I’m so confused. Just spoke to neurologist, who didn’t have my notes up so explained that pain management consultant diagnosed me with fibromyalgia in January-taking me off all injections and weaned off medications for chronic migraines. I described symptoms in between migraine attacks and that they intensified when having migraine attack. I reduced amitriptalyn and came off pregabalin as advised by Pain management and she said I can try and go back on them. 🤷🏻♀️ offered me Goni injections again although we discussed that these aggravate fibromyalgia and make migraines worse. Referred for vit b 12 and thyroid blood test. And on waiting list for Ajoy. She ended by saying the pain you have is all ‘just fibro’ related and the patients that have best results with fibromyalgia take control of it.
So basically I feel like what I’m doing is not good enough although the amount of research I’ve done and totally changed my lifestyle, diet, routines, supplements and withdrawals from pain medications, pay loads out on alternative therapy, reduced working hours. All since January.
I know I’m doing my best, it’s a working progress for sure.
How long did it take you to get a real grip on fibromyalgia symptoms to manage it in a ‘best fit’ way???
I needed to vent to people who know. Xxxx
#Fibromyalgia #neurologist #Medication #itsjustfibro #Allodynia