Encephalitis

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Encephalitis
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    Three Chronic Woes #chronicallyill #ChronicIllness #overwhelmed #Neuroendocrinecancer #ME myalgic encephalitis #EhlersDanlosSyndrome

    How do you cope when it is ALL coming at you at once? I was once a very independent, successful, super type A, corporate America gal who was so capable. Three chronic illnesses later I am exhausted, always battling brain fog, and my past coping mechanisms no longer work. Very quickly my life has spiraled out of control & I am feeling in such utter chaos that I don’t know how to right the ship. #hopeless #needhelp

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    Apprehensive

    So today I went to my gastroenterologist and found out I need further evaluation to rule out conditions before settling on ibs and treating that with antispasmodics they said I definitely am a zebra with the complexity of issues autoimmune cardiac mental health and so forth And though I said it in jest it's actually covering up insecurities and paranoia that I'm a fraud and my illnesses are not valid despite true symptoms and extensive meducstins and hospitalizations and procedure ice come to doubt myself because of doctors initially saying fibro and myalgic encephalitis don't exist as a teenager when I just wanted to feel better regardless of it's was mind or body driven but with the schizoaffective this has be become a deep seated paranoia that my doctors are out to expose me as delusional for there own laughs reality testing tells me this isn't true but feelings hard to shake the tests are producing a lot of anxiety like are they giving me placebo is this all a test I know it's just my diseased mind conjuring up these thoughts but his do you other "mighty warriors" cope and quell the obsessive tape of uncertainty playing in your head #schizoaffective #POTS #ChronicFatigueSyndromeampME #granulomaanulare #Zebra just want be back on the Oregon coast so ill try to meditate on that to get to sleeo

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    Be Fearless

    What to know more about side effects after encephalitis. #Encephalitis

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    Has anyone experienced trauma from childhood chronic illness?

    I try searching for stuff about it online, but it’s usually like how trauma can cause chronic illness. So the experience feels isolating.

    I’ve been chronically ill since the age of 5, starting with PANDAS (often called BGE). Which is basically brain damage caused by strep throat that gives me ~lovely~ mental and neurological issues.

    And, of course, in true chronic illness fashion, I have since gained more diagnoses, including PTSD.

    And I feel like the actual chronic illnesses that have plagued basically my entire life + how they (and I) were treated because of it: medical neglect, medical abuse, bullying, loss of a normal childhood, etc, has led me to develop a unique type of trauma.

    #PANDAS #PANSPANDAS #PANS #bge #Encephalitis #OCD #Tourettes #PTSD #CPTSD

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    Autoimmune encephalitis

    Anyone else have this awful disease? I feel so alone

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    Hi there

    Hello, I just downloaded the app. I struggle with anxiety, depression, and insomnia. I have chronic back pain which has taken many of my outlets away. I have been diagnosed with a short term memory and a cognitive verbal disability, which stems from encephalitis meningitis.

    Most days I’m okay, but when I get into a “funk” it is hard. I just want to sleep and not get put of bed. I’m trying to embrace friendships (I don’t let many people in) that I have and allow myself to not worry about others opinions and just have some fun. I just want to live life to its fullest.