Chronic Obstructive Pulmonary Disease (COPD)

Hi, my name is Umfolozi. Thanks for being there. I am on oxygen concentrator 20 odd hours a day as my COPD has progressed.

#MightyTogether

Hi, my name is LeslieShaw74. I'm here because I am an elderly gay man with COPD and emphysema. I'm looking to meet people to talk to online, I have been missing the social aspect of life as my condition makes it difficult to socialize. I've always been such a socialite so this has been difficult.

#MightyTogether

Hi, my name is Medicrn4814. I'm here because I have Limb Girdle Muscular Dystrophy, cluster migraines since age 17, severe degenerative arthritis, stenosis, CAD, COPD, and my snapping just cost me my best friend. My wife and I have been married 34 yrs, 3 children , 8 grandchildren. I'm a nurse, firefighter, paramedic, and Type A personality. I snapped a few times at my best friend and his wife and they have told me to go away. I am devastated, I have apologized profusely, but I want to give some explanation for my actions. I live in constant pain at a 6-7 out of 10. 14 major surgeries and i take 25 meds/day. What can I say to them to help them understand my stupidity.

#MightyTogether #Migraine #MuscularDystrophy

Hi, my name is ToastyButterflyfish1. I've been diagnosed with multiple sclerosis and also COPD. I’m looking to learn more about more about my diseases. I am also interested in meeting people with the same issues I have.

#MightyTogether

Hi Everyone
Has anyone had infusions for the treatment of fibromyalgia? If possible I’d be interested to hear how your treatment went and if it helped at all ? Any info would be much appreciated. I’m getting nowhere with any Drs I see, and trying to see a Dr is becoming a nightmare.
Thank you in advance xx

#Fibromyalgia

Hi Everyone
Has anyone had infusions for the treatment of fibromyalgia? If possible I’d be interested to hear how your treatment went and if it helped at all ? Any info would be much appreciated. I’m getting nowhere with any Drs I see, and trying to see a Dr is becoming a nightmare.
Thank you in advance xx

#Fibromyalgia

I was telling my daughter-in-law the other day about one summer we had some bad storms and we'd lost power for nearly a week. By day four I was so tired of eating out of a cooler and no hot food. I got out my turkey roaster and added everything needed for a good stew. Loaded it up into my van carefully as well as the bag of charcoal and headed to a neighborhood park a couple miles away. Once there I realized I wouldn't have enough charcoal. Looking around I thought, no big deal since there were lots of smaller branches down. I got the coals soaking up lighter fluid while I started gathering up sticks and small enough branches I could break smaller by the grill I was using. Lit the grill and once the fire burned down slowly began adding some of the sticks. Adding sticks every so often so the temperature would stay even. After awhile I began to smell the heavenly scent of cooking food again. One of the few children playing on the playground equipment asked me what I was doing. I told them the storm knocked out my power and I was tired of sandwiches so I'm cooking stew on the grill. He looked at me funny and said, I thought burgers and hot dogs cooked on a grill. But that smells good. Knowing I wouldn't be able to keep leftovers and my son and I wouldn't be able to eat it all, I asked the boy if the power took there electricity too. When he said yes I told him to go home and tell his momma what I'm doing. That if they want a hot meal to bring their bowls and I have plenty. I dished my son and I bowls I'd brought that had locking lids and wrapped those in foil to help keep it hot hopefully until I made it home. He brought his mom and two siblings back with him each carrying a bowl. His mom asks me, are you sure you have plenty. I replied, yes maam,it's just my son and i. I have more than enough because I can't make a good stew for only us two. So as I filled their bowls their mother insisted they thank me. When I filled hers she gave her thanks and home they went. No sooner had they gone than another woman walked over and sheepishly asked if I might have enough of what I'd given the others. In her hands she had a stack of four plastic bowls. I assured her I had enough. Then she looks around at the debris from the storm shaking her head. Tells me she'd never thought or heard of anyone cooking a hearty stew on a grill before. But she's very grateful I did and was willing to share. Just sorry her husband was missing out on a hot meal. I told her to just take her bowls back home and bring a pan big enough to hold the rest. I had plenty for my son and I. When her husband got home she could warm his up on the grill. I'm just glad that I was able to help others have a hot meal as well.

Please add times when any of you have helped neighbors that hadn't been planned. I think it helps keep a positive mindset hearing about good things. #MentalHealth #ChronicPain #Addiction #PTSD #EhlersDanlosSyndrome #ChronicObstructivePulmonaryDisease

I have an autoimmune system, with ulcerative colitis flares, Hashimotos disease, Fibromyalgia and chronic fatigue syndrome. COPD. I have 3 active viruses and Ebstein Barr is the heavy culprit. I have a genetic mutation (both genes) called MTHFR factor. It took about 20 years to get diagnosed . I am 72(very young minded) and can no longer work because of the level of dysfunction, so now I am very low income and am on medicaid and food stamps. My main occupation now is catching up on the stuff that doesn't get done when I am in bed about 60% of the time. I don't ask "why me" because really "why not me"...I look at this all as my own personal venue for growth potential as a human being which usually involves 2 steps forward and 1 step back. I am trying to learn a concept called Radical Acceptance and it gives me a point of focus. I am a type A and am trying to learn that I can no longer be what I was. That I need to learn a different way and mentality...