Coronavirus Disease 2019 (COVID-19)

It took literal years to get my POTS manageable. I had to fight with insurance to get my medicine at an affordable price. Last year I was finally able to get it and was able to be come mostly stable. Then, after avoiding it for 5 years, COVID finally caught up to me and I tested positive for the first time. Since then my POTS has worsened and my treatment isn’t effective. I’ve been to see the cardiologist and had tests done. Waiting for a return call because based on the note I read in my patient portal they will probably increase my medicine to hopefully get it back in control. I’m just frustrated and other emotions I don’t have words for. I don’t have a specific reason to post other than to vent, give a heads up to others, and just tell someone who understands.

Hello everyone, I have been dealing with long Covid since February 2024. I have gotten better since but still have several health issues and bad flares almost daily.

I have been doing alot of reading on the connection between chronic stress, childhood trauma, and chronic illnesses like long Covid. I believe my long Covid symptoms got significantly worse after periods of chronic stress and trauma.

I know that my nervous system was hanging on by a thread before I had Covid. I believe I got long Covid partly due to the virus and due to previous trauma in childhood and adulthood.

What do you guys think of this idea? Do you think you were struggling emotionally or mentally prior to having long Covid? Did you have years of chronic stress and trauma as a child? I want to hear others experiences

#longcovid #Childhoodtrauma #ChronicIllness #Healing

Hi, my name is OrangeCatzMama. I'm here because I am one who was born with fibromyalgia. I also have full body arthritis in every joint, this was found at 43. My pain level was bad at that time, but I just kept pushing on. It took me blowing out 3 cervical disks at once to bring the Fibro to the top. That's when I was diagnosed with fibromyalgia, but the doctor soon figured out that I had had it all along. All my weird "quirks" weren't me seeking attention, but were things that I actually felt. Duh? Now, I'm a widow, I was not able to conceive due to endometriosis, so we had no children, nor did I have siblings. My parents passed in 2010. My husband in 2023 from Alzheimer's. He had 3 children, but only one has really kept in touch, with me regularly since he died. My husband's sibs have not made any contact with me since his funeral. There's no attempt to understand my pain issues. The oldest daughter (& son hasn't spoken to me since he left the cemetery in 2023) accuses me of not trying to be with her, always being late or cancelling out, blah, blah. Okay, we all know how cold weather, holidays, anxiety affects our Fibromyalgia. To top it off, I have to drive over an hour, heavy traffic (panic attacks) to get to the Thanksgiving meal at Noon. I went out on disability in 2008 for the Fibromyalgia, nerve damage, inability to work. Also, the family that I am going to spend the holidays with is my late husband's ex-wife's HUGE FAMILY!!!🙀🙀 I only know like 4 of the sisters, but have NO IDEA WHO the others are! We were married 34 yrs. They were married 11 yrs. We were not always friendly, but after their last daughter became an adult, things got better. After my husband died, they opened their arms to me to come to their meals. I also suffer from paralyzing anxiety when I am in closed-in crowds, like in a house or small room with a bunch of strangers. As long as I had my Daddy, then my husband to be with, I could control the panic. Now, both of them are gone and the anxiety keeps me home a lot. I'm realizing how bad my anxiety has gotten again just recently. Sorry, I just needed to vent my frustration with my step kids not caring or trying to reach out to me. But I am told by them that I am supposed to be making the effort to do their plans, without regards to my "convenient & not so bad" pain. The oldest daughter has some strange ideas about illnesses, self healing through diet, positive thinking would make my "pain" disappear, she's very diabetic but refuses to see a doctor or take meds for her condition. She got into this weird thinking during Covid. It's just getting more bizarre, but she won't listen to anyone else. She's right and we are all wrong! 🤬🤬🤬 Sorry this is so long.

#MightyTogether #Fibromyalgia #Anxiety #Depression #Grief #PTSD #Migraine

5 ways to reduce COVID holiday disappointment for kids
5 ways to reduce COVID holiday disappointment for kids

Hi, my name is thatssosick. I'm here because I've had Long Covid since 2020 and am looking for other people and resources to help my symptoms and coping.

#MightyTogether

Hi, my name is Lynnwashere98. I've been diagnosed with anxiety, depression and PTSD. I have always struggled with this and especially since my dad passed away in 2018 and Covid, I've had a really tough time being able to take control of my life. I am a bit lost career-wise and much more but I am just in a weird limbo. I moved away from my hometown with my husband to his hometown and have no friends or support system where I currently live. Just trying to navigate life in my mid-twenties and figure things out.#MightyTogether #Depression #Anxiety #PTSD #Grief

Hi Everyone- I was hospitalized with covid pneumonia in Jan 2021 and recovered. In March 2021, I got long covid. Since then I have been experiencing multiple symptoms from PEM to CFS to Fibro etc... Last week I experience a new side affect. I woke up with puffy eye lids and hives under my left and right eyes. Has anyone else had this?