Pernicious Anemia

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Pernicious Anemia
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    Community Voices

    I had a follow-up with the neurologist today and since all the tests have come back normal he has no answers. I mentioned checking my ferritin and he brush it off. Suggested my primary care doctor run an iron panel. I mentioned pernicious anemia and he brushed that off as my b12 level is normal. I mentioned Ehlers-Danlos and he brushed that off. He agreed it may be fibromyalgia. He asked me to have my psychiatrist switch me from lexipro to Cymbalta to help manage the pain and my anxiety. I don't know what do to now. I have needle like pain throughout my body. Burning pain in the soles of both feet. I have muscle cramps and spasms in both legs, ankles, and feet. I have heartburn, bruise easy, have hot and cold flashes.

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    Community Voices
    Community Voices
    Community Voices
    Community Voices

    My body sucks sometimes.

    <p>My body sucks sometimes.</p>
    13 people are talking about this
    Community Voices
    Community Voices

    I’m new here!

    Hi, my name is oneinamilliom. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #PerniciousAnemia

    1 person is talking about this
    Community Voices
    Community Voices
    Community Voices

    First Endo Appt

    Today, I had my first appointment with an endocrinologist. I was diagnosed with hashimoto's in Feb 2020 and have been taking 50mg of levothyroxine every day since. I wasn't planning to visit an endo, but I wanted to explore other medicine options such as NDT or compound medication. Everything I feared about going to an endo came true. He said my TSH is normal, I'm not hypothyroid, lowering my TSH won't make me feel better and that he wouldn't have prescribed me with Levothyroxine in the first place. He asked me if I'm planning to get pregnant soon, then he would work to keep my TSH under 2.50. But the thing is, even if you tell me everything is normal on paper, that doesn't dispel all the symptoms I'm feeling! I feel crazy, dismissed. I ended the session agreeing to trial off of levothyroxine for 6 weeks and testing my thyroid levels at the end. I also agreed to get tested for other conditions such as celiac and pernicious anemia. I felt crushed, invalidated, but I didn't want to shut down his methods without giving it a fair shot. The worst part was that I expressed my feelings of upset to someone close to me, and they said it sounded like I wanted something to be wrong. In a way, I guess they're right, but only because if nothing is wrong, then what does that say about the symptoms I'm experiencing!! And disclaimer, they're normally very supportive, they probably were just at a loss on how to comfort me in that moment. So I turned back to this community. Because out here, I feel like I won't be seen unless everything comes crashing down. And as I told my endo, that's exactly what I'm trying to prevent!!
    #hashimotos #HashimotosThyroiditis #Hypothyroidism #underactivethyroid #levothyroxine

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