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What are your experiences with Buprenorphine?

Hey, everyone! I hope you’re all alright and staying safe during this Hell that we call a pandemic.

I spoke with my urologist recently (I have Interstitial Cystitis that causes me a lot of pain). We’ve been trying to think of ways to help my pain in the long run. He and his colleague that both one with their patients have been trying to convince me to have surgery to take out my bladder and have a urostomy. I am not keen on this idea. I’m 26... I’m too young for this. So instead he said he will be referring me to the Pain Clinic to discuss Buprenorphine patches.

What are your experiences with this? I’d love to get some feedback about it before the appointment comes through.

#chronicillnesswarrior #ChronicPain #POTS #EDS #NAFLD #InterstitialCystitis #Diabetes #BPD #Urostomy #Buprenorphine #Medication #Advice

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Exciting new ventures!

I've been out of work since my health started to really decline in 2017. I hate it. Although I learned (and remind myself frequently) that my worth isn't measured on the money I earn or the hours I work, that doesn't mean I dont miss feeling productive and useful (not to mention bored out of my head).
In the last few months I have fallen in love with sewing and I learned that I am really good at it!!
I started off making bags and purses and similar accessories and many of my Facebook friends were urging me to start a business. But I mostly ignored them, thinking it friendly encouragement.
This week, 5 weeks post op from my stoma surgery I finally sat back at my sewing machine and the first thing I made was a stoma bag cover. Proud of my success I posted pictures both on my personal facebook and in the stoma and medical support groups I am part of. The likes and the comments started rolling in. In fact I was blown away with the response, almost a hundred likes on each post. And people kept asking me if I was selling.

So I've spent the last couple of days building a page, taking photos of all my fabric so people can choose the fabric they want (O learned I have a tone of fabric!). The orders are rolling in already. End of the day, and I am knackered. But I feel good!!!

I am going to have to be careful not to put too much workload on myself, but I think this is what I have been needing. A small business, where I can set my own hours, take breaks when needed and genuinely help people, as I know stoma bag covers and catheter bag covers and other accessories for medical stuff is important to people (so far I have commissions for a syringe roll and a stoma bag supply roll). I doubt it will ever lead to lots of profits, but it will keep me busy, give me purpose and probably really help my mental health.

Anyway, Jen Bee Bags is officially open for business. Please feel free if you have read this far to head over to my page and give it a like and and a share. https://Www.Www.facebook.Www.Www.facebook.com/jenbeebags

#Stoma #stomabagcovers #Backtowork #MentalHealth #happy #Urostomy #Colostomy #illeostomy #InflammatoryBowelDiseaseIBD #InterstitialCystitis

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Hand made stoma bag cover.

Really proud of this. Finally felt well enough, 5 weeks post op for urostomy surgery, to sit at my sewing machine. And this stoma bag cover is the result. Really chuffed.
#Stoma #Urostomy #stomabagcover #proud

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5 weeks post op!

Took this afternoon. Actually feeling quite proud of myself. It's been a bloody hard few weeks, with lots of hiccups. But I'm getting there. Had a really smooth bag change last night. I've not been feeling myself, mental health wise, but today I've been feeling more positive about it all.
#Urostomy #Ostomate #FowlersSyndrome #InterstitialCystitis #Ostomy #OstomySurgery #EndTheStigma #MentalHealth #spoonielife #bodyconfidence #I#icandothis