hypermobility syndrome

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hypermobility syndrome
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    I’m new here!

    Hi, my name is Stellar_Falk. I'm here because
    I'm looking for tips and must haves for pregnancy and post partum recovery while dealing with chronic illnesses. My husband and I are wanting to try soon! I should say i have a dietitian and my doctor is aware of my illnesses and has set up to have special care once I am pregnant (fingers crossed). I've been doing a lot of research but I find it best to hear from people with experience to know their must have products or things to be prepared for. My list of illnesses are in the hashtags 😅😵‍💫
    #MightyTogether #ehlers-DanlosSyndrome #HypermobilitySyndrome #CeliacDisease #Anxiety #ADHD

    14 reactions 10 comments

    I’m new here!

    Hi, my name is xXWednesdayxX. I'm here because I am making the switch over to full-time disability status after being on leave from my job for 4 months and being in years of denial. I also live with my mother that has Parkinson’s disease and want more resources for both of us.

    #MightyTogether #ehlers-DanlosSyndrome #HypermobilitySyndrome #parkinsonsdisease

    8 reactions 3 comments

    I'm new here!

    Hi, my name is Maxx95. I'm here because I've become very isolated due to my illness and would like to make some friends who understand what I'm going through. I'm interested in history, music, football (soccer), films, cooking when I have the energy, and comedy. I was doing a history degree, but I had to drop out when I became unwell.

    #MightyTogether #Anxiety #Depression #OCD #Dysautonomia #ChronicIllness #HypermobilitySyndrome #DepersonalizationDisorder

    9 reactions 7 comments

    I'm new here!

    Hi, my name is Gurlpantz. I'm here because my son suffers from hyper mobility syndrome

    #MightyTogether #HypermobilitySyndrome

    1 reaction 1 comment

    Does hyper mobile joints get worse with age?

    I was wondering and couldn’t find much on it, but I noticed some joints like my left hand is more mobile then others. I can do things that I haven’t been able to do before and the closest I can describe it is a loose doll joint? More and more days I have to use a ace bandage to prevent my thumb from moving into a painful position. Does this happen to anyone else at all?



    Accepting an electric wheelchair

    I recently purchased a Golden Technologies Literider Envy green power chair. Since I use various mobility aids (been using the walker pretty often), so it has been getting very hard to get around large places with just a walker. I attended an air show that involved a ton of walking, so my dad had me take my power chair. At first, I was embarrassed because I viewed wheelchairs are for those who are paralyzed, but when I saw ambulatory users my embarrassment was gone and I received compliments on my new chair. It helps me get around with less pain, less fatigue and my symptoms were not as bad. I can say that I accept my new mobility aid because it is a tool to help me get around. And I can enjoy events without paying the price later.

    #Disability #Wheelchair #polyarthralgia #Fibromyalgia #AmbulatoryWheelchairUser #HypermobilitySyndrome #dynamicallydisabled #MobilityAids #Acceptance


    New here looking for advice

    i did use this app around 5 years ago but can’t remember how it works so i don’t know if i’m posting in the right place for people to see or anything.
    Anyway i’m looking to connect with people similar to me and i am also asking for some advice

    i’m 19 i have hypermobility syndrome and have been experiencing pain for around 10 years. I do fit the criteria for eds but last time i brought it up to rheumatologist she told me a child can’t be diagnosed with it 😐and that my pain would go away after puberty . i am now an adult still experiencing symptoms but i am no longer under a rheumatologist or anything.

    The advice i am looking for is around my SI joints which have become unstable. They are subluxating multiple times a day any time i move and are really uncomfortable and painful. i have been to the gp and he gave me an antidepressant used for pain relief and will refer me to the musco-skeletal team. He mentioned that there is an injection for this joint but doesn’t know if they will do it because i have hypermobility? any research i can find online doesn’t mention any other treatment options and i don’t know what to do. I can’t walk or sit up for long as the pain gets unbearable, ive tried a tens machine, heat and ice which barely touch the pain. Any advice would be greatly appreciated. #BackPain #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Advice