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Love this so much!!!

So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.

Having such a messy schedule is its own problem but sleeping best during the day is still true to me.

I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.

So I was up from 1Am to 6AM.
Now I am at waking at 6AM and then 3pm though it is forever Changing.

My best advice is to listen to your body, what does it NEED??
Not just want but Need too?

You are the You expert, show em how it is done!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

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Love this so much!!!

So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.

Having such a messy schedule is its own problem but sleeping best during the day is still true to me.

I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.

So I was up from 1Am to 6AM.
Now I am at waking at 6AM and then 3pm though it is forever Changing.

My best advice is to listen to your body, what does it NEED??
Not just want but Need too?

You are the You expert, show em how it is done!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

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Finding a new trigger

This trigger is a bit odd at least for me it is.
I’ve been loosing weight. Not for cosmetic reasons but for medical reasons. I have a rare condition called idiopathic intercraneal hypertension. Or a sudeo tumor. Basically I have increased pressure in my head. It affects my vision and can make me go blind. I’ve been dealing with this since I was 17. For awhile the symptoms just sort of disappeared but came back a year ago. There is no cure and there really isn’t medication to fix it though most doctors think it’s related to weight. I am overweight and I was put on medicine to help me loose weight and control my appetite and it worked. But I did recently gained some weight back. By doing this I get extreme anxiety about it because I know the consequences the migraines and vision problems would come back and I could become blind until my optic nerves stop being swollen by loosing weight. I have a therapist and a medication management doctor she has recently helped me reach out to a company to help get my weight back on track. Even though I’ve been eating right, watching my calories and sodium intake and exercising pre planning meals and doing portion control etc I can’t get this weight off. I got a text saying that the company that’ll be helping me will help me “start my weight loss journey.” For some reason that sentence makes me extremely anxious I have bp2 disorder and generalized anxiety anybody and ptsd have problems like this? Where a certain sentence just makes you anxious

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Gasp! The human is giving me scratches!!! Can she read my mind?! 🤣

Cute Lil Rosie Fluff on a lazy Saturday ✨️✨️

I do love my puppy snuggles 💕

Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.

We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.

One day, tomorrow a new dawn. Deep breaths, bring it on!!!

Or rest up for tomorrow 😉 you know yourself best! ❤️❤️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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Gasp! The human is giving me scratches!!! Can she read my mind?! 🤣

Cute Lil Rosie Fluff on a lazy Saturday ✨️✨️

I do love my puppy snuggles 💕

Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.

We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.

One day, tomorrow a new dawn. Deep breaths, bring it on!!!

Or rest up for tomorrow 😉 you know yourself best! ❤️❤️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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Rosie purposely looking away from my camera, the stinker!!

Her hair is so fluffy from the humidity. She is considered a toy dog but our neighbors dog-and Rosie's boyfriend is a big great dane.
She was scared of him but once I loved on him she knew he was safe. They love playing up and down the gate between them.
Who knew Rosie was a romance at heart?! 😅💖

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #AnkylosingSpondylitis #ComplexRegionalPainSyndrome #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #MightyPets #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #SuicidalThoughts #RheumatoidArthritis #sciatica #ShinSplints

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