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Pain Patch #ChronicPain #TrigeminalNeuralgia #ChronicIllness

My wonderful Doctor gave me a prescription of lidocaine patches. Which normally in the UK I would have to go to a pain specialist to get, as they are very expensive.

But on friday when I spoke to him and explained how much pain I'm in, he upped my normal medication and prescribed the patches as well.
As I'm nearly as the top end of the epileptic meds I take for the facial pain. The other med I take is already quite high and was only upped in october, so we are both reluctant to up that one.

I tried the patch on a small place first to make sure I wasnt allergic and I was fine. It's rather strange Wearing it as all of a sudden I can not feel that part of my face and I want to touch it. It feels like the patch has fallen off. Which of cause it hasn't 😁.

I can still feel the pain but it is blooming marvellous fanbloodytastic. Over the blooming moon.

I've had this dam disease since 2017 tried some many different epileptic meds to stop the nerves firing off in my brain,sending out pain signals that are excruciating on both sides of my head and face.😫

Shame I cant wear it on the top of my skull. But I dont want to shave my hair off. No no no
I'll have to live with the hammering inside my skull when that sets off 🥴🥴🥴🥴

Tomo I might try to cut in into shape to fit up to my eye. But I'm taking it slowly to make sure I dont show any allergic reaction first.

Thankyou my wonderful Doctor. 💓❤💓❤💓❤💓❤💓❤💓❤💓❤💓❤💓❤💓

#RareDisease #MedicalZebra #Zebra #lovinglife #Painwarriors #Love #Hugs #Anxiety #PanicAttack #PanicDisorder #stayingstrong #Tj #checkonyourneighbours #Positivity #CheckInWithMe #DistractMe #gome #Doctors #NHS #Greatnhs #Lidocainepatch

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#CheerMeOn

I’m proud of myself this week. Found out from my kidney transplant team that I’m currently marked as inactive. Which means that I’ll stay on the transplant list, but if a kidney comes in that could potentially change my life, I won’t know. BUT even though I found out this information, I kept my shit together. I didn’t scream or freak out. I texted my best friends and vented and accepted that right now, I’m not meant to get a new kidney. But my time is coming. ❤️ #gome

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Success!!

Great news went to the concert and had a blast.!! Had reserved seating near an exit just incase and enjoyed myself no panic attacks!! #gome!

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I just beat a bad impulse!

I just overcame an impulse to steal from my work's fundraiser with scentsy. I told myself no several times and this time I listened! yay! #BorderlinePersonalityDisorder #impulsive #gome #ididtherightthing

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Baby steps #Fibromyalgia #ChronicPain

#CheckInWithMe I have fibromyalgia and anxiety since I was a teenager. I am learning to be more forgiving with things I can't do yet and taking baby steps towards my goals. Today I was strong enough to go to my therapist and take care of my mental health. Go me!!! #gome ! #migrainesucks #fibroismorethanpain #fibromyalgiafog

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