So my EEG is finally happening. Having to carry around a backpack for wires and stay in front of camera. With the episodes happening as often as they do I hope they find something. Anxiety is no joke when it comes to this sort of thing. At least back pack is a frog, I guess? Kind of reminds me of tick tock from return to Oz though the more I look at it. I am hoping to get medication and the episodes under control. #Undiagnosed , #EEG
I got a lumbar puncture yesterday and it was absolutely horrible. I knew there was a chance it would show up clear, and it did, but I’m so upset. I felt like it was so scary and painful to do, just to feel like we’ve gotten no further. I’ve had a EEG and an MRI. Both clear. I’ve been sitting here just waiting to them to figure out what’s going on and I’m starting to doubt I’m sick. Maybe I’m just crazy. Or incredibly lazy (unintentional rhyme)! I don’t know how to believe myself and I’m losing faith in my mom that she has the right diagnosis.
I’m going to be having an eeg test soon for the first time. I just found out its a sleep deprived one.
Have you had this test and can you tell me your experience with it? I’m wondering why the neurologist ordered this kind (sleep deprived) specifically.
I’ve had a rough couple of weeks, mostly with my seizures. I’ve been fighting stomach issues forever, but it has been so much worse in the last year. I have an #EEG next week and a #Colonoscopy the following week. I need some answers…that’s something I struggle with the most. I am tired of doing endless medical testing to find nothing to explain anything. I’ve had enough, so any positive thoughts and/or prayers you can throw my way would be greatly appreciated! #Epilepsy #Needanswers #SoDone #mysteries
About 2 months ago I started seeing a new Neurologist...I've been having migraines since I was 7 and having seizures since I was 8...Having been twelve years since I began having seizures I still wasn't technically "epileptic" (as my former neurologist didn't believe I was)...My new neurologist then suggested a five-day epilepsy study and I happily agreed (as maybe I'd finally find something out)...And the results shocked me.
After the first day of my study, I expected my neurologist to say I was seizure-free (as I didn't feel like I had any that day), but I found out that I was having small 1-5 second seizures very often throughout the day, and having much longer 30-60 second seizures while sleeping!!
After the study was over she told me there was zero argument, I was epileptic...And even though we didn't find a trigger for my seizures, it was still somewhat comforting to know that I had proof of my seizures (as I've been doubted by nearly everyone)...The only thing left is finding out when I'm having these seizures (as I don't even notice) and then finding out what is specifically causing them...
Does anyone have any tips to stay awake I’m currently struggling bc my anxiety has been horrible and making me mentally exhausted I have to be sleep deprived I have to stay up till 12 a.m and go to sleep then and wake up at 4 a.m. if anyone has tips that works that would be amazing! #Epilepsy #EEG #Anxiety #SeizureDisorder