Pernicious Anemia

Hi, I’m GenXperiment.

#MightyTogether #longcovid #PerniciousAnemia #LymeDisease #covid-19 #Depression #Anxiety #Grief #cervicalstenosis

Hi, my name is Energizer. I'm undiagnosed and I wanted to mention the symptoms I have been experiencing and a timeline of them in case anyone else has experienced similar symptoms or has any advice for me. (My username comes from the fact that I used to have a lot of energy before this happened). In late 2023 and early 2024, I began experiencing thinning skin on my hands, as well as increased redness and stinging sensations. I also experienced tingling and stinging sensations in my groin and upper back. After six weeks, the groin and upper back sensations seemingly resolved. But then, in late 2024, the groin and upper back sensations returned and I also began experiencing occasional neck spasms. Then in late 2025, I began experiencing upper back spasms which radiated into my arms at times. In the autumn of 2025, I also began experiencing itching in all of the affected areas, which has steadily increased until the present.

I have been seeing doctors since late 2024 when I thought this could be serious, but so far the only specialist I have been referred to is a neurologist without a diagnosis to this point. Cervical radiculopathy, pernicious anemia, most autoimmune disorders (due to a negative ANA test) and vitamin deficiencies have now been ruled out. I was placed on a prednisone taper recently, but that only exacerbated the symptoms. I am very much at a loss, and based on how this is seemingly progressing, I don't know what is going to happen to me if this isn't diagnosed and treated soon.

#MightyTogether

Hi, my name is PositiveMe70. I'm here because, I am going through peri menopause. I also have pernicious anemia

#MightyTogether #Anxiety

Hi, my name is B12Warrior. I'm here because I want to share my story to educate and empower others to take control of their health.

#MightyTogether #PerniciousAnemia

So I've been dealing with #Dysautonomia #HashimotosThyroiditis #PerniciousAnemia #Spoonie and im young, I just got in my first relationship, and I'm so lucky my partner is understanding and supportive, but I'm realizing how much of a struggle this might be. Any time something gets me super excited/nervous, my heart rate shoots up and I have to struggle not to go limp and pass out. I'm careful to drink water and have food and salt before I have any large emotional moments, so that's all I know to do. Are there any experienced couples out there with tips to manage this? Thank you all so much!

I'm here because everything is adding up so rapidly with both medical and social, and what better community to relate with then the ones going through exactly what I am?

#ADHD #EhlersDanlosSociety #POTS #HashimotosThyroiditis #HypermobilitySyndrome #PerniciousAnemia #ChronicPain

Hi - I lost my thyroid functionality due to toxic chemical exposure while serving in the Army. I don't regret my time in the military at all, but it is what it is.

It seems the thyroid was a doorway, and without it being shut anymore, many unwelcome visitors came in and set up their new home. Besides the thyroiditis, I now have pernicious anemia, Raynaud's syndrome, scleroderma, and the newest and most nefarious invader, Stiffperson Syndrome. I never would have tested for it without Céline Dion's announcement, and I am grateful for her courage every day.

Stiffperson, however, has made it very difficult to hold down a steady job. It has made the cold winters here painful to my muscles. It has changed my idea of my future and my plans. I took my health seriously and used to feel I could do anything. Now I feel limited and that has taken a difficult mental toll on me.

I live in the northern part of the state of Utah, in the US. I appreciate the advice here and am looking forward to learning from the experience from people here. I want to thank you in advance for your help and your insights.#StiffPersonSyndrome #PerniciousAnemia #Scleroderma #RaynaudsPhenomenon #thyroiditis

Hello everyone, I’m Jacqui.

I am 30 years type 1 diabetic.
I was diagnosed with hypothyroidism about 2 years ago (levothyroxine)
10-12 or more years of fibromyalgia
and now my gp thinks I have pernicious anemia for which we are waiting on blood test results.

The fibro is very limiting but it’s the PA that’s brought me here. I’m struggling with symptoms and, at the moment, I seem to be getting worse by the day. I had blood taken several months back and while we waited for results I was put on a low dose iron and cyanocobalamin tablets and I perked up something lovely! I was meant to go and get bloods done again after finishing them but I had a fibro flare up and didn’t get them done. I guess I’m starting again from scratch now?

Right now I’m exhausted, dangerously unsteady on my feet (needing to use my walking stick inside the house), I’m shaky, my bums upset, having huge waves of threatening nausea, I’ve some stomach pain from time to time, appetite is almost zero (not helpful if you’re diabetic), struggling to hold my phone up right now and I just want it all to go away.

Is this normal? I know things will improve once I’m getting treatment but in the meantime I’ve got grumpy housemates (husband and adult daughter) and a home going to rack and ruin. I NEED to be well.

Any suggestions and/or experience shared would be hugely welcome!

Jacqui - Cambs, UK