hypermobility syndrome

Exhausted trying to get a diagnosis of hEDS.

But now I'm under pressure because my two sons show symptoms. One is Autistic, one is pending assessment. And me? After seeing all the paperwork I realise I'm an undiagnosed autistic adult at 46.

This is on top of, my sister's Chiari Malformation, my late Father's Ankylosing Spondylitis, my Fibromyalgia (supposedly), Hypermobility etc.

Having a hell of a week. As I got full records from the doctor to check over for insurance, and I was diagnosed with CFS & Hypermobility Syndrome in 2000 - the doctor NEVER divulged it to me.

#AnkylosingSpondylitis #Pacemaker #Fibromyalgia #MastCellActivationDisorder #ChiariMalformation #CeliacDisease

i was told by a rheumatologist i have hEDS but my PCP doesnt know enough about it to officially diagnose me. she think i might need to see a geneticist to be fully tested but isnt sure if thats the case with hypermobile type EDS. can someone whose been diagnosed help me out? my PCP said to ask here after i told her about themighty and to send her anything i find out. PLEASE HELP and thank you #EhlersDanlosSyndrome #HypermobilitySyndrome

Hi, my name is kme626.

#MightyTogether #BorderlinePersonalityDisorder #Migraine #PTSD #AutismSpectrumDisorder #HypermobilitySyndrome #Depression #BipolarDisorder #Dysautonomia

Spoke with the rehab doctor today. I did not fit the diagnosis criteria for hEDS due to skin qualifications. When I asked about HSD she dodged the question and said that this doesn't mean hypermobility isn't an issue.
My chart current says Polyarthralgia/ Polyarthritis with joint hypermobility. I just keep getting bounced around. Ugh.

#HypermobilitySyndrome #JointHypermobilitySyndrome
#Hypermobilespectrumdisorder

Hi, my name is IlariaMennella.

#MightyTogether #Anxiety #Depression #Migraine #HypermobilitySyndrome

Hi, my name is gecko7475. I'm here because I am autistic and like to talk about it and to talk to people who are like me who understand it

#MightyTogether #Anxiety #AutismSpectrumDisorder #PolycysticOvarySyndrome
#Autism #SensoryProcessingDisorder
#Dyscalculia
#Trichotillomania
#HypermobilitySyndrome

Hi, my name is ErinField.

#MightyTogether #Anxiety #Fibromyalgia #ADHD #HypermobilitySyndrome

Hi, my name is maremare82.

#MightyTogether #HypermobilitySyndrome #Anxiety #Depression #BorderlinePersonalityDisorder #PTSD #ADHD #AutismSpectrumDisorder #Migraine #OCD #Grief

Hi, my name is lisagraymft. I'm here because I have Ehlers-Danlos Syndrome; I'm also writing a book on how to thrive in your relationship when you have a chronic illness. Happy to be here!

#MightyTogether #HypermobilitySyndrome

Hi, my name is marv. My life is crazy. I've been diagnosed with a genetic hypermobility syndrome and chronic pain. Ttauma is also part of my life. I'm here to help and find connections to talk about stuff. Feel free to hit me up

#MightyTogether #Anxiety #Depression #PTSD #Fibromyalgia #HypermobilitySyndrome #ChronicDailyHeadache #ChronicPain