physical therapy

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Community Voices

Mental & Physical Health

<p>Mental & Physical Health</p>
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Community Voices

2 Steps Forward 6 Steps Backwards

Do you ever feel like every time you make any progress with your illness/disease you win a little then it knock you so much father back that you will never get back to were you were before?

So I have FND which means my nerves and brain function abdominally and communicate about as well as toddlers playing the telephone game. Add in a sprinkle of Tourettes Syndrome and Sensory Processeing Disorder, Migraine, Dyskinesia, Dystonia, and we are currently exploring epilepsy. All this results in me being confined to a wheelchair at least 85% of the time and need to be supervised if I am not. Along with eating difficulties, communication problems ect...

I have to go in for occupational therapy and physical therapy once a year to help me maintain quality of life. Sometimes we add speech or cognitive to spice things up if I need it . All these therapies are great and can act as kinda a filter on how to adapt my life to limitations and give some good ideas on how to make life easier within my limitations my body has placed on me. However it always feels like we make a little progress with them and once I "graduate" out of them (stop making progress usually after a the first 2 months) my body starts to decline again even though I countue to do my home programs (hey I want as much quality of life as I can get I mean I turn 20 in the fall I will take what I can get). This happens with me staring to fall more, my hands start to get weaker, I drop more weight, ect.

2 steps forward 6 steps back.

Every time. It seems like I am on this never ending loop of yes some progress. Whap out of no where I get worse ...

2 steps forward 6 steps back.

It's like this dance me and my body play. Oh you gonna work to try and get better. Sike now your worse enjoy the new wheels.

2 steps forward 6 steps back.

Around and around we continue this dance and we can't seem to figure out why this downward spiral keeps happening. Like I'm not gonna keep fighting for my quality of life but man would I like to stop this dance or at least hit pause for a bit.

2 steps forward 6 steps back

It's exhausting. I just moved and my new pcp asked if I had made any progress on getting better and it hit me that no actually I keep getting worse and my symptoms keep getting more debilitating as time goes on. So now we redo all the testing and redo all the things to see if anything has changed...

2 steps forward 6 steps back.

Anyway I'm just excused with everything. I'm still gonna try and still gonna give it everything I got which honestly isn't much at this point. Still gonna give it a go. Got to continue this dance in homes that some day it will be 6 steps forward and 2 steps back instead.

#FunctionalNeurologicalDisorder #ChronicFatigue #ocupationaltherapy #PhysicalTherapy #notmakingprogess

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Community Voices

"Amazing Abby" the Treadmill Training Toddler

<p>"Amazing Abby" the Treadmill Training Toddler</p>
9 people are talking about this
Community Voices
Community Voices

What would your ideal doctor’s office set-up look like?

<p>What would your ideal doctor’s office set-up look like?</p>
42 people are talking about this
Community Voices

Physical Therapy Humor

<p>Physical Therapy Humor</p>
3 people are talking about this
Community Voices

Sori if lame butt me foght hilarius

<p>Sori if lame butt me foght hilarius</p>
10 people are talking about this
Community Voices

Me fouhgt we culd enjoy a litle britnes thru hr ruff dayz
Especly me rite @mo so wantd to shar

<p>Me fouhgt we culd enjoy a litle britnes thru hr ruff dayz<br>Especly me rite @mo so wantd to shar</p>
44 people are talking about this

Using Physical Therapy to Treat Weak Muscles Because of Depression

“If you don’t use it, you’re going to lose it.” This simple phrase was a cornerstone of my childhood, especially in physical therapy. I often resisted stretching my weak, cerebral palsy-affected muscles, and the professionals in my life weren’t shy about reminding me of the consequences of not caring for my body. My cerebral palsy puts me at greater risk for muscle atrophy, so it’s imperative that I use my weaker muscle groups regularly to prevent future physical struggles. But I never once considered that my non-affected muscles could also be significantly affected by a lack of movement — until I went back to physical therapy a couple of months ago. My physical therapy goals were relatively simple: strengthen and improve the range of motion on my affected side. I didn’t even think about the unaffected side of my body — because it isn’t affected by my cerebral palsy, I assumed it couldn’t possibly need significant strengthening. I was wrong. About half way through my set of prescribed physical therapy sessions, my physical therapist began asking me to do each exercise I learned on both legs instead of just my affected leg. At first, I assumed she wanted to allow me to see what my PT exercises “should” look like on my own body, but when I expressed confusion about why we were suddenly stretching my right leg as well as my left, my physical therapist revealed that my right leg was weaker than average as well. I didn’t know what to make of this information. I immediately panicked, wondering if I had been misdiagnosed with hemiplegia cerebral palsy for almost my entire life. Was my right leg affected as well as my left, and if so, how could medical professionals have missed the signs for over two decades? But then I thought back on all the days I spent in bed, unable to will myself to accomplish the most basic tasks, and I realized that this time, my cerebral palsy wasn’t the cause of my muscle weakness — my depression was. I’ve lived with depression for the past eight years, and one of the most unfortunate consequences is my inability to move my body as often as a mentally healthy person might. My mind and body are constantly at war with each other, especially when it comes time to get out of bed or to move from room to room. Consequently, I tend to stay in one place for hours on end, rarely walk, and almost never feel well enough to exercise. My sedentary lifestyle has had profound effects on my muscles — including my “strong” muscles — and the moment my physical therapist told me all of my leg muscles were weak, I got a glimpse of just how profoundly my depression has impacted me. When we discussed the effects of my lack of movement on my muscles, my physical therapist repeated that same phrase that punctuated all of my physical therapy sessions as a child. This time, though, I wholeheartedly believed that if I didn’t regularly use my muscles, they’d lose strength — my unexpectedly weak right leg was proof that somehow, I needed to keep moving. In addressing the weakness on the “strong” side of my body, my physical therapist inadvertently reminded me that muscle loss is real — and it’s not only tied to physical disability but also to the lasting effects of mental illness. Although I entered physical therapy to treat my cerebral palsy symptoms, I’m thankful that I’ve had the opportunity to address the physiological effects of my depression as well. The moment I discovered that even my “strong” muscles were weak genuinely shocked me, but I’ve resolved to combat my depression in any way I can and continue strengthening my entire body.

Community Voices

Aqua physical therapy helps#PhysicalTherapy #pooltherapy #Fibromyalgia

For some time, I have been struggling staying active due to pain and mobility issues. My pain management team extended authorization for aqua physical therapy. Being in a heated pool allows me to do low-impact exercise. My favorite exercise is pedaling like I'm on a bike while using a pool noodle and going back and forth. Aqua PT is the best! Plus I meet other fibro warriors, chronic pain patients and those who've had surgery. We encourage each other.

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