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    Trying to find hope

    I got a lumbar puncture yesterday and it was absolutely horrible. I knew there was a chance it would show up clear, and it did, but I’m so upset. I felt like it was so scary and painful to do, just to feel like we’ve gotten no further. I’ve had a EEG and an MRI. Both clear. I’ve been sitting here just waiting to them to figure out what’s going on and I’m starting to doubt I’m sick. Maybe I’m just crazy. Or incredibly lazy (unintentional rhyme)! I don’t know how to believe myself and I’m losing faith in my mom that she has the right diagnosis.

    #ChronicDepression #losinghope #MedicalMystery #LumbarPunctures #MRI #EEG

    3 reactions 1 comment
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    Normal MRI… what now?

    My MRI results came back as normal & ENT have discharged me.

    I’m not quite sure what to do. Does this mean I have to deal with migraines for the rest of my life now? My hearing randomly going? The pain and mental attacks from the increases during colds etc?

    I know, I should be grateful that it’s normal. But I’m just feeling lost and frustrated. There’s no plan now other than just having to deal with it.

    #Sinus #ent #MRI #symptoms #ChronicPain #ChronicMigraines #Hearing #MentalHealth #Feelinglost #normal #WhatNow

    1 reaction 110 comments
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    Paying for an MRI/MRA

    Hello Mighty Community! Does anyone have any advice on how to pay for an MRI/MRA? My roommate needs them. She’s on her parents’ insurance still but no one in her family has been sick this year so there’s been no movement on their deductible. It will cost her 6 months of our rent to get these done, which she can’t afford #ChronicIlless #MRI #Finances #Insurance #Health #Brain #HealthInsurance

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    MRI

    Hi im having a brain MRI this weekend and wanted to know anything i should be prepared for. I’ve had one years ago but this one will be longer i think a hour atleast 😭 im very nervous to say the least my mom has chiari malformation and we think I may have it to #ChiariMalformation #MRI #Advice

    4 comments
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    what now

    just been diagnosed with fybromyalga just getting over that now today had to have brain #MRI spotted by optician pressure on optic nerve how do I keep going

    1 comment
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    Hand weakness and trembling

    Has anyone else experienced hand weakness and tremors after a car accident? It's been affecting me for over 2 year's now and I've already seen a neurologist about it, neuromuscular specialist too. They want me to have an MRI done since they are suspecting it's my brain. They don't believe it has anything to do with my accident. But I'm not so sure. A few days after we were rear-ended I had numbness occur on my left side and lower back. It stayed that way for months. Also it sometimes comes & goes. I was left with this tremor and weakness. It frustrates me because it causes me to drop things and it shakes uncontrollably sometimes. I have to mention too that I also had a mild traumatic brain injury from the accident. I didn't know that was possible without hitting your head but when my neck whiplashed, it must've happened then. I have gotten whiplash before from other rear-end accidents.
    The MRI had to be cancelled due to my son's illness. They said it'll be necessary to inject dye into my veins in order to get the information the Doctor needs about my brain. It frightens me. I react so easily to medications & have allergies.
    What should I do? Wait and see if it worsens or get the MRI to get a diagnosis. I am no stranger to mysterious ailments and prolonged diagnoses, I have been invalidated by Doctors and suffer from C-PTSD/ PTSD. I have heard that medical PTSD is a real thing too. I suspect I have it. I lack trust in new physicians and get anxious about my treatments.
    Thanks for taking the time to read my message.
    #CPTSD #Anxiety #MedicalPtsd #handtremor #mriwithdyeinjection #MRI #trustissues #ChronicIllness

    7 comments
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    Anyone else keep things to themselves in hopes it won't upset others?

    Does anyone try to keep their emotions or physical pain to themselves?
    I try not to be a burden, but then my husband will try and make me feel better, but also make me feel worse at the same time. For example, he will tell me that im getting worse as I'm falling more, cursing more etc...but then 30 seconds later will blame it on the fact I'm not "physically fit" or that I have a "bad/poor" nutritional health 🙄.
    So today hasn't been a walk in the park like it would be for some. I've laughed, I've cried, I've even thought about the tempting idea of starving to see if that would help.
    I slipped down the stairs for the 2nd this this week, and its only Thursday!
    I'm still awaiting my results from my MRI I had a few months ago. Im praying I don't have any underlying such as #MultipleSclerosis and it is just my #Fibromyalgia playing up.
    My heads a shed, and I'm not sure what to do. I'll survive this i know i will. But like I said above, i hate to be a burden. And I'm sorry if I've upset anyone.
    #mentalhealthmatters #Depression #Anxiety #Upset #MRI #PTSD #alone

    20 comments
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    My GP wants to call me tomorrow about "some minor concerns about the MRI results. Oh by the way its normal."

    I know I should be focusing on the 'normal' part but anxiety has seized on "concerns" and I'm fucking terrified.
    #Narcolepsy #MRI #Anxiety

    6 comments
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    #Lorezapam #MRI

    Can someone please tell me if lorezapam is supposed to knock you right out?
    I asked the booking dept. They just kept telling me to ask my doctor. I can't get through to my doctor.
    My neighbour just got home from his MRI.
    He said he was awake through the whole thing eventhough they gave him two pills.
    My tests are rescheduled after failure the other night. I know I can't go through it awake after the last experience.

    2 comments
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    Does anyone know how to make duplicate copies of mri cd?

    #ChiariMalformation #MRI
    I have the one copy of my MRI images that that hospital put onto a cd for me. Now I need to make duplicate copies so that I can mail off to specialist. I own a chromebook and they suuuccckkkkk..... No media player and nothing is ever compatible with it's software, nothing....
    So would an external burner work, best buy has one that reads, writes and rewrites for $29.00. then it comes down to it's software, will it work with my stupid chromebook and will it be able to take the read the mri's format and make me some copies.
    Or is there a company that does that specific thing? Officesupply or FedEx? Or just go down to my local walgreens or Walmart and use there printing services? I read on walgreens website in the FAQ section under photos onto cd/dvd from film negatives. It was the very last sentence on the page stating...crap I forgot. Anyways call the store or something like that. Do you know how bad I would f#$k up someone day calling and inquiry about such a question?! Especially in jackson, ms. Doodoos...

    5 comments