Painwarriors

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Pain Warriors #Painwarriors

Hello everyone. I am a documentary filmmaker who also happens to be a long term chronic pain patient. Frustrated by the lack of raw, honest, vulnerable and meaningful stories about my health demographic, I spent 7 years of my life researching , filming and producing a feature doc called

Pain Warriors. My goal was to capture the fighting spirit that many of us have in the face of insurmountable and sometimes tortuous suffering from our health conditions.

I am thrilled to announce it is now available to view for FREE on Amazon Prime, and is an official selection of Reel abilities film festival in NYC this April - showcasing champions of their various health challenges. Pain Warriors has been called “a civil rights movement for our time” by journalists.

I invite you all to view it for yourselves .

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Up at about this time every night, wishing there were others to talk to, that just want to talk, care, etc.

I just need support

Not start a conversation of with where u from, or just say Hi, How r u, etc?

#CaregiversCorner
#Chatspace
#no Shame
#Upallnight
#friendships
#lonely
#Pain
#EssentialTremor
#Tremor
#Lonliness
#CheckInWithMe
#Painsomnia
#Painwarriors
#CheerMeOn
#Chonicillness
#chronic Pain
#friendless
#Nosupportsystem

8 comments
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Why is it people can't except me for me??
Why do they keep shoving positivity down my throat, I'm chronically ill and in pain daily, they say u aren't ur pain or ur illness.

If I'm to negative, u may walk away, every one else has.

I'm not gonna sugar coat, usually there isn't a good day in my life.

My own mother called me a Horrible House because I fell asleep at her house one day.

I've been called a Debbie Downer and Burden.

People say well they can't experience what we go through well they can have compassion, care, love, ***NOW U ALL KNOW WHY I COME HERE SO MUCH.

I don't need counsoling.

I'm tired of people shoving God down my throat.

I'm tired of people saying, well, if u had a little bit more Faith, if u loved God a little more, etc.

Really???

U wanna come trade places

People say well hope can't lie in people, maybe God sent people to be there for me just to listen being an ear to hear, like the mighty.

I love coming here, but, not finding it very supportive.

Lord, if people can't handle my bad days which r EVERY SINGLE DAY, then I definately don't want them here on my good days, which r rare.

#chatspace
#no Shame
#upallnight
#distractme
#painwarrior
#Painwarriors
#painsuffers
#CheerMeOn
#Pain
#friendships
#friendshipstruggles
#Painsomnia
#lonely
#Lonliness
#ChronicPain
#ChronicIllness
#CheckInWithMe
#EssentialTremors
#no Support
#Nosupportsystem
#DebbieDowner
#Burden
#Christianity

15 comments
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I wish all of us with Chronic Pain had a cure for everything we go through.

I'm 36yrs old, it takes me longer to do things, if I can do them at all, it is 1:40am in Kentucky (USA), got woken up with Chest pain, maybe broke a rib from coughing, Groin, Essential Tremors, u all r amazing to be so supportive going through ur all stuff.

Everytime I love I moan and groan, the tremors wear me out, but, I'm so thankful, I have somewhere to come where people love, care and support me on a regular basis.

It takes me at least 45mins to an hour to get ready for bed, then I may get 45mins to an hour of sleep, then I either just wake up with Tremors, or weak up with Tremors, either moaning, groaning, screaming in pain, almost, if not every night.

I don't come here often, most times, I just try and handle it on my own, but, when u r just laying tremoring, u think everything is good, then,a,pain shoots through a random part of ur body, u thank God u were laying down, cause some of the pain doubles u over.

I won't keep u all, thanks for listening

#no Shame
#Painwarriors
#Painsomnia
#CheersMeOn
#chronic Illness
#chronic pain
#CheckInWithMe
#Lonliness
#EssentialTremor
#hurtallover
#hurt
#lonely
#no support
#Nosupportsystem

2 comments
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Not Sleeping, No Support, Up In Pain

Not sleeping, up in pain, tremoring, not support, encouragement, love. I get tired of people bashing me because I won't try this is that, go to my doctor (Speaking For Myself) why??? So, he can load me up with more drugs??? That won't helps.

Anyways, I'm thankful there is an App and people that care and love me, that I can come to

#Chatspace
#noshame
#Upallnight
#DistractMe
#Painsomnia
#Painwarriors
#CheerMeOn
#Chonicillness
#chronic Pain
#CheckInWithMe
#Lonliness
#EssentialTremors

3 comments
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Not Even Made It Out Of Bed Yet and It Is 11:00am, SO FRUSTRATING

So, frustrating, not even made it out of bed, and it is 11:00am here, the pain is intense, just trying to fight, thank u all for being here for me, being my support. I want people who care and love me, not just shove things down my throat, and make me feel 1,000 times worse

#Chatspace
#noshame
#Upallnight
#chronic pain
#CheckInWithMe
#Lonliness
#Painwarriors
#Painwarriors
#Disability
#lonely
#friendships
#friendshipstruggles

2 comments
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I'm really struggling, morning my new life, people say get well, get better soon, it isn't gonna happen, I'm tired of waking up, making it to the couch, just to lay down again, people say get up move around, well, that is easier said than done with Essential Tremors, it affects my whole body, so getting up and moving around isn't the issue.

I'm not the issue, the doctors, medications, etc, aren't the issue, the issue is I have a slu of medical issues, that the doctors r doing the best they can to treat, there comes a point and time u get tired of the hospitals, the meds, etc, at that time, u just need love, support, and care, I'm so so thankful I found this App.

I'm told to get up and move, quit thinking about it, quit talking about it, and it'll go away.

If that is the case, it should've went away a long time ago, because there r plenty of times I don't think about it, I'm so so thankful for finding this App where I feel accepted, loved and cared for.

#self -Care Lounge
#Chatspace
#Upallnight
#noshame
#Painsomnia
#Painwarriors
#Disability
#CheerMeOn
#ChronicIlliness
#ChronicPain
#CheckInWithMe
#Lonliness
#EssentialTremors
#friendships
#friendshipstruggles
#lonely
#Pain

5 comments
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Frustrated, Am I Not Good Enough

I love when people feel like they have it all together and feel like I should also, and try to shove their agenda, successes, down ur throat, like u aren't trying, so, they leave u hanging, wow.

Now u see why I say, my apps and people in them r my friends and family, well, some of them.

#Chatspace
#Selfesteem
#noshame
#Upallnight
#DistractMe
#ChronicIllness
#ChronicPain
#CheckInWithMe
#Lonliness
#EssentialTremor
#Painsomnia
#Painwarriors
#Disability
#CheerMeOn
#Christianity
#Friendship
#lonely
#Pain

15 comments
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NOT DOING THE GREATEST, ALONE, SICK, WONDERING WHAT MY PURPOSE IS

Up sick, hurting in bed, groin is painful to the touch, I love the people that say Get better soon, this to shall pass, they don't chronic pain and sickness.

I love how people say I'll be ur friend, but, never like, comment, message u, do they really care.

Oh, the pain, it hurts to stretch, walk, move, etc.

People aay, u need to move more, sitting around isn't good, wanna come be my caretaker and then you'll see what chronically sick and being in pain is like.

It's 3:45am in the morning, oh wait, that is nothing new, if there is any sleep at night, that I don't wake up moaning and groaning, or screaming, this is about the time I wake up anyways, here r list of my pain and sickness.

I have
Congenital Hydrocephalus,
Retinaopathy of Prematurity
Hypertonia
Chronic Knee, Ankle, Shoulder, Wrist Pain
2 L5 S1 Discectomies
Diverticulitis
Essential Tremors
Epicondylitis
Possible Neuropathy
Possible RA
Carpal Tunnel Syndrome
De Quarveins Tenosyvitis

***Pulled Groin***

#self -CareLounge
#Chatspace
#noshame
#Upallnight
#Painssomnia
#Painwarriors
#CheerMeOn
#Disability
#ChronicIllness
#ChronicPain
#CheckInWithMe
#Lonliness
#EssentialTremor
#Christianity
#lonely
#friendships
#Pain

8 comments
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See full photo

U mean u say u want to support me on this App, No Strings Attached

Up sick, hurting in bed, groin is painful to the touch, I love the people that say Get better soon, this to shall pass, they don't chronic pain and sickness.

I love how people say I'll be ur friend, but, never like, comment, message u, do they really care.

Oh, the pain, it hurts to stretch, walk, move, etc.

People aay, u need to move more, sitting around isn't good, wanna come be my caretaker and then you'll see what chronically sick and being in pain is like.

It's 3:45am in the morning, oh wait, that is nothing new, if there is any sleep at night, that I don't wake up moaning and groaning, or screaming, this is about the time I wake up anyways, here r list of my pain and sickness.

I have
Congenital Hydrocephalus,
Retinaopathy of Prematurity
Hypertonia
Chronic Knee, Ankle, Shoulder, Wrist Pain
2 L5 S1 Discectomies
Diverticulitis
Essential Tremors
Epicondylitis
Possible Neuropathy
Possible RA
Carpal Tunnel Syndrome
De Quarveins Tenosyvitis

***Pulled Groin***

#Chatspace
#noshame
#Upallnight
#DistractMe
#Painsomnia
#Painwarriors
#Disability
#Christianity
#friendships
#lonely
#Pain
#ChronicPain
#ChronicIllness
#CheckInWithMe
#Lonliness
#EssentialTremor

1 comment