Mania

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Here's the current drama

My vision is really bad but we discovered I have an eye condition called exotropia that requires surgery. It's a form of strabismus, I've presumably had it my whole life but nobody noticed until now. Most strabismus surgery happens to kids. The soonest I could get in with the surgeon is April 16th.

My thoracic spine and cervical spine are bad and I'm waiting to hear from my previous surgeon if he wants to help me.

My hips require cortisone injections every 3 months. My previous PCP was doing them. Now he's charging $1200/year out of pocket for his service and doesn't process any insurance. I can't afford it. So now I have to find a new orthopedic doctor. Except last time I talked to one he refused to help me cuz I'm too young for surgery and he didn't offer alternative solutions.

My migraines have been mostly under control for a month. It's because of the topomax. But it's causing big gaps in my memory. I can't remember days. Luckily the breakthrough migraine is squashed by the ubrelvy.

And on top of all of this mess is a great big monstrous case of adjustment disorder flaring so hard. But I'm too tired to be manic. So it's just worry, depression and anxiety through the roof. I'm barely functioning. I normally would be researching my diagnosis but I just don't have any spoons.

My new PCP and her staff don't know how to write a prior authorization for anything. I got denied insulin and dexcom last week.

My foot is...huge doesn't seem sufficient. It's mammoth. And stiff and hurts. My PCP put me on lasix and it was starting to work. Then the first appointment with my new cardiologist, she decided to take me off lasix and tell me to just elevate my leg and maybe try compression socks. She wrote the script for the socks and we just gotta find time to go to Binsons for a fitting. But she told me if it gets worse I should call her. I did that last week. She basically said I don't know what to tell you, just elevate the foot. I've got an appointment with her on the 26th. I'm not happy about it.

Pauley wants to be more involved in my care. I already struggle with my physical limitations, I am trying to be as independent as possible so I still feel human. I don't know how to tell her I want things to just stay the way they've been. If I need help I want to ask, not have it forced on me. I know she means well. But this is just really complicated and I'm tired.

I have to find a new Endo. I've got numbers to call but I'm so burnt out. My diabetes is out of control. The insulin isn't working. I'm at 50 units of lantus before bed and 35 units of humalog. I don't know what to do. My PCP can only do so much.

#mylifeisamess #CheckInWithMe

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Relapse is a Part of Recovery

March is self-harm awareness month.

The brightest smiles often hold the most pain.
But depression and self-harm and hit anyone. It knows no age, gender, socioeconomic status.

I began self-harming at the age of 12. Unfortunately, it became routine whenever I couldn’t control my emotions. It became a coping skill- something to help me breathe through the pain.

My support system and care team are aware of my self-injury and I am very open with my scars.

I was diagnosed with bipolar 1 in 2020 and was told by my psychiatrist to stop taking my bipolar meds a couple weeks ago because of weight gain. However, this made me slide right into a manic episode where I ended up in the backyard in the grass, staring at the sky, sobbing with new injuries on my forearm.

When my fiancé found out he helped me call the doctor and order my meds again until we can figure out a new game plan.

All this to say… advocate for yourself. Love yourself. Don’t give up. Two steps forward and one step back is still progress.

You are loved and worthy of love.
Relapse is a part of recovery…. Keep climbing even when your legs hurt.

I love you, and I’ll see you soon.
#Bipolar1 #Selfharm #Selfcare #MentalHealth

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I got off my meds on purpose, bad decision.

I got off Latuda and It was such a bad decision.

The reason why I got off Latuda was because I DID NOT like how they made me feel. They made me feel so sleepy, so zombie like, so exhausted. Even when awake too. I can’t stand that feeling. So I got off them… Not smart, I know. But anyways, I got manic. I started spiraling and then out of nowhere, my responsibilities got thrown out the window. Life was a joke, everything was a joke. I couldn’t take my life seriously. Missing work, missing school, missing out on things that are important to me. I just didn’t care anymore. Scary, I know.

Now im trying to take my meds again, but I HATE them so much. I will see my psychiatrist this month, so lets pray he switches meds for me!! I can’t stand being manic but I also can’t stand being painfully exhausted all the time. ughhhhhhhhhhhh. #Bipolar1 #BipolarDisorder

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I’m new here!

Hi, my name is EchoesInRed. I'm here because...I'd like to learn from reading about the personal experiences of others and possibly share some insight from my own experiences... but sometimes we come to crossroads and no matter which direction you go from there it just doesn't matter. Time speeds up around us but seems to stand still. I'm not even sure that I'm in the right sort of place and have nothing to lose so before I waste anyone's time with my rambling I guess I should just get to the point. Although I've been diagnosed with Bipolar disorder, anxiety, depression,PTSD, topped off with a certain affinity for a few select alkaloids, it's not me that I'm concerned about these days. I have absolutely nobody to talk to about things and so of course no way to ask advice so that's why I'm here. So basically if there's anything here about being the spouse of someone with mental illness/undiagnosed and have advice about how to handle the unique situations that you encounter and how not to be constantly overwhelmed and doing it by yourself..that would be of great interest. It's been 5 years and every day always seems harder to make it through than the last. I hope I don't seem selfish but from dealing with her "issues" I've just about completely ignored my own and have just tucked it all away for the time being and put on the happy face and figure I'll deal with it someday. At this point I don't know how much longer I can keep this up. She was previously been diagnosed or possibly misdiagnosed, with Bipolar disorder but has since been experiencing new symptoms..like hearing voices. But she's afraid to be given a label such schizophrenia because of the stigma attached to it. She holds back and won't talk to her therapist about the voices...or the "microchip" she believes she has in her body and all the near magical abilities it seems to have. I would honestly give my life for her to get be happy again. Even a manic episode would be nice. Has anyone here dealt with this sort of situation? I mean, I have been doing anything I can to just survive each day but it's getting hard and I'm pretty sure that I could use a little advice

#MightyTogether #Anxiety #Depression #BipolarDisorder #PTSD

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# over sharing #Anxiety

Well, I did it again. Over shared. Is this anxiety?? Or mania? Or just plain lack of control ? I think anxiety- but could maybe be mania.

On fb my husband’s boss posted a picture of her 2 kids- saying they were her valentines 💘-
I liked the main picture. That wasn’t enough I went and liked each individual picture too ! There were about 5 or 6 pictures.

Granted: not the end of the world. But coupled w my post on the app in my area - where my husband’s boss lives too- it is quite excessive. On both counts. Oh no. Let it go.

Live and learn- I made a audience selection for future posts to exclude my husband’s boss. This doesn’t do anything for the app where I posted re a recent issue re a celebrity-

Working on letting both of these instances go. It takes a little time—
Hope you can bare w me in the event I may bring each or both of these instances up again- 🙁😟😔

Working on letting these instances go and staying off both fb and the app in my area for now.

Hope everyone had a nice weekend.

Worked today. Had a difficult time as usual. Hard. Not as hard as it could be but for 73 soon to be 74 - w no children - seems to be not necessary-
But you know- when I come home i feel really good. I feel like i accomplished something. And this individual i work for is extremely wonderful.. so, hard to beat.

And btw- it was my therapist who encouraged me to drop the idea of me trying to negotiate a raise- I went w her opinion-
And today/ i think I was wrong- i should have negotiated/ I go to the library on my own time for this job- and I use my own funds to purchase supplies for this individual- i definitely should have negotiated-

Maybe that stint I did on that celebrity- TS- helped me to realize. - not to doubt myself.
Next time- if there is a next time-/

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#Anxiety

I have anxiety so bad that i have to take medication for paranoia. I guess i don’t have to but to stay w my psychiatrist i do. She also prescribes anxiety medication.

I did something unlike me. I think I may have been a little overly excited- maybe one would say: manic. Maybe - not horrible- manic

But I posted on a very public website “ I am upset Taylor Swift got booed at the Super Bowl. She is the epitome of everything good.”

And I got a lot of negativity-not at first-

But then I said” for someone who is a big of a contributor and as good as a role model as Taylor swift is for women young and old : wives, sisters and daughters to be booed - is Wow!

And I got a lot of negativity

_after I said the second part-some one said they were a bunch of people drunk and having fun watching the Game- they would have booed Santa Clause- why are you so upset?

Then I responded-
I’m ok. I think it sad. And I think Taylor Swift is remarkable.

Then a said- a bad commentary

Then a said- a sad commentary-
Only 2 people hearted my comment re some who is such. A contributor-… Wow-

And only one person hearted that I was ok.

I realize after this - a few people in the general public care/. The people who care are youe family and friends-and hopefully a site like this.

I have issues w paranoia -bc i have a hard time interpreting things. I am afraid- that I come off being a sounding/ looney- emotional-

I called my friend- I asked her how it sounded/ she was not much help-

I think I am ok now- I painted a little-

But do you think what I said sounded emotional? Or too emotional-borderline-crazy?

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#Anxiety

I am certainly not bragging- but my life is good-now. For how long- I do not know.

One thing I do know my life has been s$$t much when I was younger and enough times in my life-
Now it is good! Maybe i should not shout to the rooftops- I don’t-
But today was a good day.
Do you call this manic?
Not me.
I call it simply my life is good ( today) - and i celebrate in a healthy way -

Yesterday-it simply was lacking

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Coming down from a manic phase and starting to feel depressed

I feel tired and confused. But I am journalling and trying to do some meditation.