Psychosis

Join the Conversation on
Psychosis
13.9K people
0 stories
1.4K posts
About Psychosis
Explore Our Newsletters
What's New in Psychosis
All
Stories
Posts
Videos
Latest
Trending
Post

Mighty Family!!!! I have missed you guys so much and thought and prayed for you daily ❤️

Months ago I was at my very worst. My health had gotten so poor that I was fully bed bound and unable to do anything on my own. I also needed constant care with my memory getting so bad I forgot my name, who my family was, all friends a missing blavk hole where they should have been in my memory. I kept getting lost and confused not remembering basic words and my hands were still excruciating with their inability to work getting even more drastic. My pain was a 10+ though doctors only think pain is a 1 to 10 we know it still can rise to the thousands.

Suicidal thoughts were so bad I was actually planning though losing a best friend's to suicide at 15yrs old still kept me and will always keep me from taking a step no one can come back from that haunts family and friends and leaves things so very messy and heartbreaking.

My so-called pain doctor was still doing nothing after 3 years and countless appointments begging for help I'm any form. He kept me on the same teeny tiny dose for years and wouldn't try any other meds or any other options. I had had no episodes ever of overdose or failing any drug tests but still he refused to help at all despite my first appointment with him where he promised to help me get to where I could shower and dress myself daily.

I wanted to ditch him as my doctor soooo many times despite him being my third and last option since we hadn't been able to find any replacement.
I realized the stress and misery he brought me always and especially after every three month appointment. It wasn't worth the useless dose of medicine I was on. Many doctors left me in a lurch to taper off my meds on my own. I knew how to do it so I called and said I was dropping him as my doctor. From that moment on I felt relief like the biggest weight was gone. Yes my pain was excruciating but my mental health was the biggest mess because of so many doctors refusing to help and leaving me since I was 'too complicated for them'. They just didn't want to put in the work at time.

Why be a doctor if you don't want to help anyone?!

Steadily my mental health improved immensely. I had moments where I was happy though still in pain. Naturally I am a very optimistic and happy soul but moving to a new state and having the cruelest doctors unsurprisingly made me so much worse.

I have a home health nurse that actually wants the very best for me and that was priceless and enough.

And then I got a brilliant and lovely rheumatologist who actually asked intelligent questions, explained answers, and was invested in taking as much time as needed to finish solving my health. He UNDERSTOOD!!! And at my second appointment with him he told us the answers we had been searching for for 17yrs! Since I was 13.

On top of my many inherent diagnoses I had psoriatic arthritis spine arthritis, and rheumatoid arthritis!!!!
The thing that we all thought was lupus but just barely didn't fit was the psoriatic arthritis!
It was the last piece of a puzzle we had tried solving many a time.
Interestingly I had finally narrowed my research to these diagnoses and was months away from figuring it out too.
But I was very happy to have the answers early!

My first appointment with the rheumatologist he gave me arthritis medicine and WOW did it work and so much better than any medicine my hundreds of doctors over the years had tried.
My hands improved!!!! I had feeling in them again and was able to do so much more than I had since I was 16 when I had my waist down reconstruction surgeries that would lead to arthritis all over my body especially to where I was completely unable to use my hands by 17. It was so embarrassing and painful that my body seemed so intent on not working eight. Oh how I just wanted you be normal!!!

And my last but of good news is I at LAST got a new pain doctor after being without officially for three months. My mental health anxiety and depression had improved so that my stress and thereby my pain had decreased to #9 on the pain scale!!! After being a 10 for almost 8 years!!!!!

My new pain doctor was COMPLETELY the opposite of my last one.

From a guy who ALWAYS worse fancy suits and thousand dollar shoes to one in jeans and a t-shirt.
From a guy who never smiled and wouldn't put in time and effort to a guy who smiled the whole appointment and was ready and Excited to put in the work to help me live my very best life!
From a guy who was too proper and cold to one who was so friendly and happy about his job.
From one who was terrified of any teeny hit of using medicine to one ready to take any risk if it meant helping his patients be safe but with less pain.

My new doctor was like the twin of actor Vin Diesel and he was so SO SO tall!
Even better since the drive is so hard for patients to do always, he would do telehealth for two appointments, one in person, and then another two telehealth appointments etc. Yay!!!!! Hallelujah!!!
Lol I was and still am so happy! And he wanted a telehealth appointment a week after the first appointment yo make sure my new meds were the best option.

For YEARS I have wanted a doctor who was there to help always and one who helped me with my meds rather than drop me in a black hole and leave all alone to figure out and guess by myself. To actually be a TEAM and work together to help me help my body so I would LIVE like I had begged all my doctor to help me to no avail! I could have a LIFE that I loved and do fun things and spend time with my family!!!! No more sleeping life away in pain and misery and hopelessness!!!!
It only took 17 years! Haha!

So now I am BACK and back to my happy self. I still have aches and pains full body and I have all my health issues and more besides but I am in a better place than I have ever been.

All of your support and love and encouragement to take time for ME was what I needed. I am so thankful for it and for all of your help over these many years.

Now if only it could get easier to post with no problems like before I would dare to call life quite perfect right now ;) 🙏

So consider this a reminder thar life is worth it! If things suck now, just remember that if one day they come up with something that can help you and your conditions, I PROMISE you will want to be around then to live your best life.

Hold onto hope! DON'T GIVE UP!! Please please don't. Through sheer will and the grace of God I am still here and gosh do I look back now and say it was worth the wait I wouldn't want to relive it lol but having a possibility to go to the movies again and do fun things out in the world with my family? It is priceless! Please hold on. Please. You and your best life are worth it! You are Not alone in this.

I am cheering you on and I am on your side. Your happy is out there! You CAN do this!!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Grief #Insomnia #Lupus #Lymphedema #Headache #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #PsoriaticArthritis #RareDisease #RheumatoidArthritis #AnkylosingSpondylitis #MentalHealth #MemoryLoss #MightyTogether #SuicidalThoughts #Scoliosis #Migraine

48 reactions 20 comments
Post
See full photo

Question for my fellow bipolar friends and medical experts…should my Mom talk to my therapist?

Question for my friends and medical experts….. so I had severe bipolar episode, and my family thinks that I am not getting the help that I need, because I am not telling my therapist and Psychiatrist the whole truth so my mom called the office of my therapist and psychiatrist and requested to speak to them and asking her more about this she mentioned that she was not expecting them to discuss my care however, she wanted the opportunity to share her opinion on where I was in my mental health journey and did not understand why they would not call her back to simply listen. This is very much a trigger for me and I became very upset with her her and set very firm boundaries. I have bipolar, one disorder with psychosis and paranoia all of my hospital stays have resulted after an intervention by my family, so I associate that with another admission to the hospital, I truly believed at one point that my family was working together to intervene and forced me into a hospital while I know now that that was irrational thinking and my family only loves me and wants to support me. My mom truly does not trust me when I say yes I share everything with my therapist and Psychiatrist, no one believes me because I have a history of lying about my bipolar episodes, particularly in mania the way that I feel about my medical care and therapy is that it takes me a long time to break down walls and be brutally honest without feeling like I will be judged or punished in someway by being forced into a hospital so I am very hesitant if not completely resistant to anyone being involved in my therapy sessions because I look at that as a safe space for me and anyone in my family I feel most comfortable with my husband being involved because I do not have the same paranoia about being involuntarily checked into a hospital my Family does not understand why I am setting this firm boundary and while my therapist agrees that that boundary is appropriate, my family thinks that I’m hiding something that I have not shared all of the brutal details of things that I have done said or decisions that I’ve made, when having a bipolar manic episode and most recently a horrible psychosis episode that has resolved and resulted in increased medication. I shared with my mom today that my psychiatrist has made adjustments to my antipsychotic and added a new antidepressant and why would he do that if I had not been brutally honest to share with him my psychosis and unhealthy state of bipolar that still failed on deaf years and I learned today that beyond my mother extended family members like sister-in-law are upset with me for not involving the family in my care. How does everyone else handle this? Is your family involved in your therapy is it helpful? Do you have to set firm boundaries like I have but yet your family does not hear you, please share your experiences and I would love to hear from the doctors and psychologist out there that would share their opinion about whether family should be involved in therapy when there is an instance of paranoia and psychosis that family is working against them. No I do not feel this way at all about my husband as I am Locke step with him and he has always protected me so it’s very much a safe space but even with that said, I want to keep my therapy my therapy and not let others in, but I understand that if I were not doing well, my husband would receive a call and for that I am absolutely OK with that. Please let me know your thoughts I am really struggling with this.

10 reactions 2 comments
Post

I'm new here!

Hi, my name is merryelise. I'm here because i'm a concerned mother of an adult child who has been in psychosis and has had adhd and bi polar. he refuses to take his medication and go into the hospital for treatment. But i'm being patient while everyone thinks he should be forced. he cant be forced because in the state of california you can't involuntarily force someone to take medication without their consent despite them having mental illness.

4 reactions 2 comments
Post

I'm new here!

Hi, my name is rubygledley. I'm here because I struggle with psychosis monthly because of PMDD and I have severe ptsd. I have a diagnosis of borderline personality disorder, but I'm not sure how accurate that is.

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder

11 reactions 4 comments
Post

Bipolar Disorder

Good Afternoon to all. I am a veteran aged 59 years from Kerala retired from regular army during Feb 2007. I had multiple episodes of Mania onset during Apr 1996 and finally diagnosed as Manic depressive psychosis, survived with after treated with Lithium. Ater my discharge also had two relapses. During Apr 2018, my doctor instructed to stop alcohol consumption for a permanent solution to contain the illness under medication (Lithium). My SLE levels are 0.0.0.4 to 0.0.0.5 Meq/Ltr. I told him that I cant stop in take of alcohol mostly two to three days a week in moderate and taking lithium 600mg at night. He stopped treating me. I am continuing with my life style and lithium treatment my own since then and fine with the above mentioned lithium level and Creatine. I request my fellow colleagues not to copy me please. Take advise of doctors. I am sure I am neither doing right nor wrong. I am not sure how long this go. I am working with a Financial Company since 2009 and living with wife and two daughers....

3 reactions 2 comments
Post

I'm new here!

Hi! I’m Ashley and am new here! I suffer from severe mental health and physical health issues. I am excited to have joined this platform and officially be an “Mighty” lol. I’m pretty unfamiliar with this app/website but I am super hyped to learn the different things to do on here! Because I’m just getting started, does anyone have any tips, some cool things you can do on The Mighty and if you’re a fellow spoonie/dealing with similar issues I do too? Maybe I can make some friends that truly get these struggles…because we all know that nobody gets it like the ones that live it…aka US. I look forward to meeting any future friends!! Again please reply with any helpful information or to let me know of others on here dealing with the same things please!♡

#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ADHD #OCD #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #MastCellActivationDisorder #Gastroparesis #Dysautonomia #OrthostaticHypotension #ChronicPain #ChronicIllness #ChronicOrthostaticIntolerance #ChronicFatigueSyndrome #Migraine #Insomnia #Psychosis #PanicAttack #PanicDisorder

9 reactions 4 comments
Post

I’m new here!

Hi, my name is ericthered.
I've had schizophrenia for 5 years my psychiatrist said it was chemically indused from drug use and I was already at risk because schizophrenia runs in my family at first my diagnosis was drug induced psychosis but once I quit drugs and the symptoms stayed it was changed to schizophrenia it has completely ruined my life the meds made me gain weight I don't feel safe to be in public much less work a job I live w my dad I only sometimes hear voices recently but for 4 n a half years it was a everyday occurrence I struggle w thinking the voices are real like it's telepathy my psychiatrist says it's a delusion but it feels so real and three times in the past I've had people have physical reactions to things I only said to them in my head one really prominent she was walking along w a smile on her face and when I thought what I thought towards her she stopped right in front of me gave me a go to hell look and said to me telepathically wtf did you say to me!? then kept walking and once I was at a friend's house was hearing voices real bad and I heard my friends dad's voice in my head say "the voices are real study quantum entanglement and the collective consciousness and you'll see it's possible" and he is a really smart educated man but hearing that that night made me think it wasn't just in my head cause I had never before that night heard of either of the subjects he told me to study and if it is auditory hallucinations and all in my head how did my brain come up with something I have never in my life heard of I didn't study them right away I was scared it would prove the voices are real and I'd try to kill myself again but when i stopped hearing them so bad and they were quiter when i did i did study them and scientifficly according to quantum entanglement numorous books ive read by scientists and doctors and interviews watched of top reasearchers on the topic that telepathy is real i wish ida never read into it cause now even when im not hearing them i kinda feel like if theyre real i need to be hearing them even tho when i do they to do they torment me anyone else here struggle with this? if so any tips or tricks to ease my mind and help me move on to what's become a major obstacle in my life?

3 reactions