Pernicious Anemia

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I’m always listening with an open heart!♥️

Advice?!! I’m now 55 and have been in therapy since 16. I’ve heard it all (voices included for free) and have run the gammet on psych meds and have done my due diligence with tons of research until bleary-eyed and on every corner of the continent. Eastern, Western, alternative and wholistic medicine.
As if having mental health disorders wasn’t enough. The universe saw fit to include multiple autoimmune disorders to my curriculum vitae. Took a few years and several doctors later to receive diagnoses.
Had to take a leave of absence from my job that I was very passionate about. But, it’s true, either find time to take care of yourself or your body will do it for you. I haven’t been back to work full time since 2012.
I’ve suspected Autism as both of my amazingly brilliant children are on the spectrum with ADHD and microcephaly. To add insult to injury, I have been full time caregiver for mom who has Alzheimer’s for the last two years. And, I’m scheduled for two upcoming surgeries to remove the final of 10 malenoma removal surgeries.
It’s mind numbing after years of treatment to still feel unwell. Wish there was truly a magic cure-all for everyone of us!!! I like to infuse humor and creativity into my day to stave off the pain and exhaustion.

#MentalHealth #Schizophrenia #BipolarDisorder #Anxiety #Depression #ChronicFatigue #ThyroidDisease #MultipleAutoimmuneSyndrome #PerniciousAnemia #Arthritis #ChronicObstructivePulmonaryDisease #AutismSpectrumDisorder #ADHD #newbietoTheMighty #BackPain #Cancer #SkinCancer #ChronicPain

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I just wanted to introduce myself as I'm new to the group. My name is Crystal, I'm 43 years old, and I've got multiple autoimmune issues. Pernicious anemia was the first one at 22 years old, rheumatoid arthritis at 27, HS at 38, and alopecia areata at 40. I'm looking forward to being able to share my experiences with you and hopefully offer support for the bad days.

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Frustrated #Undiagnosed #ChronicPain

I had a follow-up with the neurologist today and since all the tests have come back normal he has no answers. I mentioned checking my ferritin and he brush it off. Suggested my primary care doctor run an iron panel. I mentioned pernicious anemia and he brushed that off as my b12 level is normal. I mentioned Ehlers-Danlos and he brushed that off. He agreed it may be fibromyalgia. He asked me to have my psychiatrist switch me from lexipro to Cymbalta to help manage the pain and my anxiety. I don't know what do to now. I have needle like pain throughout my body. Burning pain in the soles of both feet. I have muscle cramps and spasms in both legs, ankles, and feet. I have heartburn, bruise easy, have hot and cold flashes.