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    Community Voices

    Representation in Medical Imagery

    <p>Representation in Medical Imagery</p>
    Community Voices

    Pain Poetry

    <p>Pain Poetry</p>
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    Community Voices


    2 people are talking about this
    Community Voices

    Acrostic poem: "How Are You?"

    <p>Acrostic poem: "How Are You?"</p>
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    Community Voices

    Muscle Cramps/“Growing Pains” Relief?

    Hey lovely people. Long time no talk! How are you all? ❤️❤️

    Just a quick question for my fellow zebras out there - if any of you get muscle cramps in your legs, particularly in your calf muscles (the ones everyone told us were ‘growing pains’ when little), does lying with your legs up the wall help?? I did this as a little kid and now the pains have returned, I’ve started doing it again and it really does seem to do something. My specialist wasn’t sure why it helped and I don’t really understand why myself haha. I was just wondering if anyone else has experienced this too?? Thank you!!!☺️

    Sending hugs and love to all of you - I’ve missed the Mighty so much the last little while!!

    #ChronicIllness #hypermobilityspectrumdisorders #hsd
    #eds #Ehlers -danlos #EhlersDanlosSyndrome #hypermobileehlers-DanlosSyndrome(hEDS) #Hypermobility

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    Community Voices

    Diagnoses Matter

    <p>Diagnoses Matter</p>
    2 people are talking about this
    Community Voices

    Amitriptyline and Bipolar

    I have now been told by 4 doctors that I should take amitriptyline. I am not debating that it works for some people. I’m not against it as a medication. I have Bipolar 2 and have been stable on my lamotrogine for many years. I have taken antidepressants before that affected me in bad ways to varying degrees. Is amitriptyline really very different in type and dosage to mean it won’t affect my bipolar? I just don’t feel comfortable potentially threatening my mental health. Does anyone have bipolar and take amitriptyline or has anyone tried it and had it not work for them mental health wise? Do I give in and try it? #Bipolar2Disorder #BipolarDisorder #ChronicPain #hypermobilityspectrumdisorders #HypermobilitySyndrome #HEDS #Fibromyaliga #amitriptyline

    24 people are talking about this
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    Community Voices

    EDS/HSD Questions

    🌺 Quickly - I know this is a thought post not a question post, but I couldn’t fit my questions into the word limit on the question post! Sorry! 🌺

    Hey everyone,
    How are you all doing? 💛 I’m so sorry I’ve been a bit absent lately - just finished my two Year 12 English exams and have been in a bit of a flare for the last week since then! But, since I’m now on holidays, I’m going to try posting much more frequently as soon as I’ve come out of this flare!
    I can’t wait ☺️

    Anyway, for today, I was hoping all you zebras 🦓out there could answer a couple of EDS/HSD questions I have! I really appreciate it - thank you ❤️
    1. I have a decent amount of hip pain on a regular basis so I where a serola belt... well, basically whenever I’m awake! But this morning, I got a new pain in just my left hip, while usually it’s bilateral. I’m limping with it and it’s a more strong, sudden pain, kindaaaaa like a sprain-y feeling ? and it gets worse with standing, sitting down, standing up, getting in and out of cars, when climbing stairs and kinda moving in general! I saw a Rehab specialist a few months ago who looked at my hips and decided that they just needed more physio (despite having done that for three years) to strengthen them and that my pain simply wasn’t that bad...yay😜Anyways, with this new thing today I was wondering if anyone had any idea about what it could be? Can you sprain a hip...no, right?? I’m just wondering how to treat it! 😊
    2. Also! I’ve been told by a few people lately that the pain and popping feeling in my back is a rib subluxation/dislocation! It happened again today and before popping it back in I tried to have a quick look, despite the pain haha, and feel of the spot and something was definitely sticking out of my back. Sorry about the long preamble! question is: I’ve read and heard varying opinions on whether ribs actually subluxate/dislocate - can they?
    Thank you so much and I’m sending lots of hugs and love! Can’t wait to post more soon ❤️🧡💛❤️🧡💛❤️🧡💛❤️🧡💛❤️🧡💛❤️🧡💛
    #EhlersDanlosSyndrome #JointHypermobilitySyndrome #hypermobilityspectrumdisorders #ChronicIllness

    19 people are talking about this
    Community Voices

    A zebras hope. By Mica Warsop.

    <p>A zebras hope. By Mica Warsop.</p>