Food allergies

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    Community Voices

    Food Suggestions?

    Hi all! I have difficulty consuming enough calories each day. I don’t usually feel hungry but I notice on days when I eat a lot of calories, I have more energy the next day. Does anyone have any suggestions for increasing appetite/enjoyment from eating? In particular, do you know of any food kit suggestions like Hello Fresh that are allergy friendly? #Food #noappetite #Fibromyalgia #FoodAllergies

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    Community Voices

    It’s Hard to Find Trustworthy Food Allergy Information!

    <p>It’s Hard to Find Trustworthy Food Allergy Information!</p>
    Emily Sorenson

    Making Happy Family Memories When Your Child Has Severe Food Allergies

    I pride myself on being a glass-half-full kinda gal, but I must admit, I accidentally let a tiny twinge of self-pity brush the edges of my subconscious recently. Jealousy reared its ugly head (just a skosh) on a recent vacation where other families were enjoying the time-honored tradition of visiting the local ice cream parlor together. I recalled my own memories of a favorite vacation ice cream haunt and lamented the fact that my son, Nick, wouldn’t look back fondly at a time spent peppered with chocolate sprinkles and giggles. Nick has multiple, life-threatening food allergies and a trip to a local ice cream establishment is not something we can safely enjoy. A brief chat with my husband led to a revelation. Once again, I was letting my own experiences limit my frame of reference. My perspective is shaped by my own fond childhood memories (as it should be), but guess what — someday Nick’s childhood memories will lead to a rush of nostalgia for other reasons. You see on our last vacation, since we couldn’t grab an ice cream, we grabbed a paddle and a kayak, and boy did he laugh when a wind gust came up and his mom had to fight her way back to shore! Since we couldn’t grab an ice cream, we grabbed a canoe and our fishing poles and headed off the grid where we found beautiful views, peace and quiet, and too many walleye to count. Nick and his father cooked a delicious dinner over a camp stove and we all crowded into a tent under the stars. Since we couldn’t grab an ice cream, we grabbed a sketch pad and colored pencils and Nick drew a beautiful picture of the lake outside our cabin. Since we couldn’t grab an ice cream, we grabbed a skewer and roasted marshmallows over the fire, then gobbled up delicious homemade s’mores. Since we couldn’t grab an ice cream, as our trip drew to an end, we grabbed our tennis shoes and hiked to a spectacular waterfall. Along the way, we chatted about the amazing memories we had made that week… memories sure to last a lifetime. And, now that we are home, we’re going to make the best damn (homemade) banana splits you’ve ever tasted because we still love (allergy-free) ice cream too!

    Community Voices
    Community Voices

    I’m new here!

    Hi, my name is andrea85_newyork. I'm here because I’ve been battling chronic fatigue for 3 years. I have recurring anemia, IBS, food allergies, insomnia, back pain and rosacea. I’m trying to find people who’d be willing to chat about what’s worked or hasn’t worked for them —- and general just speak to someone who understands what I’m going through :)


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    Community Voices

    My Story

    Hello! My name is Sarisha and I’m 19. I’ve had health issues since I was born. I have several severe food allergies, asthma, eczema, ADHD, depression and anxiety. For over a year, I’ve been struggling with an undiagnosed neurological issue. I’m in constant pain and I’m always tired. My body has been weakened so much and none of my tests are showing anything. I’ve been going from specialist to specialist and I’m doing more tests that lead no where. Most recently, I think I’ve started having seizures but I don’t know for sure and neither do my doctors so I’m just anxious and scared all the time.
    #Depression #Anxiety #ChronicIllness #Undiagnosed #healthissues

    4 people are talking about this
    Community Voices

    Going for an EDS Diagnosis

    Hey all, I hope this is allowed (I don't think I saw anything in rules to say it isn't), but I was looking to get some thoughts on what I think may be EDS (perhaps hEDS) and my next steps.

    This post will probably be pretty long, so I apologise in advance for that.

    So, I was diagnosed with Fibromyalgia about three years ago. The GP also thought I could have ME. Generally speaking, I have been in constant widespread (joint and nerve) pain for the past 15 years, but every few years I seem to deteriorate further.

    I haven't experienced dislocations, but perhaps subluxations. I honestly am not entirely sure, though I feel like I should be. My joints are extremely tender, get worse with movement, and I click frequently (which seems to also cause pain).

    I don't have stretchy skin and I'm overweight. Basically, what I'm saying is that I don't believe I will be listened to by doctors because I don't fit the generalised view of EDS.

    I also didn't think I have EDS (a few of my friends do) until people started mentioning the possibility to me. After having done a lot of reading, I'm starting to see it might fit, but I've experienced so much invalidation, weight shaming, and placing blame on my mental illness from so many GPs now that I'm scared to seek help. As such, I've decided to raid the little house deposit savings I have and seek a private diagnosis, in the hopes I can be referred back to the NHS for treatment.

    So, I guess what I'm looking for from the group, if possible, is some thoughts on whether you think my symptoms align with a diagnosis of EDS. I'll list what the worst ones are for me below:

    Injuries: last year, I herniated my disc from simply turning around on the sofa. I've been in constant pain since and am due to see orthopedics next week.

    Bladder Control: a year or so ago, after experiencing bladder issues for years, I lost a lot of my bladder control. I need to pee every few minutes, though when I try, it often takes a long time to actually be able to, and I've had to wear pads now for months due to a lot leaking. Sorry if this was TMI!

    Possible Subluxation: a bone recently popped out in my wrist and has been painful and tender for about a month. I've been too scared to go to the GP. I eventually tried pushing it back in myself and it seems to have shifted somewhat, but isn't exactly as it should be or was before.

    Digestion Issues: I've long believed I have GERD (silent acid reflux), but only recently discovered those with EDS often have digestive issues. I had a really bad episode, lasting six months two years ago, but it dissappeared with only a few symptoms remaining. I am currently going through two months of not being able to eat (or even drink water) without belching, dizziness, bloating, gasping for breath, heart palpations, etc. I'm so, so uncomfortable and scared to eat. I've been told by friends who have it that this also sounds like POTS (I also experience a lot of dizziness upon standing) and MCAS.

    Food Allergies or Intolerance: this one has been with me since I was a child, but the foods I can eat without symptoms are becoming less and less. I recently discovered soya is a big no-no, feta recently made my mouth swell up after years of tolerating it. The list goes on.

    Mobility: honestly, this is where I tend to gaslight myself because I'm overweight, but I know other overweight people who don't live like this, so I'm trying to be kinder to myself and validate what must be something physical. So, I try to walk from the car to work (I am a jewellery maker and have my own studio, so can luckily work to my own pace). The walk is roughly ten minutes, but it is enough to cause a flare-up for the rest of the day. That said, walking is infinitely less painful than standing. Even before my back injury, I have long (maybe the past 10-15 years) experienced severe pain in my lower back when standing. The only thing I've found to help with this is if I sway gently from side to side. The gentle movement seems to help me stand for a little longer, but it's still agony.

    Issues Sitting: I don't know if this is anything to do with EDS, but I have been unable to sit upright on a sofa or most chairs for longer than a few minutes without experiencing severe pain in my lower back and legs. I often cry because I want to sit up, but I always, always have to resort to lying down.

    Joint Pain: All my joints seem to hurt, but the worst is, by far, my hips. As a side sleeper, I find it terribly painful to try to sleep at night. It feels like I'm lying on a brick! Ive also had an extremely tender ribcage for the past two-three years, so much so that now my partner can't cuddle me without excruciating pain and pressure.

    Weakness: again, I'm unsure if this is related to EDS, but I haven't been able to hold a book for about ten years, maybe longer, because I physically cannot bare the pressure it puts on my wrists, the weakness it causes in my arms, and the pain it causes in my neck and shoulders. As such, I read, lying down, with a Kindle. It's the only way it's manageable.

    Uff, I'm so, so sorry! I know this has been an essay! I just wanted to provide as much information as possible in order to get some feedback.

    Looking at the EDS diagnosis, I'm pretty uncertain if I have it (some questions I don't understand, others I don't have answers for), but reading about EDS in forums, talking to friends with it - that's when I start to think... this could be it.

    I guess I'm wondering if I'd be wasting time and money to see a specialist when this might all be something else.

    Thanks so much for reading. ❤️ #EDS #EhlersDanlosSyndrome #HypermobileTypeEDS #ChronicIllness

    7 people are talking about this
    Community Voices

    Would you do OIT as an adult?

    <p>Would you do OIT as an adult?</p>
    Community Voices

    Allium #Allergy

    I am here to moan and not rub my eyes or scratch. A few years ago, I developed an allergy to onions and garlic. A neighbour has recently developed Alium Love and cant' stop cooking onions. The allergens seem to be getting into my flat through those vents old buildings have. It smells lovely until I can't breathe, rub my eyes raw and claw myself. I took an antihistamine as soon as the smell registered. Is there a place on the planet where my allergies will not be a problem? #FoodAllergies #neighbours

    Community Voices

    Dealing with food cravings + the temptation of takeout

    I caved after work today and got a donair. Within ten minutes, the intense stomach pain hit and I am still dealing with discomfort, pain, and bloating six hours later, to the extent that I can't get to sleep.

    I really struggle with consistently maintaining a diet that helps me feel good for a few reasons:

    1) The constant, insistent message from my parents when I was growing up that if a food item is "good for you," then you should always eat it. Right now, food items that are certainly healthy like broccoli, chickpeas, and olive oil are actually *not* good for me and it is hard to shut off that voice in my head from my childhood.

    2) After living in a number of different countries and traveling to dozens more, I have developed a love for world cuisine. Due to dietary limitations, I simply can't cook a lot of those dishes for myself, but sometimes, when I'm having a bad day, all I want is a bite of one of those delicious meals that transports me back to a better time. So I order take out. And then I have an experience like with the donair.

    I guess this post is about the varied meanings of nourishment for different people. I am still trying to develop a healthy concept of nourishment for myself, and I am grateful for this group.

    #Food #FoodAllergies #foodintolerance #Healthy #goodforyou #MentalHealth #Nourishment

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