Eosinophilic Esophagitis

Hi, my name is PurplePapalotl. I'm here because I want to live a better and more connected life than what illness has pushed me to. I'm also curious about care plans and symptom tracking.

#MightyTogether #Fibromyalgia #Asthma #EosinophilicEsophagitis

Hey all, I am new to this group. I have struggled heavily for the past 3 years with health issues, particularly in my GI system. My 2 main conditions are eosinophilic esophagitis (EOE) and Gastroparesis. I have tried several different doctors, medications, therapies, diets, lifestyle changes, etc. Nothing ever seems to help my body's ability to reject 95% of foods. I am now down in the 90s again for my weight, and my body is worn down from throwing up so often.

It's gotten to the point where I am pretty much used to throwing up 24/7. I can deal with the throwing up, however I fear that my body can't deal with it much longer. My teeth are starting to turn clear/transparent due to the high acid exposure and my esophagus is extremely damaged from throwing up so often.

I fear I may have to look into getting a J tube placed, due to the severity of my conditions. Any advice as I try to navigate the harsh nature of these conditions, particularly how much my body rejects almost every food group?

Hi, my name is SparklyPinkButterfly. I'm back after a few years, and looking for people who understand what I’ve been, or am going through. I previously had a different username, but unkind family members found my account, so I needed to lay low for a while. Things have just hit the fan, lately, and I need the support of people who get it.

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #Fibromyalgia #ADHD #EosinophilicEsophagitis

My daughter is using Seroquel for her Bipolar 2, but the higher the dose goes, the more negative side effects she is experiencing and the more horrible she physically feels. Her psychiatrist seems to have total faith in its ability to address her Bipolar and severe depression and anxiety despite our insistence that it may not be the best medication for her. Does anyone else have any medication suggestions for treating bipolar 2 other than the Seroquel? # #Bipolar2 #ChronicFatigue #Fibromyalgia #EhlersDanlosSyndrome #Depression #Anxiety #HypothyroidismUnderactiveThyroidDisease #UlcerativeColitis #EoE

My daughter is using Seroquel for her Bipolar 2, but the higher the dose goes, the more negative side effects she is experiencing and the more horrible she physically feels. Her psychiatrist seems to have total faith in its ability to address her Bipolar and severe depression and anxiety despite our insistence that it may not be the best medication for her. Does anyone else have any medication suggestions for treating bipolar 2 other than the Seroquel? # #Bipolar2 #ChronicFatigue #Fibromyalgia #EhlersDanlosSyndrome #Depression #Anxiety #HypothyroidismUnderactiveThyroidDisease #UlcerativeColitis #EoE

Living with my chronically ill, autistic, BPD, young adult daughter is like living with an abusive spouse ( I would know cause I lived with one for 16 years before divorcing him). I can’t kick her out cause she isn’t totally capable of living on her own and doesn’t have much income and I don’t have any family that she could go live with. She doesn’t drive either so is totally dependent on me to get her to her part time job and frequent doctor appointments. However I am chronically ill too with several difficult conditions and work full time and care for my youngest daughter that is totally disabled from her chronic illnesses and it is just too much to always deal with the continual cycle of ups and downs she goes through due to her mental and developmental diagnoses. She is on medication that is helping some to stabilize her moods and help her severe anxiety, but she still goes into really awful episodes where her thinking is all over the place and she lashes out verbally and accuses me of things that don’t even make sense. She yells and cussed at me, calls me names and says I’m stupid and don’t really love her. She does the same to her sister but on a lesser scale than with me. In those episodes I can’t reason with her and she is determined that I’m causing her problems. When she is clear headed she can be kind and loving, but she always has another episode before long that is horrible for me to deal with. I feel I’m being verbally and emotionally abused just like I was from my ex- husband. I want a peaceful life and I just can’t seem to ever achieve it due to the whole situation. Has anyone else had experience with this kind of thing? I would really appreciate input. #Fibromyalgia #AutismSpectrumDisorder #BorderlinePersonalityDisorder #chronicmigraine #ADHD #Anxiety #Depression #ChronicFatigueSyndrome #Dysautonomia #UlcerativeColitis #EoE #OCD #DisorderedEating #InterstitialCystitis #Endometriosis #IBS #FoodAllergies

Living with my chronically ill, autistic, BPD, young adult daughter is like living with an abusive spouse ( I would know cause I lived with one for 16 years before divorcing him). I can’t kick her out cause she isn’t totally capable of living on her own and doesn’t have much income and I don’t have any family that she could go live with. She doesn’t drive either so is totally dependent on me to get her to her part time job and frequent doctor appointments. However I am chronically ill too with several difficult conditions and work full time and care for my youngest daughter that is totally disabled from her chronic illnesses and it is just too much to always deal with the continual cycle of ups and downs she goes through due to her mental and developmental diagnoses. She is on medication that is helping some to stabilize her moods and help her severe anxiety, but she still goes into really awful episodes where her thinking is all over the place and she lashes out verbally and accuses me of things that don’t even make sense. She yells and cussed at me, calls me names and says I’m stupid and don’t really love her. She does the same to her sister but on a lesser scale than with me. In those episodes I can’t reason with her and she is determined that I’m causing her problems. When she is clear headed she can be kind and loving, but she always has another episode before long that is horrible for me to deal with. I feel I’m being verbally and emotionally abused just like I was from my ex- husband. I want a peaceful life and I just can’t seem to ever achieve it due to the whole situation. Has anyone else had experience with this kind of thing? I would really appreciate input. #Fibromyalgia #AutismSpectrumDisorder #BorderlinePersonalityDisorder #chronicmigraine #ADHD #Anxiety #Depression #ChronicFatigueSyndrome #Dysautonomia #UlcerativeColitis #EoE #OCD #DisorderedEating #InterstitialCystitis #Endometriosis #IBS #FoodAllergies

Feeling sad today. Decided to quit playing NCAA lacrosse and transfer to my hometown college to focus on my health. I wish my conditions (Gastroparesis and Eosinophilic Esophagitis) didn't affect my life so much. I love lacrosse a lot but it was becoming too difficult to manage with my health. Taking a step back so I can focus on my health, even though its a hard decision