Here's the current drama
My vision is really bad but we discovered I have an eye condition called exotropia that requires surgery. It's a form of strabismus, I've presumably had it my whole life but nobody noticed until now. Most strabismus surgery happens to kids. The soonest I could get in with the surgeon is April 16th.
My thoracic spine and cervical spine are bad and I'm waiting to hear from my previous surgeon if he wants to help me.
My hips require cortisone injections every 3 months. My previous PCP was doing them. Now he's charging $1200/year out of pocket for his service and doesn't process any insurance. I can't afford it. So now I have to find a new orthopedic doctor. Except last time I talked to one he refused to help me cuz I'm too young for surgery and he didn't offer alternative solutions.
My migraines have been mostly under control for a month. It's because of the topomax. But it's causing big gaps in my memory. I can't remember days. Luckily the breakthrough migraine is squashed by the ubrelvy.
And on top of all of this mess is a great big monstrous case of adjustment disorder flaring so hard. But I'm too tired to be manic. So it's just worry, depression and anxiety through the roof. I'm barely functioning. I normally would be researching my diagnosis but I just don't have any spoons.
My new PCP and her staff don't know how to write a prior authorization for anything. I got denied insulin and dexcom last week.
My foot is...huge doesn't seem sufficient. It's mammoth. And stiff and hurts. My PCP put me on lasix and it was starting to work. Then the first appointment with my new cardiologist, she decided to take me off lasix and tell me to just elevate my leg and maybe try compression socks. She wrote the script for the socks and we just gotta find time to go to Binsons for a fitting. But she told me if it gets worse I should call her. I did that last week. She basically said I don't know what to tell you, just elevate the foot. I've got an appointment with her on the 26th. I'm not happy about it.
Pauley wants to be more involved in my care. I already struggle with my physical limitations, I am trying to be as independent as possible so I still feel human. I don't know how to tell her I want things to just stay the way they've been. If I need help I want to ask, not have it forced on me. I know she means well. But this is just really complicated and I'm tired.
I have to find a new Endo. I've got numbers to call but I'm so burnt out. My diabetes is out of control. The insulin isn't working. I'm at 50 units of lantus before bed and 35 units of humalog. I don't know what to do. My PCP can only do so much.