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F#@k my luck

I spoke with my doctor today to talk about the test results that came back about a month ago. We discussed #CrohnsDisease , #InflammatoryBowelDiseaseIBD , #Migraine and #constipation
He said he didn't want to diagnose the Crohn's and said I likely have it but he's just going to call it IBS instead. I'm very frustrated. He wrote a script for mesalamine. I dunno, I'm just frustrated.
We have tried so many different meds for my migraine over the last 7 years and he was really just stumped on what to do. He decided to write a script for 400mg riboflavin. If it doesn't help within a week, he's gonna send me to a migraine specialist. So we have our fingers crossed.


Advice for being aware of your body's needs

Sometimes, Autism means that I'm so wrapped up in my internal world that I don't notice that I am constipated until I start suddenly having severe abdominal pain from not having a good bowel movement in what is maybe... four days? Like I said, I wasn't keeping tract >. #ADHD #constipation #interoception

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Chronic adventures

Well, I guess my b12 is super low. Why? I have no good reason. Wait, AND Glossitis!? Just another day in my wacky world of chronic adventures!! Waiting for the last test to come back, so this waiting is done. For now. Yah chronic sh*t! #forreal #ChronicPain #ChronicIllness #Erythromelalgia #RareDisease #Colectomy #neuromodulators #Arthritis #IBS #constipation #Migraine #Disability #MentalHealth #Depression #Anxiety #PeripheralNeuropathy #Undiagnosed #raynauds #Hypertension #GERD #Heartburn #glossitis #Inflammation

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Yet more disappointment.

OK, this is about bowels & IBS, so "look away now" if you don't wanna see. Also it's a tad rant-y!
I've had IBS for maybe 20 years now. The constipation has got worse over time, & any time I mention this to a healthcare professional, I get given an "IBS factsheet." The first time I got one, maybe 10-15 years ago, I was like "right, gonna do this stuff."
The constipation would remain the same, as would bloating, gas, cramps, urgency etc.
The 2nd time I asked for help I got given the factsheet too. I was slightly less enthusiastic. So fast forward to now. Surprise! The constipation is even worse. The internet exists. The Mighty exists. The ability to print off the f****** factsheet yourself exists.
I managed to speak to a lovely emergency doctor, who referred me to the "community bladder & bowel clinic." I've just got back now. The specialist nurse took an impressively detailed medical history. She was also very thorough physically, if you know what I mean. So what do you think she did after asking all these questions? I'll give you 1 guess.

She gave me an almost identical factsheet to the first one I was ever given. Newsflash - I'm already doing all the stuff. For maybe 5 years now. Also it would take literally 5 minutes to find on the Internet, not 3 months, which is how long I waited to see her. After I'd done crying, I wrote this. Thank f*** for The Mighty, eh?

#IrritableBowelSyndromeIBS #AcidReflux #Fibromyalgia #ChronicPain #ChronicIllness #GastroesophagealRefluxDisease #constipation