Chronic Fatigue

So I am in university, and doing it remotely for my own sanity and management of time. But I should be off worrying about it by now because I get my tests early and after answering them I send them to the accessibility team so they correct it. We have into the second block in this semester until the 12th, but I’ve sent my tests back almost a month ago, but I’ll have to wait the deadline hits so everyone submitted theirs and they correct our tests and give feedback. But that’s not the issue.
The issue is getting a very tight time on a project that’s “Sustainable Development and Social Impact”, and it’s a pain in the butt honestly.
The topic and idea are good, I’m not gonna lie. But forcing a very tight schedule to students that probably are more worried about other stuff being them remote or going to uni won’t help. I’m doing the project in spite when I do like going through the topics that are on “the table”. I’d love to develop something to help my community, but giving me 15 days to finish something is just a nightmare. Not only mentioning how my teacher loves putting photos around and me being blind, going through the page of the project tool and hearing “clickable, clickable, clickable, clickable…” for about a dozen or more times. Why you demand a project on helping communities if you don’t even make your tool accessible? Gee

#Depression #ChronicFatigue #AutismSpectrumDisorder

I’ve been very upset lately, and sometimes I don’t think I have the right to be upset, because I get upset at the fact I’m smart, but I feel lonely with my mind. Even to the people that might pay some attention to my hyperfixations, I can’t talk to anyone about the greek alphabet, word morphology, other languages I’m learning, cultural shocks within books I read. I’m the person they’ll reach out when wanting to know a historic moment or nuance, but they won’t pay attention to all the history I have to share to make that moment contextual. I retain too much information in my brain, and it’s lonely.

We went to the beach the last two days, for a moment I wasn’t alone with my thoughts, with my loneliness, with my fatigue. I could hear the sea, feel the sand on my feet, the touch of the waves coming while I went into the sea. My mind was in peace, the nature, the inputs were enough to keep myself at ease, and I hate beaches mind you, I usually go for specific reasons and plan on being in the sea almost all the time. As soon as we packed and started heading home, I was again there, with my thoughts, with my knowledge, and nobody to share it to the extent I would feel excited sharing.

People want to have a high IQ, to have high abilities, I tell you that, that’s a curse most of the time, sometimes I wish I was ignorant, that global news wouldn’t affect my worries for example, that I wouldn’t see patterns in situations, I just wish I could relax sometimes, I just can’t, knowing too much is a pain, and if you want to share this pain, they say it’s patronising. I once told I’ve been bullied my entire life for being smart, I was invalidated, like it shouldn’t be such a problem to be bullied for a sharp mind.

Hi, I'm Amy Leiker.

I never set out to invent anything. I just wanted to make life hurt a little less for the people I love.

My son was diagnosed with arthritis at only 9 years old, and his dad lives with multiple chronic illnesses, autoimmune disease, and daily pain. I’ve watched the two of them navigate the kinds of challenges most people never think twice about — bending, reaching, lifting, even getting through routines that shouldn’t require courage. When you live around chronic pain, you learn quickly that it’s not the big tasks that break you down. It’s the small ones.

The moment that changed everything for me came from my aunt’s neighbor, a wheelchair user, who told her he could no longer care for his cat because he couldn’t reach the floor-level litter box. He loved that cat. But the setup was inaccessible, and he didn’t want to keep asking for help. His story stayed with me — because I knew too many people who lived in that same quiet struggle.

That’s when I created LoftyLoo Elevated Litter Box. Not as a company, not as a business plan — but as an accessibility solution no one else was building. For me, LoftyLoo isn’t a product. It’s a mission to protect dignity and independence, to support people living with chronic pain or mobility limitations, and to make sure no one has to choose between their safety and the pet who makes their world feel whole.

I believe accessibility starts at home, in the overlooked details that shape our everyday lives. And I’m committed to making those details kinder, safer, and more possible for the people who need it most.

So happy I found this group! Elevate your day! LoftyLoo Love.

#ChronicFatigue #ChronicPain #Arthritis #EhlersDanlosSyndrome #Caregiving