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Prayers are being answered!!🙏🏻 One step closer to freedom!! 🥳

Just wanted to give an update. By the grace of God, my daughter and myself have both been offered positions at the company we were hoping to get hired by! The best part is that we will be able to work the same shift and the job itself is within our range of physical ability!!! With employment just around the corner, I am one step closer to being able to leave my current, bad situation!
Thanks to everyone that “❤️” my previous post to show support. I really appreciate it! #Fibromyalgia #MyalgicEncephalomyelitis #Migraine #EosinophilicEsophagitis #IrritableBowelSyndromeIBS #Dysautonomia #BorderlinePersonalityDisorder #ic #hypermobileehlers-DanlosSyndrome(hEDS) #DegenerativeDiscDisease #amps #FoodAllergies #fragranceallergies #NarcissisticAbuse #Hope #freedom

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I want to be free

Since realizing the situation I am in and finally seeing and accepting that my husband is not who I first thought him to be 15 years ago, I have concluded I have to find a way to leave. However, it isn’t possible if I don’t have an income to financially sustain me and my kids. Myself and my oldest teenage daughter have been searching endlessly for jobs and have turned in several applications. We even went for interviews and were told we were hired by one of them, but due to the need for us to work the same shift because of only one vehicle, they said they would need to figure out our scheduling and would email us with further information. That was over a week ago and we haven’t heard anything. So, I’m not real sure we actually did get the jobs. Without a job I can’t leave, because I couldn’t pay for somewhere else for us to live. I have managed to locate a few rental options in my tiny rural area, but that information is useless without income. I am feeling really trapped and hopeless. I don’t want to have to keep waking up day after day to a man that treats me and my kids (daughters especially) like we are dirt and valueless. Listening to the hateful things he says and walking on eggshells in the hopes of not setting off a nasty remark or angry outburst. I want to leave and yet my circumstances of being a stay-at-home mom with no income is now kicking me in the butt and forcing me into having to stay where I know I don’t need to be. The stress is badly affecting my symptoms and the symptoms of both my daughters (we are all three chronically ill). It also doesn’t help that my husband is now unemployed also (he has quit two different jobs in the past two weeks) so my current household is quickly running out of the little bit of money that we had and me and the kids are not sure what is going to happen. I think I must be living in a form of HELL, but for the life of me I can’t figure out what me and the kids did to deserve it! #Fibromyalgia #MyalgicEncephalomyelitis #amps #hypermobileehlers-DanlosSyndrome(hEDS) #EosinophilicEsophagitis #Dysautonomia #Migraine #BorderlinePersonalityDisorder #Depression #IrritableBowelSyndromeIBS #InterstitialCystitis #DegenerativeDiscDisease #FoodAllergies #fragranceallergies #Environmental Allergies #sleepingdisorder

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Advice for stopping Savella

Does anyone have any suggestions for how I should go about tapering off of Savella? I tried contacting my doctor but haven’t heard back. I’m having some symptoms that I don’t like and I’m thinking they could be caused from the Savella. I looked online for suggestions and all I could find was that it’s important to taper slowly and not to stop cold-turkey. However I could really use more specific advice for how to taper the dose safely. I’m currently taking the max dose of 200mg/per day (100mg in morning and 100mg at bedtime). If anyone else has had to stop this medication, your input on how you went about it, will be greatly appreciated.
#Fibromyalgia #ME /CFS #Migraine #IBS #ic #Nervedamage #DegenerativeDiscDisease #FoodAllergies #fragranceallergies #KidneyStones #spinalmass #Depression #sensorysensitivities


Do you feel that the medical care you receive has actually made your health worse rather than better?

I had surgery two weeks ago to remove a non-cancerous mass located near my spine. My doctors insisted that it had to come out and that removing it would improve my back and kidney pain. Well, now following the surgery I am struggling with severe pain in my side and numbness and horrible pain that stretches around into my stomach. It is thought to be nerve damage from the surgery. They can’t tell me if it will improve or if it will be a permanent problem. They are suggesting doing a nerve block injection. I have lost all trust in traditional medical practice. It was supposed to be an uncomplicated surgery that would make my health better, but instead I feel like I have been broken even more by the doctors I trusted. I am barely able to get up and around. My family is having to help me with almost everything and I am not able to function independently as I want to. I am angry and don’t know what to do to make any of this better. I already have a long list of chronic illnesses, but I prided myself on my ability to not let them get the better of me. Now I am scared that by agreeing to this surgery I have sealed my fate as being officially disabled. My health seems to be going downhill quickly and in a way that I never would have anticipated. #Fibromyalgia #Surgery #Migraine #InterstitialCystitis #IrritableBowelSyndromeIBS #KidneyStones #ChronicFatigue #FoodAllergies #fragranceallergies #nervepain #Healing


Has anyone ever been told by a doctor that their personality was contributing to their chronic illness problems?

My first appointment with my new urologist was interesting. After discussing my #IBS -C and #ic symptoms the doc proceeded to ask me if I had a type A personality. After I answered that I probably would consider myself type A because I prefer order in my life and organization and feeling in control as much as possible, he told me that he felt that all the stress I was putting on myself due to the personality I possessed was what was making all my digestive, bladder, kidney and #Fibromyalgia symptoms so bad. He told me he wasn’t trying to be insulting, but that he had several patients with these medical issues that he felt would not be having as many problems if they weren’t so stressed out by the perfectionist traits they possessed due to their personalities. I realized he really wasn’t trying to be insulting, but I couldn’t help feeling like I was being cut down for who I am and blamed for my own health problems. It is hard enough dealing with all these medical maladies and I feel enough guilt due to how the symptoms prevent me from being the wife and mother I want to be. I really don’t want to feel like I’m under attack by the medical professionals I am going to for help. Has anyone else ever experienced something like this?
#Fibromyalgia #IBS #InterstitialCystitis #Migraine #FoodAllergies #fragranceallergies

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Has anyone with fibro ever experienced strange sensations like your body is vibrating during a pain flare?

I felt well enough yesterday to participate in some much needed yard work/maintenance with my husband and kids. However, as usual I over did it tremendously. By the time we were finished and ate dinner, I was already feeling my muscles tightening up, the pain setting in and a migraine digging in its claws. I took a bath, some prescription pain meds, and crawled into bed. I was so uncomfortable that sleep was not happening even though I was exhausted. The only way I can describe what I was experiencing is to say that I was in pain all over and my nerves and muscles just seemed to be in overdrive. My whole body felt like it was vibrating inside. I wasn’t able to fall asleep until about 4:30 am. Has anyone else with fibro ever felt anything like that?
#Fibromyalgia #Migraine #ChronicFatigue #IBS #InterstitialCystitis #FoodAllergies #fragranceallergies