After many years of symptoms and suspected autoimmune disease I had a positive ANA in February 2023. Further testing in September 2023 came back ENA positive for a couple of things but still waiting on an actual diagnosis (wait time for my rheumatologist is about 6 months each time). Lupus had been suspected and possibly Sjogren's and Scleroderma. I'm hoping that I can finally start treatment and get at least some of my life back!
Hello Everyone! I joined The Mighty years ago when I was going through a divorce. Things have been really hard this last year. I became homeless, lost custody of my 3 beautiful children to my ex & had to stop working due to my worsening health. But I have hope & I know this won’t last forever. I mainly suffer from Scleroderma but have an AMAZING online support system in my friends. I love being there for others & feel with all I’ve been through that I have a greater compassion for my fellow Mighty members. I’ve been chronically ill most of my life due to abuse that led to depression & anxiety -but got diagnosed in 2010 after having my second son. Just wanted to say “hey” & tell you how excited I am to be apart of this community!
Hi, my name is bellarae91. I'm here because
I have recently been diagnosed with Scleroderma after having it for 25 years and never got answers. looking forward to chatting with new people
#MightyTogether #Scleroderma #SystemicSclerosis #LichenSclerosus #MyelinoclasticDiffuseSclerosis
After 6 years of being on various medications to manage my Fibromyalgia, Anxiety, Depression, ADHD and Scleroderma auto-immune disease. I have decided to get off the anti-depressants, and nerve medications.
I want to start a holistic approach to my health. My doctors mean well but I do not feel understood, or believed about how I feel.
Has anyone been through this part of health journey?
I have been thinking about writing about chronic pain and other conditions for quite some time. I would say I have a lot of thoughts and opinions, and I used to be good at expressive writing (if I've gotten the term right) and getting things down on paper. I was hoping I could potentially make people feel less alone. However, I'm unsure of where I could post things like this or how to get started? Any advice would be appreciated💜
#MightyTogether #Fibromyalgia #FibromyalgiaDiagnosis #ChronicPain #typeonediabetes #DiabetesType1 #HypothyroidismUnderactiveThyroidDisease #LinearScleroderma #Scleroderma #ChronicIllness #ChronicFatigue #AutoimmuneDisease #RareDisease #MedicalZebra #Depression #Anxiety #AnxietyAttack #PanicAttacks #MentalHealth #youngadult
Does anyone on this site take medication for their scleroderma? My rheumatologist wants to start me on Actemra injections. Has anyone tried it before? I can’t seem to find anyone to help me.