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Hi, my name is Sumorg. I'm here because I have 3 spinal compression fractures, scoliosis, kyphosis, COPD and anxiety and depression
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Chronic Obstructive Pulmonary Disease (COPD)
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Chronic Obstructive Pulmonary Disease (COPD)
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I'm new here!
Hi, my name is mari101_2000. I'm here because I think online support is critical. I'm a 48-year-old mom of two. Brittany is 28 and is on the autism spectrum and has PTSD. My son, Tyler, is 24 and diagnosed with bipolar and ADHD. He is unmedicated by choice. He's been sentenced to three years for probation absconding. We don't have a relationship at the moment. I've been through a lot of trauma, I'm either MDD or Bipolar 2, and I don't know why they can't tell the two apart. I have CPTSD, depression, and anxiety. I also have a chronic illness.. I have very bad gastroparesis, and it's really affecting my life. I also have horrible arthritis, fibromyalgia, and back and hip pain. These are the things that I'm struggling with. Brittany had a baby that she'd worked very hard to bring forth. She had Everleigh, and she was a stunner. Five weeks later, she died of SIDS. So we are all grieving her. Also, we lost my mother to Alzheimer's about 6 months later.
Sorry, I just spilled my guts. Hope to make some connections!
#MightyTogether #Anxiety #AutismSpectrumDisorder #Depression #PTSD #Grief #Fibromyalgia #Migraine #Gastroparesis #Arthritis #COPD
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Post
I'm new here!
Hi, my name is mari101_2000. I'm here because I think online support is critical. I'm a 48-year-old mom of two. Brittany is 28 and is on the autism spectrum and has PTSD. My son, Tyler, is 24 and diagnosed with bipolar and ADHD. He is unmedicated by choice. He's been sentenced to three years for probation absconding. We don't have a relationship at the moment. I've been through a lot of trauma, I'm either MDD or Bipolar 2, and I don't know why they can't tell the two apart. I have CPTSD, depression, and anxiety. I also have a chronic illness.. I have very bad gastroparesis, and it's really affecting my life. I also have horrible arthritis, fibromyalgia, and back and hip pain. These are the things that I'm struggling with. Brittany had a baby that she'd worked very hard to bring forth. She had Everleigh, and she was a stunner. Five weeks later, she died of SIDS. So we are all grieving her. Also, we lost my mother to Alzheimer's about 6 months later.
Sorry, I just spilled my guts. Hope to make some connections!
#MightyTogether #Anxiety #AutismSpectrumDisorder #Depression #PTSD #Grief #Fibromyalgia #Migraine #Gastroparesis #Arthritis #COPD
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#Independence
I know i should be nice and warm to my siblings especially the one who does so, so, much for everyone- and whose daughter is presently involved in a divorce. This family member’s plate is full, so full.
I know I should be happy I am not bothering anyone. My husband has been doing what my siblings mostly have done in the past. I should be exceedingly happy I am not bothering them. Or my husband doesn’t bother his family- really don’t know how they would respond if he did bother them for help.
But it hits me right between my eyes what my marriage is. Just someone who is “ there” in the event of need. I really don’t think there is much more to it. It is sad to me. But I have to put my big girl pants on and realize it could be a lot sadder.
My husband and I simply are in it- so we can leave our families to their own lives- this is a good thing but hard to swallow at times.
This I should be happy about bc my siblings have done so much for me in the past
A negative that is hard to swallow-
But especially my husband’s family will inherit monies from us-and what will we get in return-all I can do is hope my husband gets care-I question this. I wonder if my husband will get anything-
And I still work when his family member never lifted a finger to - and they- his family - are going to get mine and my husband’s money some day-
They were not at all nice to me years ago when we bought our house-and eventually they ( my husband’s family) will get 1/2 of the house. . W/o me- we would have never had this house. one relative on his side was horrible to me about me wanting a house- w our money-!! After we went to all their smoke filled parties as his sibling’s kids were growing up- and i have emphazema. And i got sepsis from my copd - last fall where i could have died from— it helps to vent-I smoked myself- not at that time-but in life-I have to take responsibility-it ie best for me to stay away from them-because it is hard for me to hold it together when i have anything to do w them/ my husband doesn’t drive-let my husband take the bus-I am not his chauffeur-but i always drive him-
I am just a lot kinder -thanks for letting me vent-his family is very different from me- i have to let I go-
Be glad I am not bothered my siblings--
If he bothered his family- I don’t think they would do anything-
I have to let this go-
It is like i married a caregiver-and there isn’t much else
Well, it helps me to vent- i really don’t know where else i can-
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The appointment was good
Quick overview:
*Januvia prescription sent
*Norco refilled
*Rescue inhaler script sent... and then pauley showed me an inhaler from my doctor from last year. It's the same. I was gonna try to get the inhaler today but now it's not urgent.
*My doctor was sympathetic when I explained my current depression caused by adjustment disorder. We talked about how I don't have problems with my PCP office.
*Discussed lab results. We're concerned about my fast weight gain and insanely high A1c. I have to find an Endo ASAP. I'm gonna start making calls on Tuesday.
*Follow-up appointment in one month
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See full photo
The appointment was good
Quick overview:
*Januvia prescription sent
*Norco refilled
*Rescue inhaler script sent... and then pauley showed me an inhaler from my doctor from last year. It's the same. I was gonna try to get the inhaler today but now it's not urgent.
*My doctor was sympathetic when I explained my current depression caused by adjustment disorder. We talked about how I don't have problems with my PCP office.
*Discussed lab results. We're concerned about my fast weight gain and insanely high A1c. I have to find an Endo ASAP. I'm gonna start making calls on Tuesday.
*Follow-up appointment in one month
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Tomorrow
I've got a telehealth appointment tomorrow with my doctor to go over my lab results. They're pretty bad. She's gonna be cross that I haven't found an Endo yet. I'm on a really high dose of insulin. It's not helping. But it's making me gain weight really fast. It's kinda scary.
But I'm gonna talk to her about getting me a proper rescue inhaler. I've got dulera but that's just twice per day. When I go up and down the stairs or walk for more than 5 minutes I can't catch my breath.
I'm gonna get a refill of my Norco. I've been trying to contact my previous back surgeon but they haven't responded to my 2 emails and phone calls. As long as I am making an attempt, my doctor will refill my meds. I've only been taking maybe 5 per week. I'm trying to use my tramadol more often. I'm not addicted. And I intend on staying that way.
My doctor is concerned about my lymphedema and high blood pressure. I told her how my cardiologist is handling it and she's kinda pissed. The new meds aren't working. And I had a low symptoms day on Tuesday so my cardiologist thinks everything is fine. And even after emailing her pictures of my pitting lymphedema, I haven't heard back.
I'm so frustrated. And my anxiety is making me sick. I'll talk to my doctor about how bad my adjustment disorder is. Maybe she'll have an idea. She's a good doctor.
#COPD #Diabetes #ChronicPain #a1c #BackPain #Lymphedema #HighBP
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Tomorrow
I've got a telehealth appointment tomorrow with my doctor to go over my lab results. They're pretty bad. She's gonna be cross that I haven't found an Endo yet. I'm on a really high dose of insulin. It's not helping. But it's making me gain weight really fast. It's kinda scary.
But I'm gonna talk to her about getting me a proper rescue inhaler. I've got dulera but that's just twice per day. When I go up and down the stairs or walk for more than 5 minutes I can't catch my breath.
I'm gonna get a refill of my Norco. I've been trying to contact my previous back surgeon but they haven't responded to my 2 emails and phone calls. As long as I am making an attempt, my doctor will refill my meds. I've only been taking maybe 5 per week. I'm trying to use my tramadol more often. I'm not addicted. And I intend on staying that way.
My doctor is concerned about my lymphedema and high blood pressure. I told her how my cardiologist is handling it and she's kinda pissed. The new meds aren't working. And I had a low symptoms day on Tuesday so my cardiologist thinks everything is fine. And even after emailing her pictures of my pitting lymphedema, I haven't heard back.
I'm so frustrated. And my anxiety is making me sick. I'll talk to my doctor about how bad my adjustment disorder is. Maybe she'll have an idea. She's a good doctor.
#COPD #Diabetes #ChronicPain #a1c #BackPain #Lymphedema #HighBP
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Last night
Last night was nice. My QPP and I went to One Eyed Betty's for dinner. I got the "obligatory fish and chips" which was delicious. I hadn't seen him in a few months so I had a lot to tell him about my health update. We've been friends for 8 years. He's super worried about me.
When we walked from the garage to the restaurant I couldn't breathe and was gasping and wheezing. He thought I was dying. Once we got somewhere warm and I could sit down I felt much better. But when we were done we had to walk back to the garage. By the time we got there I was trying to communicate with hand signals. I couldn't breathe and I sounded like I had a squeaky toy in my lungs.
He asked if I'm supposed to use an inhaler and I said yes but I don't use it and I don't have any good reason. So when I got home I asked my darling stupidhead to get me 2 of my dulera inhalers. I put one in my daily meds box and one in my messenger bag. I'm trying to be more responsible.
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