Painwarriors

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    Community Voices

    Pain Warriors #Painwarriors

    Hello everyone. I am a documentary filmmaker who also happens to be a long term chronic pain patient. Frustrated by the lack of raw, honest, vulnerable and meaningful stories about my health demographic, I spent 7 years of my life researching , filming and producing a feature doc called

    Pain Warriors. My goal was to capture the fighting spirit that many of us have in the face of insurmountable and sometimes tortuous suffering from our health conditions.

    I am thrilled to announce it is now available to view for FREE on Amazon Prime, and is an official selection of Reel abilities film festival in NYC this April - showcasing champions of their various health challenges. Pain Warriors has been called “a civil rights movement for our time” by journalists.

    I invite you all to view it for yourselves .

    Community Voices
    Community Voices

    Why is it people can't except me for me??
    Why do they keep shoving positivity down my throat, I'm chronically ill and in pain daily, they say u aren't ur pain or ur illness.

    If I'm to negative, u may walk away, every one else has.

    I'm not gonna sugar coat, usually there isn't a good day in my life.

    My own mother called me a Horrible House because I fell asleep at her house one day.

    I've been called a Debbie Downer and Burden.

    People say well they can't experience what we go through well they can have compassion, care, love, ***NOW U ALL KNOW WHY I COME HERE SO MUCH.

    I don't need counsoling.

    I'm tired of people shoving God down my throat.

    I'm tired of people saying, well, if u had a little bit more Faith, if u loved God a little more, etc.

    Really???

    U wanna come trade places

    People say well hope can't lie in people, maybe God sent people to be there for me just to listen being an ear to hear, like the mighty.

    I love coming here, but, not finding it very supportive.

    Lord, if people can't handle my bad days which r EVERY SINGLE DAY, then I definately don't want them here on my good days, which r rare.

    #chatspace
    #no Shame
    #upallnight
    #distractme
    #painwarrior
    #Painwarriors
    #painsuffers
    #CheerMeOn
    #Pain
    #friendships
    #friendshipstruggles
    #Painsomnia
    #lonely
    #Lonliness
    #ChronicPain
    #ChronicIllness
    #CheckInWithMe
    #EssentialTremors
    #no Support
    #Nosupportsystem
    #DebbieDowner
    #Burden
    #Christianity

    15 people are talking about this
    Community Voices

    I wish all of us with Chronic Pain had a cure for everything we go through.

    I'm 36yrs old, it takes me longer to do things, if I can do them at all, it is 1:40am in Kentucky (USA), got woken up with Chest pain, maybe broke a rib from coughing, Groin, Essential Tremors, u all r amazing to be so supportive going through ur all stuff.

    Everytime I love I moan and groan, the tremors wear me out, but, I'm so thankful, I have somewhere to come where people love, care and support me on a regular basis.

    It takes me at least 45mins to an hour to get ready for bed, then I may get 45mins to an hour of sleep, then I either just wake up with Tremors, or weak up with Tremors, either moaning, groaning, screaming in pain, almost, if not every night.

    I don't come here often, most times, I just try and handle it on my own, but, when u r just laying tremoring, u think everything is good, then,a,pain shoots through a random part of ur body, u thank God u were laying down, cause some of the pain doubles u over.

    I won't keep u all, thanks for listening

    #no Shame
    #Painwarriors
    #Painsomnia
    #CheersMeOn
    #chronic Illness
    #chronic pain
    #CheckInWithMe
    #Lonliness
    #EssentialTremor
    #hurtallover
    #hurt
    #lonely
    #no support
    #Nosupportsystem

    2 people are talking about this
    Community Voices

    Not Sleeping, No Support, Up In Pain

    Not sleeping, up in pain, tremoring, not support, encouragement, love. I get tired of people bashing me because I won't try this is that, go to my doctor (Speaking For Myself) why??? So, he can load me up with more drugs??? That won't helps.

    Anyways, I'm thankful there is an App and people that care and love me, that I can come to

    #Chatspace
    #noshame
    #Upallnight
    #DistractMe
    #Painsomnia
    #Painwarriors
    #CheerMeOn
    #Chonicillness
    #chronic Pain
    #CheckInWithMe
    #Lonliness
    #EssentialTremors

    3 people are talking about this
    Community Voices

    Not Even Made It Out Of Bed Yet and It Is 11:00am, SO FRUSTRATING

    So, frustrating, not even made it out of bed, and it is 11:00am here, the pain is intense, just trying to fight, thank u all for being here for me, being my support. I want people who care and love me, not just shove things down my throat, and make me feel 1,000 times worse

    #Chatspace
    #noshame
    #Upallnight
    #chronic pain
    #CheckInWithMe
    #Lonliness
    #Painwarriors
    #Painwarriors
    #Disability
    #lonely
    #friendships
    #friendshipstruggles

    2 people are talking about this
    Community Voices

    I'm really struggling, morning my new life, people say get well, get better soon, it isn't gonna happen, I'm tired of waking up, making it to the couch, just to lay down again, people say get up move around, well, that is easier said than done with Essential Tremors, it affects my whole body, so getting up and moving around isn't the issue.

    I'm not the issue, the doctors, medications, etc, aren't the issue, the issue is I have a slu of medical issues, that the doctors r doing the best they can to treat, there comes a point and time u get tired of the hospitals, the meds, etc, at that time, u just need love, support, and care, I'm so so thankful I found this App.

    I'm told to get up and move, quit thinking about it, quit talking about it, and it'll go away.

    If that is the case, it should've went away a long time ago, because there r plenty of times I don't think about it, I'm so so thankful for finding this App where I feel accepted, loved and cared for.

    #self -Care Lounge
    #Chatspace
    #Upallnight
    #noshame
    #Painsomnia
    #Painwarriors
    #Disability
    #CheerMeOn
    #ChronicIlliness
    #ChronicPain
    #CheckInWithMe
    #Lonliness
    #EssentialTremors
    #friendships
    #friendshipstruggles
    #lonely
    #Pain

    5 people are talking about this
    Community Voices

    Frustrated, Am I Not Good Enough

    <p>Frustrated, Am I Not Good Enough</p>
    15 people are talking about this
    Community Voices

    NOT DOING THE GREATEST, ALONE, SICK, WONDERING WHAT MY PURPOSE IS

    <p>NOT DOING THE GREATEST, ALONE, SICK, WONDERING WHAT MY PURPOSE IS</p>
    8 people are talking about this
    Community Voices

    U mean u say u want to support me on this App, No Strings Attached

    <p>U mean u say u want to support me on this App, No Strings Attached</p>
    1 person is talking about this