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    I’m doing a happy dance 💃 on the inside right now! #Dysautonomia #testing #MightyTogether

    Finally, finally, I got some good news today. I’m celebrating on the inside because I got a little bit of hope restored. I wanted to share it.

    The dysautonomia test that I’ve been trying to arrange for months on end has finally gotten scheduled an actual test date.

    I know that it sounds like no big deal but to me it really is. They told me it would be 1-2 years just to get in for the test.

    I got the call today and although the test isn’t until October, I feel new hope rising. A hope for answers, for diagnosis, for something to put me in the right direction to pain relief in my body. I hope to rule something in or out, anything, just make progress of any kind, I’m so stuck in the waiting. I’m super excited to get in very soon. Even though I can’t literally dance right now (body or limbs), I can a lil, from the waist up while sitting. I can dance on the inside. 😂 Celebrate with me. #ChronicPain


    Sleep Deprived EEG Tests

    I’m going to be having an eeg test soon for the first time. I just found out its a sleep deprived one.

    Have you had this test and can you tell me your experience with it? I’m wondering why the neurologist ordered this kind (sleep deprived) specifically.

    Did it get you and your doctors closer to proper diagnosis? #EEG #testing #Nerve and joint pain #neurologist #Diagnosis #mobility #Tinnitus #Epilepsy #ChronicPain


    Dysautonomia Testing Info #Dysautonomia #testing #ChronicPain #nervepain

    Can anyone tell me how long it took you to get into or get on the appointment list for dysautonomia testing? I’m being told it’s a 6 month to 1 year wait minimum if I’m willing & able to drive 4 hours away to Chicago. It’s 1-2 year wait if willing to drive to Minnesota (several hundred miles away and 2 states over). Any other info you can give about it? Thank you for any information or advice you can share.

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    Wellness Wednesday and Health Update

    The last week has been an eventful one for me, so I want to be transparent with you.

    Three years ago, I learned that I had type 2 diabetes after a follow-up appointment for another health issue. The news shocked me, and I struggled to accept the news. Through faith in an awesome God and a strong support system, I have overcome many challenges associated with my condition and kept my numbers in range.

    Since last summer, I've learned that there are people in the diabetes community who are misdiagnosed as type 2 when they have latent autoimmune diabetes in adults.

    The more I researched about this phenomenon, the more I found that I fit many of the characteristics. I've also learned many patients struggled to get their healthcare providers to take the GAD autoantibody test to confirm their condition.

    My endocrinologist was able to perform an autoantibody test for me and I received the results last night. This morning, I received confirmation from my endocrinologist: I have LADA.

    I'm fine mentally. I'm relieved now that I know what's wrong. But most of all, I'm grateful and blessed that my endocrinologist listened to me.

    For Wellness Wednesday, I want to urge everybody with a diagnosis of type 2 diabetes to check their GAD autoantibodies to make sure their diagnosis is correct. Diabetes misdiagnosis can make your condition worse, increase your risk of complications, and prevent you from getting the right treatment.

    The following articles will give you more information about GAD autoantibodies and diabetes, which can help you make the best decision for you:

    🔹How do GAD antibodies affect diabetes?🔹

    🔹What You Need to Know About Type 1.5 Diabetes🔹

    🔹Is It Possible for Type 2 Diabetes to Turn into Type 1?🔹

    #DiabetesType2 #DiabetesType1 #prediabetes #lada #ChronicIllness #AutoimmuneDisease #AdultDiagnosis #Health #testing #MightyTogether #Lifestyle

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    Quick Tip Thursday: Diabetes Should Be Tested Every 1 to 3 Years if You Had Gestational Diabetes

    About 50% of women with gestational diabetes go on to develop type 2 diabetes.

    Test for diabetes 4 to 12 weeks after your new baby is born. If it is normal, get tested again every 1 to 3 years.

    #DiabetesType2 #prediabetes #GestationalDiabetes #Diabetes #testing #Pregnancy #postpartum

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    #Narcolepsy #Answers #testing

    Today I am going through the testing to see if I have narcolepsy. I am scared. Scared of what happens next if I am diagnosed. What will life be like? Will I be able to continue working? How does one cope? One more thing to add to my list #ChiariMalformation #OccipitalNeuralgia #Arthritis

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    Testing & saftey #POTS #Potsie #Spoonie

    Waiting room, I brought a bag of masks I made for the staff, they seemed to really like them. I'm exhausted but so happy to finally have testing done. #LivingWithPOTS #testing #waitingroom #Hospital


    #testing and other broken promises

    Where we live there is no testing going on. We haven't seen anything the President says is out there for the American people. Heck we don't even have toilet paper, hand sanitizer, aloe, or alcohol in our city. Haven't had any since about four days before the shut down. If we had the stimulus money in the bank I'd order some of the stuff we need to be delivered to our home. When are we going to get testing done? When is everyone going to get that stimulus money? When are the rural towns going to get our needs met?


    Waiting for the morning to come #COVID19 #testing #rarechron

    I'm sitting here on day 3 of feeling like crap. I'm sitting here on day five after the unexpected visit of one of my kids. I'm sitting here with my youngest and our two cats and I'm effing terrified.

    Five days ago one of the older kids popped over. They brought their new significant other to meet me. I kept asking about health safety and social distancing. I did a rewind repeat for the entire 30 minutes.

    This kiddo lives in a county that has positive testing for covid 19. Every question was an affirmation they had NOT been around anyone sick. That those they've been around were fine or tested negative. Before leaving said child wanted a hug. I mean it's my kid i didn't

    Kiddo kept saying nothing no symptoms... Not sick...Nothing to worry about. Sigh. Until today. I've been getting progressively worse and my youngest is now starting.
    I wrote my other child and asked point blank ARE YOU ...HAVE YOU...TESTED POSITIVE. HAD ANY SYMPTOMS...HOW LONG.
    Weeks now. For weeks! A dry cough coming and going. Other symptoms and had not tried to get tested...but is going around out in public and visiting.

    Now let me tell you why I'm scared out of my effing mind! My youngest has cyclic vomiting syndrome with aura migraines and abdominal migraines and since becoming a teen the cvs has morphed (like it did with so many) into a beast that isn't all about puking. Its all about so many other symptoms that have become so strong it's a vengeance. My youngest child fits the definition of medically fragile.

    Let me tell you part two of this. I have Arachnoiditis/8 herniated discs/fibro/multiple other pain conditions/ high blood pressure/a family history of heart disease and cancer/diabetes/like my kiddo asthma/cluster migraines... I could keep going. I fit the definition of medically fragile.

    I break this 3rd part like a defeated pinata. We are alone. No vehicle. No friends available near us. No family within an hour plus ride. Two cats that need care. One is old and partly blind. The other is still a tiny kitten. Our hospital with the only er in an hour's drive CLOSED last Monday!! There is nothing near by for emergencies. There is no one that can take care of our cats take care of my youngest take care and be able to bring us home if one or both of us gets admitted to the nearest hospital.

    IF you don't have to go to work then STAY THE HADES HOME!!! You don't know what kind of havoc you will cause by "visiting" people...especially the elderly the disabled the vulnerable!!! If you must go near these kinds of people DON'T touch them!!

    I'm terrified and were calling the dr tomm to request a teleconference appointment. Could be nothing...could be covid 19. We are the at risk population. We were lied to by a loved one who knew they had symptoms and came over anyway.

    I own part of it cause it's my kid we let them in and i hugged em. However on their end doing this and knowing is tantamount to something seriously freaking wrong!!