughter during one of her trips to CVS, which we visit every day after her autism program (I shared it here too). To my surprise the post was viewed over 100,000 times and reached the CEO of CVS Health who took the time to leave a thoughtful comment.

But it gets better. Last night my daughter received a package filled with goodies from the CVS Pharmacy team and this handwritten note. Our team at The Mighty serves millions of people managing health challenges and disabilities and we talk a lot about the human side of health, about how healthcare should feel. It should feel like this.

Today Annabel will head into our local store with her new CVS cap on and we’ll have a nice story for the employees who always have a kind word for us. This team has become an extension of our community. Thank you, CVS. #Autism #Dup15qSyndrome #MentalHealth #Parenting #CVS

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Cyclic vomiting and weather change?

My daughter seems to have episodes more frequently every time it rains or the weather shifts more than 10 degrees....Zofran helps but she's been pooping Zofran since 6 and I just wonder what long term effects it will have...and then also it isn't always the cure all...more times than not we end up in theER with it fluids and a cocktail of iv meds...I feel so helpless and want to help her...shes 14 and wants to go to High School next year vs homeschooling. Totally freaked bc stress, colds, and exhaustion ate her normal triggers Advice,! #Cyclicvomiting #CVS

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Some days are blue days

‘She knew she was really sad, when she stopped loving the things she loved’

Depression is a tricky thing really, sometimes I feel like I’ve got a good grip on it and other days it takes over. I’ve just been a bit teary for the last 24hrs and it’s really frustrating me. I think I’m just a little anxious and it’s making me feel sad that I am feeling sad!!

#chronic #ChronicIllness #mentalillnessisntfun #Anxiety #EatingDisorders #PTSD #AnorexiaNervosa #BulimiaNervosa #EDNOS #Cyclicalvomitingdisorder #CVS #Endometriosis #SinusTachycardia #OSFED #ObsessiveCompulsiveDisorder #OCD #GeneralisedAnxietyDisorder #ChronicIllness

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All a little too much

Having one of those evenings/ days/ couple of days, where everything feels a bit much. My body is giving me a bit of grief and in turn that’s setting off my head. Feeling like my resilience must be low as anything and everything seems to be triggering me. Desperate to use old coping mechanisms but also trying not to. But it’s ended up with me in my bed in the dark at 8.30pm, hoping my head will quieten and stop hurting soon. #chronic #ChronicIllness #mentalillnessisntfun #Anxiety #EatingDisorders #PTSD #AnorexiaNervosa #BulimiaNervosa #EDNOS #Cyclicalvomitingdisorder #CVS #Endometriosis #SinusTachycardia #OSFED #ObsessiveCompulsiveDisorder #OCD #GeneralisedAnxietyDisorder #ChronicIllness