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I’m here because I’ve been disabled my entire life as a result of being born prematurely. I struggle daily with remembering things, being slow mentally and physically (even though I’m not in a wheelchair or anything), my balance. #braindamage #slowlearner # #MildCerebralPalsy #Introvert


Living with FND without realising I had FND Part 2 #FND #ChronicPain #braindamage #FuntionalNeurologicalDisorder

He explained FND is a neurological disorder where you have limb weakness, numbness and pain it’s a real problem and it’s not imagined. It is a problem with the functioning of the nervous system, it’s a problem of the way the brain sends messages to the body, it’s like having a software problem rather than a hardware problem on a computer. Having shown my brain scan there is a spectrum of white which is said that bit of my brain doesn’t work anymore so the scan shows physical damage and there is no treatment to cure that bit but I can try help by getting help from professionals to help train my brain if possible.
FND explains so much more then just the physicalness like the weak and numb leg, but also why I’m constantly tired dozing off when I want to; having a bad memory; Déréalisation episodes; Foreign Accent Syndrome (explains why I haven’t been able to get rid of the English accent although having heritage and being there I should have gotten my Australian normal voice back since being back in Australia years ago but my brain is sending different signals and basically I’m stuck with the English unless my brain says so); word finding difficulty; needing to pee so much in a day on some days; both legs jerk and twitch randomly.

I can’t cure the brain damage that is done but I can train my brain so will be finding the right professionals for that and be working on hopefully bettering my life before the damage gets worst later on in life.

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Living with FND and not realising what was happening. Part 1 #FND #ChronicPain #braindamage #FuntionalNeurologicalDisorder

I only just found out I have a neurological disorder called Neurological Functioning Disorder (FND)
Had I known about it years ago, no, but the symptoms were there.
I’ve been living with major back pains for a few years now although having bulging discs and a very slight hip tear it should NOT cause my leg to be weak and numb and make my walking life a living hell.
Many times I’ve been up to hospitals and also having a inpatient hospital visit for a week due to this because I was not able to move my leg at times throughout the day and it kept happening and worsening. I had no idea what was going on with me all I did know was that I was sick and tired of this day in and day out my left leg would be numb, weak, tingle, get frozen cold, I even have to lift my leg up if I wanted it crossed over my right leg, when walking the leg will drag behind me also at times which my physiotherapist told me was minor foot drop, and trying to strengthen the leg up and it wouldn’t so I be living my life with a weird leg walking like I’ve got a carrot up the ass and my minor foot drop.

But guess what although having many many scans done of my lower back and not finding any nerve impingement or major bulge discs to be causing this it just wasn’t making sense, I first went to a neurosurgeon, 2 of them to be exact, and they did nothing. Then I got referred to a Orthopaedic who specialised in hips because dad has hip problems that could be genetic and boy were they genetic, I got his hip displasia and a slight minor tear. But still nothing to be causing my leg problems. My Orthopaedic referred me to Neurologist he did a EEG on my leg to check the nerves, that test came back normal so he actually sent me for a full body scan Brain to just above the L5 disc (as L5 down had already been scanned many times)
Scan results came back my upper spine and neck were perfect, but my brain was not, I have a bit of brain damage it’s only minor at the moment and it was then he diagnosed me with FND and asked questions on how my childhood had been, so scared to tell a stranger the past but he is a dr and needed the root of things, I told him my past traumas, getting bashed up in and out of school and hitting my head open numerous of times during that. I did forget to tell him the minor concussions I had playing soccer which would have probably contributed to the worsening of this condition.


Totally Changed #

I miss the person that I used to be, having acquired brain damage has made me feel like a shadow of my former self I now get crippling migraines that can last for days, slur my speech when tired or emotional and terrible short term memory which is on it's own a lot to deal with. When you add in living with severe pain due to a road accident which left me with a fracture spine, broken pelvis and both legs two breaks in one leg and one break in the other for 40 years. Some days I think what's the point of being here

#MyPainPointOfView #braindamage #Encephalitis

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How many of you are #MDswithoutalicense ? #ChronicIllness

It’s no longer my #LLMD (Lyme literate medical doctor) deciding on treatment plan options for me, it’s me telling him what #MedicalTreatments to try next. I’m the one doing the #Research so why aren’t I getting paid? I am, after all, a smart girl (that’s what my doctor calls me). 🤷‍♀️#LymeDisease #Bartonella #MCAS #braindamage #Inflammation #LymeArthritis

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#Encephalitis #braindamage

I feel like I'm loosing my mind at times since I had viral encephalitis, between the migraines, epilepsy, and pain at times i honestly honestly feel like giving up