My new book Day by Day: Emotional Wellbeing in Parents of Disabled Children is published on Friday 7th May.
I felt the wellbeing of parent carers was rarely considered by professionals, society or even the parents themselves.
I have been researching emotional wellbeing for the last four years. As a Counselling Psychologist and Parent Carer to my son, I wanted to share what I’ve learnt along the way to:
🌿 ensure no one felt alone in their difficulties
🌿 give voice to the many difficult emotions Parent Carers can experience, often all at the same time. It really is a rollercoaster
🌿 share what other parent carers find useful
🌿 bring the research, which is often inaccessible, to parents
#parentcarers #Caregiving #Caregivers #Caregiversupport #Caregiverstress #parentcarerwellbeing #specialneedsparents #autismmom #SpecialNeeds #SpecialNeedsFamilies #SpecialNeedsParent
My wife is in excruciating pain, agony and her body is atrophying. Seeing her in such a state I suffer... seeing me suffer she wants to separate... she further says she suffers more on my count and my seeming inability to support her emotionally from my own incapacitated state ...My suffering compounds and multiplies. For I still love her. Stewing in a toxic cocktail of suffering... death will be so redeeming... for her... for me 😢
#criticalillness #Caregiverstress #SuicidalIdeation #suicidal #Depression #Loneliness #Grief
I'm almost 39. I'm married and I have kids. But I want to run away. Not from my family, but from the pressure. I'm not affected by the coronoavirus physically, but after months of losing basic freedoms my family and I rely on for sanity and self care, I'm so anxious that I'm struggling not to scream. I completely support the idea of face masks, staying home, social distancing, etc. But these things that are helping others stay healthy are causing problems for mine and my family's mental health. My son, who is not yet 10, said he wanted to hurt himself today when I told him he wouldn't be able to go back to school. My 16yo daughter is at risk of not graduating from high school because her IEP can't be fulfilled this way. This isn't temporary anymore. I can fake being ok, but inside I'm so anxious and angry I could tear my own skin off. ##COVID19 ##covidanxiety #CPTSD #Autism #Autism ##Caregiverstress ##Caregiver ##Depression #Depression ##Gifted #Gifted ##SuicidalThoughts
Don’t you just love it when someone says “Whatever” when they cut you off from a conversation? No one likes a “Kvetch” and can’t be bothered when you start talking about your #ChronicPain and #InvisibleIllness , but to be so judgmental and rude just adds to my #AnxietyDisorder and #Depression ! I’m not even given the opportunity to respond because suddenly the phone goes dead! How do you handle someone who is so snide and sarcastic? In my household there are two ##Disabledandalone adults trying to deal with their own issues, so who can I depend on if not for myself? My then 59 year old husband suffered a #Stroke and it’s been 3 years and he still won’t walk and I’m in #ChronicPain all the time but whenever his aide doesn’t show up, then I become his #Caregiverstress , which is WAY TOO MUCH for me to handle, any suggestions would be greatly appreciated!
#Caregivinglife #Caregivingtips #Caregiversupport #Caregiverstress #Caringforthecaregiver #caregivingparents #medicalparents #selfcare #Caregiving #AfterYourChildsdiagnosis #Caregiving