sjogren

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I'm new here!

Hi, my name is georgiarose73. I'm here because I feel like I am alone in my struggles with all my issues. It almost led to a divorce before my husband realized I was not faking. It took two years to get a disability and I had to retire early from teaching which I loved! I miss my friends, I miss activities I USED to be able to do, but most of all I miss the old me.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #Dysautonomia #sjogren 'sSyndrome#PTSD

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I'm new here!

Hi, my name is Heather. I'm here because my life has been flipped totally upside down from my chronic illnesses. Every day is a struggle and unpredictable. I’ve had to give up college and my job, and under the circumstances I can’t even watch television.

My friends and family are my life and I would not be able to survive this mentally without them.

#MightyTogether #MalDeDebarquementSyndrome #sjogren 'sSyndrome

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"You don't look sick"

Who else sometimes struggles with proving to people how sick you are because you don't look like it? I was diagnosed at 27 years old, and that's all I used to hear. Sjogren's does not discriminate! #sjogren 's #InvisibleIllnesses

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This is Sjogren's syndrome

Awareness is needed; especially with how prevalent it really is. #sjogren 's syndrome

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Stapes surgery: your thoughts/experience #Deafness #autoimmune #MyastheniaGravis #Surgery #ChronicIllness #sjogren ’ssyndrome #POTS

I have very severe cochlear otosclerosis with severe to profound hearing loss in both ears and multiple autoimmune and chronic conditions. Since I am using hearing aids on both sides but getting little benefit from one of them due to the severity of the loss and difficulty with speech discrimination too, my doctor wants me to undergo a stapedectomy. I’m pretty nervous to undergo this surgery and would love some feedback about pros and cons and any alternatives I may be missing. Thanks!
#Deafness #autoimmune #MyastheniaGravis #Surgery # chronic illness# sjogren’ssyndrome #POTS #Hearing loss

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