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Trading My White Coat for a Hospital Gown

As a medical professional, I have never felt particular enthusiasm for wearing a white coat. It creates an impervious barricade; demarking the clear positions of a pure, healthy provider, and an ill, tarnished patient. Interestingly, doctors exclusively wore black until the late 1800’s to early 1900’s. These dark garments signified formality, as well as an elevated societal status. During these times seeking the assistance of a doctor implied seriousness, and was often a precursor to mourning. Additionally, the black cloth hid stains from a frequently hostile medical environment. As advances in microbiology evolved, similarly antiseptic standards emerged, which would forever alter the field of medicine. Doctors were expected to maintain proper hygiene, which could be accounted for with a pristine white coat. In doing so, this universal uniform of the profession quickly elevated the image of those who donned it.

The ceremonials of being presented with a white coat are much more profound than the action of placing any ordinary cotton, polyester blended jacket over the shoulders. Once the upper appendages are slipped into the sleeves, is the person instantly transformed into a competent, and ethical healthcare provider? Comparable to the comics when Peter Parker dons his iconic suit, alchemizing into his alter ego, Spider-Man. Traditionally, students are presented with a white coat in a ceremonial fashion which, signifies entrance into the profession of medicine. The formality being completed with the reciting of the famous Hippocratic Oath. This snow-colored covering symbolizes professionalism, honor, authority, and purity. Even when not wearing the coat, providers are expected to assume proper behaviors that represent this article of clothing at all times. As I was proudly robed with achromatic attire during my own traditional ritual, I failed to consider the future possibility that I myself might actually trade this iconic covering for more patient appropriate garb.

While earning a white coat clearly doesn’t protect a provider from personal illness, it can create an elusive façade, otherwise deceiving those who are bestowed with its greatness. The fact that medical practitioners are subject to the same ailments as their patients, is usually not evident until they themselves fall ill. I was one of those providers before I got sick. Although, I learned quickly after stumbling in and out of autoimmune flares since age thirty-seven with a disease that the medical community rarely affords attention to. Sjögren’s is the second most common autoimmune disorder, however, it remains the red-headed stepchild of such ailments. Concurrently, I began a battle with endometriosis, another misunderstood and underappreciated disease, which ultimately took six long years to officially diagnose. Infiltrating into my white coat, I secretly hoped it would obscure my own medical impurities. Was I trying to convince myself, along with others, that nothing was wrong? I essentially used the most virtuous of symbols in medicine to censor such darkness. I am surprised the great Greek physician himself didn’t strike me down for smudging such an honorable emblem. Apparently, my time to maintain the charade of “healthy” provider came to an end, as I had effectively traded my white coat for a less prestigious garment, a patient hospital gown.

As I found myself lying on a gurney, the other side of the metal rail staring me in the face; my visual field was flooded with sensory input of a very different vista. Medical practitioners have an obligatory responsibility to maintain good health, and those who falter encounter unexpected contempt. The stigma of sickness is unbiased, therefore impartial to all patients, whether medically educated or not. Illness is viewed as weakness, and most institutions neglect to teach students about the vulnerable patient perspective. Failure to reveal the contrasting viewpoints of treating a patient versus treating a disease result in the dehumanization of mortal beings. It seems the empathetic side of medicine is often left off medical education curriculum, and the role of patient is quite challenging to comprehend without actually becoming one.

The fragility of life, and ultimate mortality that us medical providers attempt to evade must be confronted head-on. I finally asked myself, what exactly is the function of a patient? Does it really entail complete passivity? It certainly represents exemplification of exposure, and therefore unmistakably authentic vulnerability. Extricating the dual sides of myself, both provider and patient is more than just a problematic task, but an inconceivable one. Whether enveloped in a stiff white coat or flimsy patient gown, we all inevitably must face our own fate.

#sjogrens #Endometriosis #MightyTogether #MedicalProfessionals

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I'm here...

Hi, my name is IzzieBea83. I'm here because I'm dealing with some physical things, some mental things, some relationship things, some kinda scary somedays but managable other days things... and I'm hoping to explore potentially rebuilding a support system of sorts... this seems like a pretty likely place to start

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #ADHD #OCD  #Grief #LGBTQIA #PTSD #AgoraphobiaWithoutHistoryOfPanicDisorder #GeneralizedAnxietyDisorder #SuicideAttemptSurvivors #SjogrensSyndrome #SinusTachycardia

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I'm here...

Hi, my name is IzzieBea83. I'm here because I'm dealing with some physical things, some mental things, some relationship things, some kinda scary somedays but managable other days things... and I'm hoping to explore potentially rebuilding a support system of sorts... this seems like a pretty likely place to start

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #ADHD #OCD  #Grief #LGBTQIA #PTSD #AgoraphobiaWithoutHistoryOfPanicDisorder #GeneralizedAnxietyDisorder #SuicideAttemptSurvivors #SjogrensSyndrome #SinusTachycardia

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I Got the Job! #ChronicIllness #ChronicPain #RareDisease #MitochondrialDisease #HypothyroidismUnderactiveThyroidDisease #sjogrens

Do you believe a person’s value is based upon what they can achieve, produce, and provide in their work life? Is a person’s worth defined by their success, prosperity, or boomerang-like,”you get what you give” mentality in this lot in life?
Through asking these kinds of questions,
I got the job! I wasn’t qualified, but I was chosen from many polished candidates due to willingness to follow and learn through my hands-on experience. This full time position requires 24/7 on-call availability, and was given without an application, interview, or consultation by me. The training is continuous, arduous, and there are no scheduled breaks, sick days, or vacation time in the contract, but it does have potential to help many in life changing ways through the job experience.
Would you like to work here?
Do you work here too?
Too late. My time card was punched like my stomach pains. My jaw remained clenched to smile through the pain and nausea to get started.
What a welcome to the Department of Physical Suffering and Loss. My new job title was Rare Chronic Illness, and my shiny gold name plate read:
Melanie Rodriguez, Secretary of Long-Suffering or S.O.L.S. Agent.

Romans 8:28
And we know that in all things, God works for the good of those who love HIM, who have been called according to his purpose.

It seemed like forever that I slave labored through a job I despised with no tangible benefits, advancement, pay raise, or feeling of accomplishment. This unwanted unpaid internship only provided a week end paycheck of hopelessness and gutteral desperation for answers that only sunk me deeper into despairing the painful daily grind.
I had just started to feel life was falling into place when my physical health rapidly declined. Every aspect then felt scattered, yet isolating. It was a cruel game of symptom containment that I never could triumph mastering.
Even after years of critical training in multiple surgeries and quality controlled diagnosis gathering, the disability trajectories sky rocketed. The crash of exhaustion and the lack of energy to persevere were no contender to overlapping symptoms and indescribable pain. It all became unmanageable, and yes, I was called for review…more than once.
I was enept at best.
My professional laser focus was unbalanced in a prematurely failing body. The two often collided creating a powdery stardust of feeling complete overwhelmed while struggling in my own body. I was unable to physically move, so how could I keep pushing myself in a,”no excuses, can’t give up now” office environment? The inevitable was complete collapse!
The cycles of relentless physical pain, flare, guilt, shame, and loss left me bedridden at times, unable to care for myself, or others properly in only my mid 30’s, with three children that needed their mom. Not for a lack of trying, or dedication to the idea of hope, and reclaiming my once vibrant life, but the actual physiological ability to.
The tears burned down only making the pain worse.
How could I endure working like this?
I wasn’t a good fit for this job. I really, really wanted to quit and find a different job, but there weren’t any other openings.
This prestigious position of rare chronic illness took years to learn to cope through, and when things were hectic as hell, I petitioned the help from a kind friend and coworker from the very top floor.
He understood my limitations perfectly which comforted me. He walked, guided, and encouraged me to succeed on my work path. I gained so much valuable insight through Him. An education that truly saved me!
Even so, I still felt ill equipped to complete the compiling workload and I requested a meeting with corporate pertaining to my job description and skillset utilization.
My Boss gave me a handbook to read which outlined helpful instructions to which I still refer to daily.
My Boss is Great and Mighty! HE mentioned HIS door is always open, to just knock, and that I could enter. He also said I could always find HIM!

Jeremiah 29:13
You will seek me and find me when you seek me with all your heart.

Chronic illness/chronic pain may not have been your first career, but trust that The Boss has purpose for your suffering. Be faithful and work to your full potential serving The Boss with hopes that the day of deliverance is near.

Psalms 34:19
Many are the afflictions of the righteous, but the Lord delivers them from them all.

It was only through the support of my team, daily surrender, and complete trust, did I then feel I had the tools and readiness to take it all on; and truly believe this position was made especially for me. We have the essentials spiritually, even if not physically to complete our tasks. Embrace your limitations to fulfill your true work and purpose of life. Goodness will come from the hard work in conjunction with His plan for your life on earth and eternally.

Colossians 3:23
Whatever you do, work at it with all your heart, as if working for the LORD.

Keep Working! It’s not in vain!
He gets the praises for your raises!
Thank you Lord, I trust you!

*Published Written Piece by:
Melanie Rodriguez/Patient & Advocate
Copyrighted

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Grieving a Life You Cannot Live

I don’t think I’ll ever stop grieving. Yearning.

I am no longer in remission for lupus and due to this many other health complications have risen up. My pain level is at about an 8/10. And now, I, a 26 year old female with no children, will need to have a hysterectomy that has been scheduled for November. I am absolutely heartbroken.
.
My hysterectomy is tentatively scheduled for November pending INR results upon a closer date.

Lupus has taken everything from me at one point or another. Every penny I have for these specialists and procedures. My ability to walk. My ability to have children.

All that is left is an empty shell of the person I yearn to be.

I try to hold onto some sliver of hope- a purpose.
I try so hard to hold onto hope.

But days like today when I was just told with finality that I will never have children…

My partner, Nick, is a saint. He has stayed by my through every doctor, through every diagnosis. He has loved me through the dark.

And right now, in this very moment, I have a choice.

I can choose to spiral and tell myself that yes, Nick is doomed if he stays with me and I can never do anything to help me get through my lupus flare. I could lay in bed in a vegetative state and wallow in self pity for another day. I could give up.

Or. I can remind myself that I matter very much. That the world is NOT better without my in it. That I am not a burden. Not on my mom. Not on my partner. Not on society. I can remind myself that this is just another part of lupus- something I have to live with.

I choose the latter. I don’t know why I was chosen to be as sick as I am. But maybe it’s not a curse. My life doesn’t stop just because I am sick. And I will mourn every single day that I cannot have children of my own. And I will cherish Beyla (my Bernese mountain dog) all the more.
#Lupus #AntiphospholipidSyndrome #Hysterectomy #SjogrensSyndrome #Endometriosis #Infertility

6 reactions 4 comments
Post
See full photo

Grieving a Life You Cannot Live

I don’t think I’ll ever stop grieving. Yearning.

I am no longer in remission for lupus and due to this many other health complications have risen up. My pain level is at about an 8/10. And now, I, a 26 year old female with no children, will need to have a hysterectomy that has been scheduled for November. I am absolutely heartbroken.
.
My hysterectomy is tentatively scheduled for November pending INR results upon a closer date.

Lupus has taken everything from me at one point or another. Every penny I have for these specialists and procedures. My ability to walk. My ability to have children.

All that is left is an empty shell of the person I yearn to be.

I try to hold onto some sliver of hope- a purpose.
I try so hard to hold onto hope.

But days like today when I was just told with finality that I will never have children…

My partner, Nick, is a saint. He has stayed by my through every doctor, through every diagnosis. He has loved me through the dark.

And right now, in this very moment, I have a choice.

I can choose to spiral and tell myself that yes, Nick is doomed if he stays with me and I can never do anything to help me get through my lupus flare. I could lay in bed in a vegetative state and wallow in self pity for another day. I could give up.

Or. I can remind myself that I matter very much. That the world is NOT better without my in it. That I am not a burden. Not on my mom. Not on my partner. Not on society. I can remind myself that this is just another part of lupus- something I have to live with.

I choose the latter. I don’t know why I was chosen to be as sick as I am. But maybe it’s not a curse. My life doesn’t stop just because I am sick. And I will mourn every single day that I cannot have children of my own. And I will cherish Beyla (my Bernese mountain dog) all the more.
#Lupus #AntiphospholipidSyndrome #Hysterectomy #SjogrensSyndrome #Endometriosis #Infertility

6 reactions 4 comments