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    Running Through the Flames (poem)

    <p>Running Through the Flames (poem)</p>
    Community Voices

    Prayers are being answered!!🙏🏻 One step closer to freedom!! 🥳

    Just wanted to give an update. By the grace of God, my daughter and myself have both been offered positions at the company we were hoping to get hired by! The best part is that we will be able to work the same shift and the job itself is within our range of physical ability!!! With employment just around the corner, I am one step closer to being able to leave my current, bad situation!
    Thanks to everyone that “❤️” my previous post to show support. I really appreciate it! #Fibromyalgia #MyalgicEncephalomyelitis #Migraine #EosinophilicEsophagitis #IrritableBowelSyndromeIBS #Dysautonomia #BorderlinePersonalityDisorder #ic #hypermobileehlers-DanlosSyndrome(hEDS) #DegenerativeDiscDisease #amps #FoodAllergies #fragranceallergies #NarcissisticAbuse #Hope #freedom

    3 people are talking about this
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    Advice for stopping Savella

    Does anyone have any suggestions for how I should go about tapering off of Savella? I tried contacting my doctor but haven’t heard back. I’m having some symptoms that I don’t like and I’m thinking they could be caused from the Savella. I looked online for suggestions and all I could find was that it’s important to taper slowly and not to stop cold-turkey. However I could really use more specific advice for how to taper the dose safely. I’m currently taking the max dose of 200mg/per day (100mg in morning and 100mg at bedtime). If anyone else has had to stop this medication, your input on how you went about it, will be greatly appreciated.
    #Fibromyalgia #ME /CFS #Migraine #IBS #ic #Nervedamage #DegenerativeDiscDisease #FoodAllergies #fragranceallergies #KidneyStones #spinalmass #Depression #sensorysensitivities

    5 people are talking about this
    Community Voices

    Chronic Pain vs Pain Mangement

    I have chronic pain I have Fibro, RA,
    ankylosing spondylitis, IC/BPS, sciatica, spinal stenosis, arthritis etc.....

    So I am being told by my Pain Dr that I cannot be on pain meds for the rest of my life. Now my pain is chronic as in forever like we know these dx’s are uncureable.
    So how can a pain dr take the stance of taking away my pain pills every month ?
    She said to me you can’t be on pain meds forever.

    You think this is what I wanted to be on a ton of pills a day?
    So you’re start weaning me without telling me down. Thing is I foreshadowed this coming so I got my medical marijuana card. In hopes that this can help.

    I realized beginning of 2020 she had cut one month by 25 pills without telling me then she started talking to me about cutting more and more and more.
    From when we started (year and a half) she already cut me down by by 75 pills and she’s not finished.

    I am pisssed as all hell but my husband doesn’t think it’s a big deal. I’m just like if my conditions weren’t chronic and uncureable ok but I’m still gonna be in pain.

    4 years ago I had a gastric sleeve so a lot of medicine I was on I was told I could no longer take because stomach. No longer take inflammatories. Now at the time of the surgery I was also on OxyContin for quite a few years by then.

    I was told I could no longer be able to take them and was also told by at least 12 dr’s that I would either never be able to get off or it would take years to take me off.

    Well we figured out a schedule and I was off them in a month and a half. That’s when they put me on what I am now and she has been trying to crazy weening me every month.

    My main concern is I’m 52 I’ve been a warrior now for 20 plus years. It makes me thou really scared to think of what my life is going to be like at 60 or 70. The woman in my family live till late 80’s. Any body else dealing with a similar situation?

    #RA #RheumatoidArthritis #Fibro #Fibromyalgia #ic /BPS #InterstitialCystitis #PTSD #sciatica #PituitaryTumors #Nervedamage #AnkylosingSpondylitis #LymeDisease #LymeWarrior #ChronicPain #chronicpainsufferer #DDD #Migraines

    26 people are talking about this
    Community Voices

    How do you guys work in pain? I had to take 3 days off for an IC flare and I'm scared I could get fired. I have no benefits either. #ic

    2 people are talking about this
    Community Voices

    No Quality of life

    <p>No Quality of life</p>
    18 people are talking about this
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    Confession time

    <p>Confession time</p>
    3 people are talking about this
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