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    Interstitial cystitis #ic

    Does anybody have any flare up tips for IC? Im newly diagnosed and looking for some tips on how to alleviate some of the symptoms even a little. #InterstitialCystitis #Flareup #ic

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    Frustrated and defeated

    I left my my narcissistic husband of 15 years and am currently in the process of divorce. I have 2 teenage daughters from a previous marriage and he has a teenage son from a previous relationship. We share a son that is 13 and that is the part that I’m struggling with. Over the past year and a half my son has started becoming more difficult. He has ADHD and has began acting in the same narcissistic way his dad does. He makes constant comments about how much better he is than everyone else and is very blunt about being sexist and stating that women are useless unless they are in the kitchen. I have tried many times to talk to him to explain that his behaviors and words are wrong and hurtful but he doesn’t listen and will just say that he doesn’t care because that’s just the type of guy he is and I just need to get used to it. When he says something really nasty and I get extremely angry he will do just like his dad and swear it was just a joke that I don’t understand because I lack a sense of humor. When his ADHD kicks in really bad, he tries to harass me physically by blowing his breathe in my face or ear, poking me with his finger or other objects like his fake sword and when I say to stop he just laughs and says “make me! You know you won’t cause your just a weak woman”. Last night he started trying to pop a t-shirt at my face while I was working on my computer doing an assignment for my online class. I told him to stop, but he did it again and popped me directly in my left eye. He seemed shocked at first that he actually hit me, but then started making a joke out of it and told me that it wasn’t his fault I got hit, it was my fault cause I didn’t dodge it. I am totally at my wits end. I left my husband so I could get away from his abuse and now I’m living with my son treating me the same way. I don’t know what to do to get my son to see that his behavior is unacceptable and wrong. Any advice would be greatly appreciated cause I don’t have anyone else that I can talk to about this. #ChronicFatigue #Fibromyalgia #ADHD #IBS #DegenerativeDiscDisease #Depression #Anxiety #ic #Migraine #imbroken

    2 reactions 5 comments
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    I'm new here!

    Hi, my name is JJ5718. I'm here because I want to learn more about self care and living my best best life despite!

    #MightyTogether #rhuematoidarthritis #Endometriosis #ic #interstital cystitis #Adenomyosis #Fibromyalgia #ChronicPain

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    Running Through the Flames (poem)

    The pain within me

    It coils within and within

    Where am I now?

    It hurts, it hurts so

    The pain is clouding my thoughts.

    Where am I now?

    Where am I to go?

    I feel so lost and yet I

    cannot go there yet.

    Running through the fire

    On and on I go and I'm

    Running through the fire

    #InterstitialCystitis #ic #ChronicPain #icwarrior #warrior #

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    Prayers are being answered!!🙏🏻 One step closer to freedom!! 🥳

    Just wanted to give an update. By the grace of God, my daughter and myself have both been offered positions at the company we were hoping to get hired by! The best part is that we will be able to work the same shift and the job itself is within our range of physical ability!!! With employment just around the corner, I am one step closer to being able to leave my current, bad situation!
    Thanks to everyone that “❤️” my previous post to show support. I really appreciate it! #Fibromyalgia #MyalgicEncephalomyelitis #Migraine #EosinophilicEsophagitis #IrritableBowelSyndromeIBS #Dysautonomia #BorderlinePersonalityDisorder #ic #hypermobileehlers-DanlosSyndrome(hEDS) #DegenerativeDiscDisease #amps #FoodAllergies #fragranceallergies #NarcissisticAbuse #Hope #freedom

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    Advice for stopping Savella

    Does anyone have any suggestions for how I should go about tapering off of Savella? I tried contacting my doctor but haven’t heard back. I’m having some symptoms that I don’t like and I’m thinking they could be caused from the Savella. I looked online for suggestions and all I could find was that it’s important to taper slowly and not to stop cold-turkey. However I could really use more specific advice for how to taper the dose safely. I’m currently taking the max dose of 200mg/per day (100mg in morning and 100mg at bedtime). If anyone else has had to stop this medication, your input on how you went about it, will be greatly appreciated.
    #Fibromyalgia #ME /CFS #Migraine #IBS #ic #Nervedamage #DegenerativeDiscDisease #FoodAllergies #fragranceallergies #KidneyStones #spinalmass #Depression #sensorysensitivities

    5 comments
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    Chronic Pain vs Pain Mangement

    I have chronic pain I have Fibro, RA,
    ankylosing spondylitis, IC/BPS, sciatica, spinal stenosis, arthritis etc.....

    So I am being told by my Pain Dr that I cannot be on pain meds for the rest of my life. Now my pain is chronic as in forever like we know these dx’s are uncureable.
    So how can a pain dr take the stance of taking away my pain pills every month ?
    She said to me you can’t be on pain meds forever.

    You think this is what I wanted to be on a ton of pills a day?
    So you’re start weaning me without telling me down. Thing is I foreshadowed this coming so I got my medical marijuana card. In hopes that this can help.

    I realized beginning of 2020 she had cut one month by 25 pills without telling me then she started talking to me about cutting more and more and more.
    From when we started (year and a half) she already cut me down by by 75 pills and she’s not finished.

    I am pisssed as all hell but my husband doesn’t think it’s a big deal. I’m just like if my conditions weren’t chronic and uncureable ok but I’m still gonna be in pain.

    4 years ago I had a gastric sleeve so a lot of medicine I was on I was told I could no longer take because stomach. No longer take inflammatories. Now at the time of the surgery I was also on OxyContin for quite a few years by then.

    I was told I could no longer be able to take them and was also told by at least 12 dr’s that I would either never be able to get off or it would take years to take me off.

    Well we figured out a schedule and I was off them in a month and a half. That’s when they put me on what I am now and she has been trying to crazy weening me every month.

    My main concern is I’m 52 I’ve been a warrior now for 20 plus years. It makes me thou really scared to think of what my life is going to be like at 60 or 70. The woman in my family live till late 80’s. Any body else dealing with a similar situation?

    #RA #RheumatoidArthritis #Fibro #Fibromyalgia #ic /BPS #InterstitialCystitis #PTSD #sciatica #PituitaryTumors #Nervedamage #AnkylosingSpondylitis #LymeDisease #LymeWarrior #ChronicPain #chronicpainsufferer #DDD #Migraines

    26 comments
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    How do you guys work in pain? I had to take 3 days off for an IC flare and I'm scared I could get fired. I have no benefits either. #ic

    #InterstitialCystitis

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    No Quality of life

    I’m 27, I live in pain daily in so many ways I loose track of symptoms and of what hurts. I have no life because I’ve abandoned friends so much they’ve all dashed I guess we were never truly friends. I’ve never really had a normal life or gotten to live a proper problematic young adult hood I’ve had lupus since the age of 7 ,20 years. I’m tired 😓 doctors want give me pain medication, I wonder what makes other patients more deserving than myself. Even tho I’m tired I’m not ready to give up I can’t give up, I have siblings and nieces and nephews I have to live for a can’t imagine them being hurt because I chose to quit, something has gotta change. #ic #InterstitialCystitis #bladderCystitis #Pain #hurt #tired #Lupus #Fibromyalgia #Osteoarthritis #highbloodpressure #LupusNephritis #KidneyDisease #Hypertension #Depression #Anxiety #Asthma

    18 comments