Major update conclusion
(Part 2) So, where does this leave us with all findings? That's the thing. . .I got a strange call from a sympathetic receptionist a few days after the neuro appointment who seemingly understood my situation. She told me that he had reviewed my neurology report & was very interested in my case. She understood the medical gaslighting that was going on & she asked me, did your previous geneticist do a connective tissue panel? I gave the long answer of no. She told me he would like to see you when all these appointments are over because he has some ideas as to what we are dealing with here. Who was this person? The neurologist personal geneticist. All that's left besides pt is neuro follow up & I'm going to see this geneticist who is interested in my case. But you wanna know what makes him standout to me? His clinic was established as recently as 2021! 0_0
The original genetic testing didn't cover disorders of collagen function & I think I know what "some of his ideas" are. . .
All I'll say is watch this space. Summer is about to HEAT UP! Peace out everyone.