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About the Misinterpretation of My Poem "Haunting"

Thomas asked a question in response to my poem “Misunderstood.” What can we do to alleviate the problem of being misunderstood? The answer to such a broad topic is beyond the scope of this reply. Instead, I will confine my remarks to the reason I posted “Misunderstood” in the first place.

Posting “Misunderstood” was a knee-jerk reaction to my belief that my previous poem, “Haunting,” was misinterpreted. When my writing seems to evoke confusion rather than understanding, I become deeply frustrated. I started writing in earnest because I was experiencing symptoms of depressive psychosis and I wasn’t able to communicate that to my therapists through our conversations. When a session was over, I always felt that my file had been confused with someone else’s, because what my therapists said I was experiencing was milder than what my reality was. When a person experiencing depressive psychotic symptoms becomes suicidal, being misunderstood isn’t simply invalidating. It is life threatening when you have been buried alive, in desperate need of oxygen and a shovel, and the therapist keeps walking over your grave with a flashlight, thinking he can lead you out of the darkness. The isolation you feel in those moments is lethal, because you understand that if he could help you, he would have a shovel. If you truly mattered, he would have a shovel. When my writing is misinterpreted, I return to that place where the only person who can help me brought a flashlight to a shovel fight, because I failed to explain my situation clearly.

When the flashback goes, what passes for a rational state for me returns. A previous poem, “Unread,” talks about the risks of sharing writing. This is one for me. I accept this as a consequence of posting my work. I also acknowledge that many different interpretations of a poem are valid. Finally, I may simply be a bad writer. “Bad” means that I am trying to communicate specific things with my writing, and when the interpretation is the opposite of my intention, I have failed. It is probably an error on my part to bring a “specific meaning” mentality into poetry, but the habit is deeply ingrained.

The central point of “Haunting” is that the past is the only thing that exists. The idea of “being present” wasn’t on my mind at all when I wrote it. If readers are inspired to practice mindfulness and presence because of the poem, that is fine. However, if a reader asserted that I intended to highlight the importance of presence and mindfulness with this poem, they would be wrong. I had no such intention. “We were ghosts already./Haunting our own lives” isn’t a warning. We don’t live in the future, and the present is only a dividing line between future and past.

I have been removing overgrown vegetation from my yard with a European style sickle. Using a sickle requires presence of mind. You consider where each stroke is going to end. If it is going to end inside your foot, you reconsider. To paraphrase Yoda, always your mind on what you are doing. Doing otherwise is dangerous. I feel a sense of accomplishment, but not while I’m focused on avoiding amputating my foot. The sense of having done something resides in the near past, with my memory of having done it, along with my regrets. I was cutting down stinging nettles without gloves. Also residing in the past is a note to myself: use gloves next time, if the future-becoming-the-past includes gloves.

#Depression #MentalHealth #PTSD #Trauma #Suicide #Disability

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Gratitude Journal

There are so many good things going on in my life and acknowledging these things would be a good thing! So tonight, I'm going to start a "glimmer" and "gratitude" journal. As for the gratitude part, I am going to write about living in a stable apartment. I have a stable boyfriend. I have friends...mostly online but I'm going to try to make friends offline too. Those are just a few items. One "glimmer" is that I feel good tonight! I am going to doodle in my journal with my gel pens! # Anxiety #Bipolar #Psychosis # PTSD

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Told I was anxious by a homeless man

I do a soup run with my church once a month but due to my social anxiety and psychosis I didn’t do it for six months as i obviously couldn’t leave the house and it took me a while before I was on the rota again. Tonight I was with the group and handing out the food and suddenly a homeless guy comes up to me and says he has ADHD and mild autism and can smell my anxiety a mile off and that I’m doing great and I just need to breathe! I must’ve been more nervous than I thought about doing it!
That was very nice of him! I’ve often wondered whether I have autism though- my mum said I used to have meltdowns as I child and bash my head etc and I still get them now! I’m in my early 40s!
Funnily enough my best friend has just been diagnosed with it, which is a bit strange. She doesn’t have any of the signs.
I have a fascination with numbers too! I’m obsessed with religious life (I was nearly a nun but left and I still go on retreats now!)
I haven’t brought it up with my doctors though- do you think I should?
#Anxiety
#Depression
#Epilepsy
#AutismSpectrumDisorder

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My Bipolar and What I Want to Share With You 🤗 #BipolarDisorder

I’m diagnosed with Bipolar Disorder. Not type 1 or type 2, it was initially Rapid Cycle but that’s been since revoked. I’m simply diagnosed with Bipolar Disorder. I am awaiting a diagnosis for ADHD but it’s a long wait to get that done. I have found though, I embarrass myself. I have Psychosis too, and in an effort to calm myself when I had an episode, I started writing. Just a solitary word to start with. This then became 2 words, became 3, then 4,5,6,7 then sentences and paragraphs to later me writing 30+ songs, 3 books, and keeping a blog. They all aren’t anything special but they are an important part of my point here. It’s possible for you to achieve anything you want to, regardless of your circumstances, to achieve something isn’t measured on it’s success but on it’s presence.

#MentalHealth

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Mental Illness: Explicitly Indescribable #MentalIllness #BipolarDisorder #MentalHealth

Paradoxically, living with it, it being a part of you, and trying to explain this enigmatic phenomenon, in terms of how it works and what it is, is proving, like biting your own teeth, nigh on impossible.

Defining something requires having the words available to decipher the behaviours it’s created and what it manifests into and explodes within you interfering with your functionality. Sometimes there’s no words in the language we have that concisely describes and defines what is happening.

For example, trying to make sense of psychosis; “Your thoughts start to become more and more outlandish. Thinking that maybe your soul had been swapped with someone else’s, a renegade who was on the run from MI5 or a similar organisation. Paranoid that everyone is looking at you and talking about you, watching you. The fact of the matter though is that you are harbouring the soul of a fugitive, your own, you are a fugitive who is running from yourself, detached from your consciousness and on the run from nothing else but reality. Your reality.”

Nothing is ever a consistent experience with Mental Illness. No two episodes of trauma have the same precursors or present themselves as they have done before. Nothing is ever the same. It’s always new, like it’s constantly evolving within you.

So, people lose touch with reality, and live in a world of illusions. By illusions, I’m referring to the thoughts people have. Relating specifically to this endless chatter in the skull. Perpetual and compulsive, a relentless repetition of words, of reckoning the past and calculating the future, creating the in trepidation of something that hasn’t, and probably never will, happened. Yet it is a fixation that consumes the mind to the point of being unable to comprehend or experience the reality of the situation never occurs. Playing out all these negative scenarios an producing a massive amount of anxiety over them is nothing more than having, in Layman’s terms, a shit imagination. I think so because I have experienced it. I have had an argument about it with a Psychologist on a Mental Health forum who said I was disrespectful, I asked if he suffered from Anxiety, and he said no. So I returned with the question that how can his advice and understanding be any more, or even equal to mine, as I live with Anxiety and I have the best education in what it is about, not what you are taught in a lecture or a text book. He booted me off the forum, maybe he was having trouble with his anxiety as someone had finally challenged the so called experts and engaged in a discussion?

This brings me on to the topic of questioning the psychiatrist or doctor or health care practitioners, you can feel obligated to just sit there and say nothing as you are told this and that about the issue, told to take these pills, do this and then do that, but enough is enough.

From an early age we see a doctor and through the time we grow up and into adulthood, we display the same behaviour at the doctors as it is ingrained on us. Sat there, in silence, not challenging anything, not even asking questions. We have no idea what the pills are that you are now taking. How do we know they won’t react in a bad way?

Off we pop into the chemist and pick up the prescription, that is £10 if you have to pay for it, and we think we will get better in no time now because the doctor said this and I have my pills. WAKE UP! I have to take tablets every day, 12 in total. I take 9 in the morning and 3 in the evening. I’m going to have to do this for the rest of my life because there’s no cure for Bipolar Disorder. I’m only remedying the illness. But if you think about it cynically, if there was a medication formulated that cured Bipolar and other Mental Illnesses, then the Pharmaceutical Company would have lost a shit load of patients, or should I say customers. A patient cured is a customer lost to them. It’s disease management and symptom maintenance. Big Pharma has the say over your health care and your metaphorically being controlled by a corrupt, elite and evil conglomerate that has the power to end your life at any point.

So if you ask why you are being prescribed a medication, how it works and what it does to you, you will find that you get a limited response and very little information. You see, doctors are told which medication to prescribe for certain illnesses and ailments. For a person with Depression, it is primarily Sertraline which is prescribed. It is a horrible drug and having spoken to other people who have been prescribed it, they all say the same. There’s a lot of different drugs that are prescribed for Depression. It does seem to me though that when you change the medication, it is a lottery for your next medication. It is from a family of antidepressants called SSRIs (Selective Serotonin Reuptake Inhibitors). The alternative drugs are in the same classification as the previous one that wasn’t working for you, but then you find that this new one one does, so why is that? Do pharmaceutical companies notice this and go back to the chemists and use the feedback from the people taking the drug, that it doesn’t work or it works really well? I don’t think they do.

Nothing new has been uncovered in the treatment of Bipolar since John Cade discovered the effects of Lithium Carbonate in 1948. Nearly 80 years ago! If you’re wondering how to make advancements in treatment don’t look at the treatment for Bipolar. In 80 years there’s been no improvement in treatment. Yes, there has been the introduction of 2-Generation Antipsychotics, and Antidepressants in the late 80s, but these are for regulating the levels of monoamine neurotransmitters in the brain, predominantly Serotonin and Dopamine, which are associated with mood and cognitive functions. These medications are also just a remedy for the conditions they are prescribed for.

My experiences with trying to get a proactive understanding of my Bipolar (which I was told to do by a psychiatrist), is a laborious process. I think that I am probably a clinician’s worst nightmare because I ask for more detailed explanations and why this is happening and that happening. But I receive limited response.

The way you talk to yourself creates the atmosphere in your mind, the home you live in, so make it a hacienda of tranquility and serenity.

#MightyTogether

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I’m new here!

hi, my name is scarlet. i have bipolar disorder or schizophrenia. the uzedy injection is making my life impossible but im afraid of having psychosis that leads me to be hospitalized for long periods of time with no choice in the matter. i had psychosis that seemed like it wasn’t gonna go away so it seems like i have no choice in the matter…

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I'm new here!

Hi, my name is A123. I'm here because I’m a self-care and metal health advocate. I believe that honesty, clarity and openness creates safe spaces - with these intentions safe spaces can be made across all relationships allowing for hard conversations and uncomfortable truths. I want to hear your stories and share my past with anxiety, depression, psychosis, intrusive thoughts, self-harm and my current spiritual journey. I hope to connect with people striving to live life with health in all aspects of life as a priority.

#MightyTogether

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Think my volunteering position want to get rid of me!

I’ve been where I volunteer for three years now and I’m not happy there anymore to be honest.
I struggled with social anxiety for six months and couldn’t leave the house for six months and having hallucinations so didn’t go there but they were so supportive wanted me to email them to let them know how i was doing.
I also had two seizures there so an ambulance was called out twice (the main manager gave me her number to text her how i was doing which was nice).
My support worker says I should do what makes me happy. When I brought up a subject of an old manager the main manager completely shut me down (this happened a while ago!) Apparently something happened between them. They are giving more responsibility to someone who started after me (he goes to the bank) Ive never done this and I don’t know if it’s because I have a support worker with me because of my Epilepsy.
My best friend thinks i should just quit but im just not sure! There is this new man who has started (he started when i wasn’t there- I don’t know if I’ve done something to upset him- i really pray I hope not as he seems so lovely and sweet- he’s got autism).
I feel like just going elsewhere to be honest! Making me sick staying there, just not worth it! Think the psychosis is coming back too (seeing things, it’s really scary!)
#Anxiety
#Depression
#Epilepsy

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Not entitled to grieve…

My sons dad died in October. He was the love of my life. He was also my abuser. He was an addict and had BPD and he slipped into psychosis a few years ago and I don’t think he ever really came out of it. There were so many times that were so awful. The worst moments of my life. But him dying caused me to remember all the good moments. And I’ve been grieving since October. He was hit by a car walking on the side of the road and I will always wonder if he did it on purpose. Most of the people around me treat me like there’s something wrong with me for grieving, especially as long as I have. But I’m grieving what could have been and I don’t know how to just turn that off

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