feelingdefeated

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    autoimmune disease

    I am in chronic pain daily. My symptoms points towards Autoimmune disease but no one can identify which yet (it has been 7 years and counting since first symptoms). I experience more flare-ups than remissions. Most days im too fatigued and nauseous to do anything (eat, clean, drive, walk, situp, stand, wash dishes etc). I often wake up feeling paralysis in both legs. Having to drag my legs around after some hours on the heating pad. I constantly get sent to different specialists for each symptom without anyone attempting to connect dots(have experienced inflammation in heart area, kidney area, nostrils, hips, feet,face). With a lot of unexplained rashes that turn dry and flaky on my scalp, inside ears, on face, eyebrows, outside and inside nose etc. Along with cognitive issues pertaining memory, blurred vision and headaches. Soooo much medication is thrown at me on a monthly basis and nothing is working. Slowly losing faith in my doctor. Any experienced advice or guidance would be gratefully appreciated. #AutoimmuneDisease #Undiagnosed #ChronicPain #Headaches #feelingdefeated #SystemicLupusErythematosus #MultipleSclerosis #InflammatoryArthritis #Advice #guidance #Paralysis

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    Newly Diagnosed with Fbromyalgia

    I was finally given a diagnosis! “Chronic pain syndrome, fibromyalgia, and hyper mobility.” After all this time doing tests and scans and all sorts of things and being told everything is normal I have at least something. It sucks that it’s exciting to even have a title for everything going on. I’m really struggling with knowing this is a lifetime thing and I most likely will never NOT be in pain. Like this is it? Plus I’m on my last year of insurance from my parents then I have to figure out how to pay for treatment and meds, physical therapy, therapists. I was given referrals for a chiropractor, acupuncture, massage, chronic pain focused therapist, and an evaluation from someone who deals with rehab and functionality. Hopefully we can figure out a treatment plan and start getting me into a routine with things that actually help.

    This plus depression, anxiety, BPD, PTSD, and whatever else it is at this point?? This is hard to take in already. Covid has been extremely difficult for me. Living alone is great normally but trash in the panorama. What we just don’t wear masks anymore?? I’m stressed. Thankfully I have my cat Mia to keep me company and make lots of noise. She has a very much to say!

    Any tips for coping strategies and moving forward? I would love some recommendations for treatments and things to try! What has helped you feel better?

    - Emily

    #ChronicIllness #FibromyalgiaDiagnosis #Fibromyaliga #FibromyalgiaSucks #ChronicPain #newlydiagnosed #feelingdefeated #BorderlinePersonalityDisorder #Anxiety #PTSD #COVID19 #painallday

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    Accepting Defeat

    It's very hard for me to accept that anybody in this world needs me, regardless if I've met them or not. I understand that there are things that are beyond my control, and that in some way, I have to accept the fact that I'll know defeat more than winning wars. That I'll be standing alone more often. I'm consumed with the idea that I am nothing special. In those moments, I remember why I feel and am unwanted. I'm constantly fighting in a battle where I'll always lose. #MentalHealth #Depression #feelingdefeated

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    #mylife #whatdoesshotmeantoyou

    I made this picture up to represent the fact that when I say double shot day, it’s not in the bar music playing loudly shots shots shots, shots shots shots. Many of us administer our own meds this way. I feel like toddlers have been beating on my legs with all the bruises I have. #makeitstop #Migraine #ChronicMigraines #nausea #Fibromyalgia #ohsotired #feelingdefeated #myeverythinghurts

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