hypermobility syndrome

Hi, my name is Maddie. I'm looking for a welcoming community that will help me learn more about not only my diagnoses but the others out there too. Also, I am currently in school and struggling to get through the day because of my health issues. So, I am hoping I will find some advice or just some friendly words on here to help me each day and especially the rough ones. 😊

#MightyTogether #Fibromyalgia #SocialAnxiety #Depression #polycysticovarysyndrome(PCOS) #ChronicDailyHeadache #Hypersomnia #HypermobilitySyndrome

Hi, my name is Anniepaws. I'm here because there are virtually no resources to navigate hypermobility/EDS for my teen daughter and me.

#MightyTogether #HypermobilitySyndrome #JointHypermobilitySyndrome

Hi, my name is dancejoy. I'm here because I'd like to "meet" others with chronic illnesses.

#MightyTogether #Migraine #ehlers-DanlosSyndrome #mastcellactivationsyndrome #HypermobilitySyndrome #autoimmunediseases#CeliacDisease

Hi, my name is Lkcato. I'm here because

#MightyTogether #HypermobilitySyndrome

I never thought I would have to grieve our so much. As a child I thought grief was for when someone died. As an adult I know it's so much more! I grieve for the future success in my career, for the children O can't have, for the things I cannot do, for the family I have lost, for time I have lost, for the childhood I never had. The list is much longer than that! So much longer! Chronic Illness and Abuse steals so much from a person. #abusesurvivor #CPTSD #PTSD #arthymias #Anxiety #Depression #treatmentresitantdepression #HypermobilitySyndrome #PsoriaticArthritis #spondylarthritis #methylationissues #Grief #ComplicatedGrief #StagesOfGrief

Hi, my name is hoke23. I'm here because it is very hard living with conditions that people can’t help you with and being in constant pain but no one knows why.

#MightyTogether #Anxiety #Depression #PTSD #Fibromyalgia #HypermobilitySyndrome #ehlers-DanlosSyndrome

Hi, my name is Laurenlaney966. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether #Anxiety #BorderlinePersonalityDisorder #PTSD #Depression #EatingDisorder #HypermobilitySyndrome

I wish Dr. Patel could experience one of my bad pain days. He literally did not give two shits about how much his decision mattered to me.

I've been slowly figuring out the source of my chronic pain for the last year. One of the contributing factors is a herniated disc. I've tried all conservative treatment methods and was finally ready to discuss surgery.

This guy dismissed me because my MRI doesn't match my symptoms. The disc is bulging in the middle and not impacting the nerves on the imaging. The last doctor I saw diagnosed neurogenic claudication in my legs, which explains a lot of my symptoms. Yet Dr. Patel wouldn't even consider surgery. Instead he asked about my A1C and weight. He was my absolute last hope for fixing my back and regaining a little bit of my mobility. Instead, I am facing a future in my wheelchair. If the condition progresses further there could be severe nerve damage. So you know what, fuck you, Dr. Viral Patel. I hope you lose sleep over this decision.

Hi, my name is floord1. I'm here because i suffer from a lot of chronic diseases and pain.

#MightyTogether #HypermobilitySyndrome #Gastroparesis #Migraine #ADHD #AutismSpectrumDisorder

Hi, my name is Amber. I'm here because I have Hypermobility Syndrome and something wonky with my COL3A1 gene (the one responsible for Ehlers-Danlos type 4). The geneticists are still trying to figure out what my genetic variant does (or doesn't?) do, but it doesn't seem to be full-blown EDS-4. :-)

#MightyTogether #HypermobilitySyndrome #JointHypermobilitySyndrome #EhlersDanlosSyndrome