acid reflux

Join the Conversation on
acid reflux
421 people
0 stories
65 posts
  • Explore Our Newsletters
  • What's New in acid reflux

    Gotta catch ‘em all

    The last few weeks have been particularly hard on me.

    Mentally, I’m mostly okay. Physically, I’m not. And that’s caused me to question a lot of things, wonder how it got to this point, increasing the severity of incidents where I won’t take painkillers.

    I’m being referred to cardiology for a tilt table test.

    In April, I was told I had low blood pressure but they didn’t seem too worried. At the end of May after worsening lightheadedness, I was told the same, and I was basically just told just to eat more and take iron supplements. And then last week, I went back again.

    I initially made the appointment for something else a month before (I had to wait for a month), but then the lightheadedness got worse, so I told them about it again. I told them I had taken iron supplements, I was eating healthier than ever, I was staying hydrated, I was staying active, I was just really doing all the right things. And again it was low.

    They’ve diagnosed me with postural hypotension in the meantime and told me to try compression socks for a week, and then if that didn’t work to call them and they’d refer me. So here we are. I get to have a blood test in September while I wait to be seen.

    My sinus issues had a major flare up. I was so miserable with it that I sent a email basically begging them to give me an appointment (I was referred back in February but waiting list is apparently a year) because it was beginning to affect my mental health, and I get to see them in October.

    It’s affected my hearing, so I had to chase up my ENT appointment. I hope it is just the sinus issues causing it, and not a third relapse of my ear problem, especially as everything seemed perfect last time I saw them. It would be nice to celebrate the first winter in 11 years without an ear infection.

    And then of course, my referral for heartburn/ acid reflux. I see the doctors for a one-month review, which will end in the referral they wanted to do (because I had suffered for at least 5 years w/out diagnostics) but held off on. The medication they put me on has somewhat helped, but I’m still having to take gaviscon most days.

    Finally, the chronic pain. It’s been difficult these past two days, and after (stupidly) lifting a sofa up because the cat pushed her toy under it (and then she herself went under it so I had to call my sister because I physically couldn’t lift it for much longer), it’s been worse. I still forget that I’m not really supposed to do things like that, and I always pay the price (pun not intended, but yeah cause volatarol is expensive).

    I’m just really very tired. I remind myself it could be worse, which is probably what has helped me stay positive and mentally mostly okay, but sometimes it gets to me. Particularly when it’s yet another tablet added to my daily medication. It makes me tired, and I think “it only gets worse as I get older”. I want to stop them, but I know I can’t. I ended up in hospital the last two times I did.

    Or another time it bothers me is when everything is getting worse/ is bad/ is happening all at the same time. This post doesn’t even cover all of it, but at this point I’m too tired to write anymore. Speaking of tired, I’ve only had 5 hours sleep each day for the last 3 days. I wake up early and then typically can’t get back to sleep because of pain and insomnia :))

    #ChronicPain #Depression #GastroesophagealRefluxDisease #Heartburn #AcidReflux #BloodPressure #Lowbloodpressure #PosturalHypotension #Hospital #DoctorsAppointments #Doctors #Sinus #HearingLoss #ent #cardiology #Hearing #Medication #MentalHealth #Pain #BackPain #Insomnia #Painsomnia


    Uphill battle

    Bit of struggle again.

    My hearing is going again. The doctor doesn’t seem bothered because it’s not blocked and doesn’t look infected, and said to come back if it continued. It’s already been a month with it and it’s not gone away. Its incredibly frustrating when it goes. Its disorientating. And surely no visible cause is concerning? Especially given I haven’t made it a year post-op yet.

    My heartburn and acid reflux have taken a sudden turn for the worse, around 5 years into suffering with it. I was almost constantly taking gaviscon over the last few days after I came back from my holiday, so I booked an urgent appointment because I couldn’t live like it when it was affecting my sleep too. I’ve got a prescription and they want me to have a OGD. I don’t really see why, because it’s genetics.

    I also caught covid again. I went out to a concert and that’s all it took. I however kept testing negative from the Tuesday I first was symptomatic, until the Saturday when I finally tested positive. The one time I went out somewhere that had a lot of people. (Disclaimer: I am fully vaccinated, have the booster and I had covid before (another disclaimer: back when the vaccines weren’t around and my entire family were basically key workers)).

    Also had a bunch of other minor illnesses and general conditions/ chronic pain I have getting worse. I think it’s gonna be sick girl summer.

    #ChronicPain #BackPain #HearingLoss #GastroesophagealRefluxDisease #Heartburn #AcidReflux #COVID19 #Postop #ill #hardtimes


    No help for you! Love, NHS.

    From April to November 2021, I sought help. I sought it for so long that things settled down by themselves. So when I finally saw a consultant, he thought that was just great. No further examinations needed, eh? That failed endoscopy you had? No need to reschedule it! Everything the previous consultant suggested (due to a series of mishaps, I ended up seeing a upper GI consultant, not a lower GI one) he said didn't sound necessary.

    As someone who lost a lot of weight last year & who has fibro, causing chronic fatigue, I've also had to give up wheat & dairy. Upper GI consultant "I recommend seeing a dietician."
    Local NHS services - "Screw that. Referral denied."
    I thought if a consultant suggested you get a procedure, you got it. I didn't even know referrals could be denied. I swear it feels like the NHS is dedicated to shutting me out for as long as I live. #AcidReflux #IrritableBowelSyndromeIBS #GastrointestinalDiscomfort

    1 comment

    Explaining pain?

    Does anybody else have trouble explaining pain to Drs & others? I sometimes find it hard to put my pain into words. Doctors seem to have a select number of categories for pain. Burning, stabbing, pounding,pins & needles, shooting, sharp, dull, ache. Sometimes none of these apply and sometimes all of them apply. I've found people as well as Drs are dismissive if you can't fit your pain in one of their boxes. #Gastroparesis , #ChronicMigraineSyndrome #DiabeticNeuropathy , #occipital neuralgia, #Fibromyalgia ,#PrinzmetalsAngina , #costrochondritis , #hiatlhernia , #AcidReflux ,


    Yet more disappointment.

    OK, this is about bowels & IBS, so "look away now" if you don't wanna see. Also it's a tad rant-y!
    I've had IBS for maybe 20 years now. The constipation has got worse over time, & any time I mention this to a healthcare professional, I get given an "IBS factsheet." The first time I got one, maybe 10-15 years ago, I was like "right, gonna do this stuff."
    The constipation would remain the same, as would bloating, gas, cramps, urgency etc.
    The 2nd time I asked for help I got given the factsheet too. I was slightly less enthusiastic. So fast forward to now. Surprise! The constipation is even worse. The internet exists. The Mighty exists. The ability to print off the f****** factsheet yourself exists.
    I managed to speak to a lovely emergency doctor, who referred me to the "community bladder & bowel clinic." I've just got back now. The specialist nurse took an impressively detailed medical history. She was also very thorough physically, if you know what I mean. So what do you think she did after asking all these questions? I'll give you 1 guess.

    She gave me an almost identical factsheet to the first one I was ever given. Newsflash - I'm already doing all the stuff. For maybe 5 years now. Also it would take literally 5 minutes to find on the Internet, not 3 months, which is how long I waited to see her. After I'd done crying, I wrote this. Thank f*** for The Mighty, eh?

    #IrritableBowelSyndromeIBS #AcidReflux #Fibromyalgia #ChronicPain #ChronicIllness #GastroesophagealRefluxDisease #constipation

    See full photo

    GERD and POTS problems

    For those who have GERD (acid reflux)/ food sensitivity and also have a illness that requires a special diet how to you work around it? My antiacid makes things I’m fine with sensitive but a good amount of the food they need me to eat I can’t. I try to avoid my trigger food as much as I can(which is a good amount of food) and I’m struggling to find things to help out. Any advice/tips would be wonderful. #GastroesophagealRefluxDisease #PosturalOrthostaticTachycardiaSyndrome #AcidReflux #IrritableBowelSyndromeIBS #Undiagnosed #ChronicIllness #AutoimmuneDisease


    The fear in waiting.

    I just had an #Endocrinologist appointment that ended with bloodwork. Now I'm in that dreaded stage of waiting. I may have had every single symptom that checked the boxes for an endocrine problem, specifically #CushingsSyndrome , but you know... that's happened before. As someone who has spent their entire teen and current adult life suffering through doctors and their tests, most of them coming back negative, I'm used to this. But this time...I really need to have an answer. An answer with a solution, no more incurable diseases. If its Cushing's, which I hope it is, I'll just get the snip of a benign tumor and return to my typical homeostatic state of #EhlersDanlosSyndrome . I really just need some support during this time, and good vibes I have solid answers instead of "rule outs." #ChronicIllness #ChronicPain #Asthma #HypermobileTypeEDS #IrritableBowelSyndromeIBS #AcidReflux #GastroesophagealRefluxDisease #BellsPalsy #Tachycardia #CheckInWithMe #Undiagnosed

    See full photo

    #tiredoffighting #CheckInWithMe

    Today is one of those days where everything just sucks. It starts off with a conversation I'm having about my passion for improving my workplace with my girlfriend ending in a lack of understanding and words my mom says that is often followed in the next hours/days with gaslighting and passive aggressive statements.

    Then it carries on with a poorly tracking knee and hyperextended elbow, headache, and overwhelming fatigue. This fatigue has been growing so much and triggering other symptoms. But, I gotta help clean the house because my mom is leaving for #BreastCancer check up for a few days.

    I do that and then go to my orthopedic appointment, who while unable to help with current muscular pain did finally perscribe me pain medication for 9-10 flare days. (Heck yeah!) But he's concerned with the increasing fatigue, dysautonomia, and need to rest for hours to days on end. So, once again I'm referred to a specialist, an endocrinologist.

    So I may have #CushingsSyndrome , which would explain a lot yet is ANOTHER DANG THING I have. I don't understand why there is not a cap on what us mere mortals can endure. I'm just so tired. All the time. And nothing I do can really help other than attempt rest.

    I need to find my hope again today, cause really I'm not seeing it. #EhlersDanlosSyndrome #Dysautonomia #Asthma #AcidReflux #ChronicMigraines #ChronicPain #ChronicIllness #HypermobileTypeEDS #Fatigue


    Just Nighttime Thoughts

    You know, sometimes I just feel lazy in my pain. I feel so fatigued that I don't make the effort to stop it but rather just wallow in it. But I'm wonder why I even do it. I truly don't have anything to stop the pain. NSAIDS work a little but if I take a lot I get rebound headaches. Cream and lotions do a bit, TENS unit, heat, and ice do a bit. But nothing eradicates it. Because of my low NSAID usage, doctors don't believe I qualify for higher pain medication.
    However, like I wonder, why even try to alleviate pain temporarily if nothing works? That's a spoon or two of effort I could save.
    Can anyone else relate, or am I just unmotivated?
    #EhlersDanlosSyndrome #hypermobileehlers-DanlosSyndrome(hEDS) #ChronicPain #ChronicIllness #MentalHealth #CheckInWithMe #PseudotumorCerebri #Tachycardia #Asthma #IrritableBowelSyndromeIBS #AcidReflux