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    Community Voices


    Hi im having a brain MRI this weekend and wanted to know anything i should be prepared for. I’ve had one years ago but this one will be longer i think a hour atleast 😭 im very nervous to say the least my mom has chiari malformation and we think I may have it to #ChiariMalformation #MRI #Advice

    4 people are talking about this
    Community Voices

    what now

    just been diagnosed with fybromyalga just getting over that now today had to have brain #MRI spotted by optician pressure on optic nerve how do I keep going

    1 person is talking about this
    Community Voices

    Hand weakness and trembling

    <p>Hand weakness and trembling</p>
    7 people are talking about this
    Community Voices

    Anyone else keep things to themselves in hopes it won't upset others?

    <p>Anyone else keep things to themselves in hopes it won't upset others?</p>
    20 people are talking about this
    Community Voices

    My GP wants to call me tomorrow about "some minor concerns about the MRI results. Oh by the way its normal."

    I know I should be focusing on the 'normal' part but anxiety has seized on "concerns" and I'm fucking terrified.
    #Narcolepsy #MRI #Anxiety

    6 people are talking about this
    Community Voices

    Can someone please tell me if lorezapam is supposed to knock you right out?
    I asked the booking dept. They just kept telling me to ask my doctor. I can't get through to my doctor.
    My neighbour just got home from his MRI.
    He said he was awake through the whole thing eventhough they gave him two pills.
    My tests are rescheduled after failure the other night. I know I can't go through it awake after the last experience.

    2 people are talking about this
    Community Voices

    Does anyone know how to make duplicate copies of mri cd?

    #ChiariMalformation #MRI
    I have the one copy of my MRI images that that hospital put onto a cd for me. Now I need to make duplicate copies so that I can mail off to specialist. I own a chromebook and they suuuccckkkkk..... No media player and nothing is ever compatible with it's software, nothing....
    So would an external burner work, best buy has one that reads, writes and rewrites for $29.00. then it comes down to it's software, will it work with my stupid chromebook and will it be able to take the read the mri's format and make me some copies.
    Or is there a company that does that specific thing? Officesupply or FedEx? Or just go down to my local walgreens or Walmart and use there printing services? I read on walgreens website in the FAQ section under photos onto cd/dvd from film negatives. It was the very last sentence on the page stating...crap I forgot. Anyways call the store or something like that. Do you know how bad I would f#$k up someone day calling and inquiry about such a question?! Especially in jackson, ms. Doodoos...

    5 people are talking about this
    Community Voices

    Does anyone know how I make duplicate copies of my MRI cd

    #MRI I need to mail some off to specialist but I only have my one copy. Where do I go? Can I DIY? buy on external burner? Will the software be compatible? I own a chromebook (I hate it so bad, no media player and nothing is compatible with it, ever)

    Community Voices
    Community Voices

    6 Things No One Told Me about the MRI #MRI #Undiagnosed

    1. The sounds actually made me want to giggle. People told me it would be loud, like the sounds would be stressful and bad, but they were funny to me. I'm sure that's not a typical response, but I wish someone had warned me it could happen because I had a really hard time keeping a straight face.

    1a. I have a musical background, and was enjoying noticing different aspects of the sounds. The noises were simply something interesting to focus on. I enjoyed the distraction.

    1b. My favorite sound went click click click click whirrr whirrr whirrr whirrr.

    1c. Another interesting sound was the one that sounded like it was saying, "Die die die die die die die die die die die." I was amused because that's basically what my brain does much of the time. There's always the thought that I should die and/or helpful opportunities surrounding me with the means to do so. It feels like there is something whispering that to me all the time, so it was interesting to hear it auditorily.

    2. There is not only noise, but also lots of vibrations. I got my head scanned, but I felt sensations all the way down my back.

    3. Sitting perfectly still was not going to be a problem for me because this is what I do on a regular basis when I feel threatened, either by someone else or by my own head telling me to hurt myself. I actually felt safe in that machine. I like small spaces. I like sitting still. That is when I feel safest.

    4. I really wish they could have had a pulsox on me, so I could see how irregular my breathing was and know if when I felt like I wasn't getting enough air, if that was true. I don't feel like I was panicking because I was claustrophobic or because I was trapped; I just always feel like I have a hard time breathing when I'm on my back. Add to that the effort to lie perfectly still and not move from breathing, and I'm sure the numbers would have a wide range. I would love to see that monitored some day.

    5. Did you know that it is impossible to force your eyes and tongue to sit still? But the technician said that was fine. I just needed to make sure not to move my entire head. And I tried my darndest to avoid making facial expressions. Which was hard, because I just wanted to laugh much of the time.

    6. CONTRAST DYE WILL MAKE YOU FEEL SICK. About a minute after he injected it, I really thought I might throw up. I guess this is normal because he didn't seem phased, and calmly advised me to breathe through it. Even a half hour after I left, I still felt too yucky to eat second breakfast before work.

    And now, we wait. Will they tell me I have MS? Will the scan show no abnormalities and cause me to be diagnosed with Conversion Disorder? Will something totally unexpected come out of this test? I will not know until next week. The waiting is by far the worst part of this whole experience, at least for me.

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