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    2680

    I'm new here!

    Hi, my name is 2680. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #Glaucoma

    3 people are talking about this
    Dina Simpson

    Glaucoma Awareness Month: The Eye Disease You Might Not Know You Have

    January is National Glaucoma Awareness Month. It is estimated 58 million people have glaucoma worldwide, making it the second leading cause of irreversible blindness. An estimated 3 million Americans have this disease and almost half are unaware they have it. Glaucoma is often referred to as the silent thief of sight, and that is because this disease is usually painless and people do not notice anything is wrong until some portion of their vision has been lost. Glaucoma is defined as a group of eye diseases that cause damage to the optic nerve. The optic nerve consists of over 1 million nerve fibers and is the pathway for transmitting messages between the eye and the brain. There are different types of glaucoma including open-angle, normal-tension, and angle-closure glaucoma. They all cause damage to your optic nerve, resulting in vision loss. Once damage occurs, it cannot be reversed. This is one of the reasons why having regular eye exams is so important. During your eye exam, the doctor will look for signs of glaucoma in a few different ways. One tool is to measure your intraocular pressure, the pressure inside of your eye. This is done at every eye exam you have and it is painless. Elevated eye pressures are common with glaucoma patients and can help the doctor determine if glaucoma may be present. Your eye doctor will also dilate your eyes and look for signs of abnormalities. If it is suspected you may have glaucoma, further testing will take place. For instance, a visual field test may be performed. This test requires you to cover one eye, focus on a fixed spot and click a button when you see flashing lights. This measures your peripheral vision, which is where sight loss occurs first with glaucoma. Although there is no cure for glaucoma, there are treatments available. Eye drops may be prescribed by your doctor and laser treatments or surgery are also options. These treatments are designed to slow down or may even stop glaucoma from progressing. Who is most a risk of developing glaucoma? If you have a family history, or have been diagnosed with diabetes or hypertension, you are at increased risk of developing glaucoma. People over 60 years old are at an increased risk, especially for the Hispanic and Latino communities and African Americans over the age of 40. Glaucoma can also occur after a severe eye injury, as is the case with me. Glaucoma is a disease that insinuates itself into your life; there is no pain involved, so it may go unnoticed until portions of your vision are already gone. And once it is lost, it cannot be restored. Glaucoma will not take all of your sight at one time. Vision loss occurs very slowly over time and usually begins with the loss of peripheral vision. This is what makes it difficult to catch early on. I have glaucoma caused by a severe eye injury and to be honest, she’s a sneaky little bitch. Twice she has forever erased part of the vision in my right eye. Below is an example of the vision loss glaucoma has taken from me thus far. I also have severe central vision loss, but I have left that out in order to better illustrate the vision loss due to glaucoma. The best way to stay on top of this disease is to have your eyes checked regularly. There are treatments available to slow its progress. Research is ongoing to find a cure for glaucoma, but we are not there yet. Please consider making a charitable donation to help find a cure for this disease.

    Community Voices

    Getting a lens put in your eye

    When I was in elementary I had cataract surgery done on both eyes. During this time the doctors knew if a lens was put back in my eyes cataracts would start to grow again. Now, 10+ years down the line I’m wondering has anyone had a lens put in years after not having one? I’m just looking to see if it has been done has it been done successfully? #question #Surgery #EyeSurgery #Glaucoma

    Community Voices
    Dennis Tran

    My Complex Identity as an Asian-American With Invisible Disabilities

    Throughout 20-plus years of navigating life with family mental health traumas, being partially blind with glaucoma, and having autism, there were a lot of struggles and hardships along the way that caused an identity crisis for me and the people surrounding me. I never felt as close to others as I should be based on the circumstances and hands I’ve been dealt in life. The intersectionality of being Asian-American and living with disabilities is pretty complex, considering one has to navigate life with both their Asian and American identity, but also life with disabilities. To say the least, without a solid support system or resources, it can get really lonely, causing depression, anxiety, and all sorts of insecurities. I went through this and carried this huge baggage with me for pretty much my entire life, always feeling conflicted, while not knowing how to express what I was going through or be vulnerable to others. This all stems from the society and system we grew up with in the U.S., but also the cultural upbringing growing up as an Asian-American that has shaped who I am. This also explains how my circumstances and experiences have left a lasting impact on me for both the good and bad in my life. There are various factors that contributed to these struggles and hardships. Everything can be broken down into a few topics: Cultural and Family Trauma Growing up as a kid of traditional Asian parents, talking about our feelings, emotions, mental health, or even disability wasn’t really a thing. It was often seen as weak or a disadvantage, something to be ashamed about. We could feel the constant comparison between our peers, our family members, and relatives. If we as kids do things differently, pursue something untraditional, like our passion, or have a mental health condition or disability, we would get called out, judged, and shamed for it because it was hurtful for our parents’ images and how they are seen by others. This would cause us to feel unseen, unheard, lonely, and disconnected from who we are as people trying to navigate life as Asian-Americans. As a result, we deal with our mental health and disability on our own without much support. Gender and Societal Norms: (Masculinity and Femininity) Growing up and going to school among my peers, where Asian-Americans only made up about 4% of the school population, I struggled to connect with others. I came to realize that the gender norm for guys was to be very masculine in characteristics. By this I mean, physical and emotional traits: they need to be strong and dominant, and they need to be seen as cool and assertive, or jerks sometimes. Characteristics that are considered more passive and feminine, such as being kind, showing emotion and vulnerability, or sharing how we feel will make others see us as weak, gay, unpopular, or a loser compared to others. As a result, we resort to small talk. Awareness/Representations: Growing up, there were hardly any Asian-American representations in the media or film, so a guy like me didn’t have any role model to look up to. We only have our parents, family members, and peers to turn to. This can make us put ourselves second by valuing the opinion and values of others. In addition, there were limited resources for mental health services, and disabilities were still taboo and considered more black and white then, as was therapy. Overall, the struggle, hardship, and journey I went through to get to this place make the intersectionality between being Asian-American and having a disability more unique due to its complexity. I struggled a lot up to this point, but have now gotten to a better place due to an increase in representations, resources, and awareness that will have a ripple effect for future generations. The struggle and hardship in life that I have to navigate as a disabled Asian-American can end with me. We can continue to show up for each other, to be better allies to our community, to break the generational cycle, to end the stigma, to normalize the conversations around mental health, disability, and our feelings, to be authentically true to who we are, and to connect with others as human beings should. I’m excited to be a part of the Asian-Americans with Disabilities Initiative, or AADI, where I can help build this community and help other Asian-Americans with disabilities with similar experiences feel seen, heard, and understood. Together, we can shift our mindsets from surviving to thriving!

    Community Voices

    When is it ok to give up?

    TW: depression, trauma, terminal illness *super long vent, sorry*

    I feel like this #Cancer is taking everything away from me, what little I had left. Prior to diagnosis in April, I had to quit my job for health reasons and filed for disability (medically approved now but for the cancer but still no final word from them). I was struggling with #CPTSD , #MajorDepressiveDisorder , #ObsessiveCompulsiveDisorder , #Fibromyalgia , #PsoriaticArthritis , #Asthma , #sjogrens , #SevereAllergies , #Bursitis , #PolycysticOvarySyndrome , #DiabetesType2 and a bunch of other complications from all of these things plus a few more diagnosed illnesses. All whilst trying to get a divorce (still trying to get it).

    So in April I go to the ER thinking Covid. Nope. Lungs both full of fluid from #CongestiveHeartFailure . Apparently I had a heart attack and didn’t notice as I was told a lot of chronic pain patients don’t because we’re used to random severe pain. Also they found a grapefruit sized tumor on my liver, stage 4 #BileDuctCancer in my #liver and it had spread to some lymph nodes on my abdomen. I have no medical insurance.

    So now here we are in July and I’ve been in chemo since May. I’ve had a few minor surgeries/procedures and I have to have my port removed/replaced which is why I’ve been in pain there since May.

    Now it turns out on top of mouth problems, fatigue, low white blood cells as side effect to my #Chemotherapy , I have been diagnosed with #ChemotherapyinducedPeripheralNeuropathy which has been the most painful experience of my life. They said it was a severe case.

    They also think either a #cateract or #Glaucoma in my left eye which is why my eye hurts and I can barely see. Either could leave me blind. I’m an artist by trade, I’ve won awards for my cakes and every one of my hobbies is art/craft/visual. Now I can’t tolerate any amount of light without it being painful and I can’t do anything with my hands without being in major pain from the neuropathy. I can’t enjoy anything or do anything for myself, already fell down the stairs last week because of my vision/neuropathy combo.

    Also, I’ve had to get 2 Neupogen (helps bone marrow make white blood cells) shots this weekend and like every other week. The bone pain makes my body shake uncontrollably and nothing will help it.

    All this has led to me being a walking pharmaceutical cocktail and the side effects are brutal. I picked up a new med today, tonight my little medicine bag overflowed and I broke down. I just turned 40 in May. I have more meds than years on this earth. I have a terminal illness that makes me ineligible for the heart transplant that I need but im technically not dying according to my oncologist.

    So at what point is it ok to say I’ve done enough, I’m tired and I give up, I want out? Daily living is torture and there’s no joy.

    Thank you if you made it this far!

    18 people are talking about this
    Community Voices

    Intro to a newbie

    <p>Intro to a newbie</p>
    43 people are talking about this
    Dina Simpson

    I Have a Visual Impairment and This Is What It Looks Like

    I would like to share something with you. When you look at me, you do not see what I see. You see a woman wearing glasses, nothing out of the ordinary there. But I have a secret (well, I have not exactly been quiet about it). I have an invisible disability. This means you would never know by looking at me that anything is different. The invisible disability I am living with is blindness. I have a severe and permanent visual impairment in my right eye caused by blunt force trauma. Out of curiosity, people frequently ask me what I can see out of that eye. As soon as I speak the words “I can see a little bit in the…”  the assumption is made that because I can still see something, I am not “really blind.” Most people do not understand that blindness is a spectrum. As I think back to the past, before losing the eyesight in my right eye, I realize I was also guilty of thinking all blind people see nothing. I had no idea that blindness can widely vary from person to person. I did not know that most people who are considered to be blind have some level of remaining vision. In fact, only a small percentage of people who are blind or visually impaired are in the category of total blindness. I created this picture to help understand what my impairment looks like — through my eyes. Here is what this picture looks like for a person without a visual impairment:   When I look at the same picture using only my right eye, this is what I see:   This is my visual impairment; this is where I fall on the spectrum of blindness. I have a traumatic macular hole and glaucoma in my right eye. You can’t tell by looking at me that my vision is severely impaired. You would never know this is how I see out of my right eye. You would not know that I have an invisible disability unless I told you. And yes, even though I do have fairly normal vision in my left eye, my vision combined is not without complications. The loss of depth perception is very problematic and in my experience creates an adjustment period that seems to be evolving all the time. I lack awareness of what is going on to the right of me, bringing much truth to the saying “out of sight, out of mind.” I also experience extreme light sensitivity, along with constant floaters and flashing lights. Invisible disabilities are just that — you likely will not be aware somebody has one. I may not be at the point where I am using assistive devices and the way I look may not fit popular opinion on how a visually impaired person “should” look, but I assure you, my disability is there and it is real.

    Community Voices

    Chasing The Art of Acceptance

    CHASING THE ART OF ACCEPTANCE

    Sure-shot dissimilarities were noticed between the last leg of these mega-events where all eyes on Google-earth were glued on fireworks demonstrated by the Big-Boys before ACCEPTING to seal their fate in 2016 vs. in 2020 when voters in the United States (US) got wooed by their 46th Presidential candidate. This article comes in the catalogue of some unpredictable moments with a touch of nostalgia as my fate was also sealed in 2016 when I anticipated to be in the best health-equity but God was using an inevitable ink-color to re-write my story.

    I still remember that evening when this foursome-effect changed it all for me being diagnosed with a rare medical condition, Isaac Syndrome (a diverse disorder as a result of muscular hyperactivity), Membranous Glomerulonephritis (a slowly progressive disease of the kidney), Lymes (a bacterial infection that can be spread to humans by infected ticks) and Glaucoma (an eye conditions that damage the optic nerve often caused by high pressure) and the journey still continues……Easy said than done but only Accepting this hurricane blowing off, my cards-of-health was the only option.

    As I grew up living alone post graduation, I realized that self-responsibility teaches some of the greatest life-lessons, realizing early not to hypnotize life as it takes seconds for the glory of the past to consign into flames of the present. After all the evil-symbolizing tantrums of life, it left me with little but no choice to accommodate and make room for the ”ACCEPTANCE PRESCRIPTION”.

    Initially it was like a grenade launched from a power-packed missile but slowly as time graduated, the ‘A’cceptance of God fishing for something new got evident as differences between the performing spirits of the past vs. demonic losses of the present bought me face-to-face with my reality and the courage to re-work on life.

    Since 2016, a 180 degree shift initiated my unworried world slip into virgin territories when the illegal immigration of health-damage set it’s foot by unleashing the changed format being the new law of life. In a jiffy my health cover seemed insufficient, travelling for leisure appeared farfetched, daily jogs & cycling diverged to weekly walks, consuming carton of medicines was a daily practice, compulsive attendance with doctors than friends was the new normal etc.. At a point in life I was scratching the surface, not peeping inside with the fear of being declared defeated but ‘A’cceptance is all about finding our own Ikigai (Japanese term, the relevance of which exaggerates to its closeness with ‘A’ccepting life situations, focusing on overall up-liftment & wellbeing to contentment).

    All of us have our unique stories:-

    Recently I took the liberty of watching ”The Pursuit of Happiness” a journey of a life-hero being homeless & then a millionaire, ‘A’ccepting failures & living through his personal catastrophe to succeed. The movie has the right ingredients in the light of performance where it took only one conversation to seal Mr. Gardner’s future forever.

    This was one of the epics that inspired my ways to challenge limits & re-discover perceptions whenever the symptom-mystery deepens enacting as a scorpion sting engulfing the relations between my bones & muscles experiencing torn pieces between frequent medicinal changes & technical comfort graph.

    1) For me Acceptance is not merely Parroting the ‘A’ word instead submit to addressing my zeal to recovery where the word zeal denotes happily agreeing to offers made by life

    2) I can feel the difference in attitude since I was touched by the art of ‘A’ as its taught me to handle uncertainties, better

    3) ‘A’ is one of the key therapies that acted like a vastu-tip sublimating my brain-waves towards the truth of the moment becoming another synonym for inner peace

    4) This art tested my tolerance to sail through ‘n’ number of undesired encounters

    5) ‘A’ is very helpful in providing a safety net defeating the intensifying peer group competition

    6) ‘A’ inched me from a black-board to a smart-board with a baseline making necessary timely amendments in my daily routine creating a fight-back aura

    7) ‘A’ is living in the moment instead of planning the future, a step forward surrendering to the omnipotent.

    CRUX :- The emotional quotient needs to be well-balanced while sailing through any crisis, if handled with ‘A’cceptance becomes a positive emotion. During my journey I realized that this art cannot percolate within us until there is a strong reflection of spirituality accompanied with significant essence of faith.

    As only a Golden vessel is equipped to hold Lion’s milk until the pH is altered similarly God chooses his special vessels to handle certain humanitarian crisis and therefore I end by urging my peer-group to create an aura around the art of ‘A’ceeptance as even these hard times of Covid recites the same mantra to the world.

    Though I admit my target & target-points shifted places but the need of the hour is to mute the background music & surrender to these new algorithms, expecting that someday these lost-dark-years would surface back in the form of wisdom. Currently the only thing that echoes my mind is to ACCCEPT the fact that I haven’t come this far for a casual walk.

    I wish to hear from my readers, if I have collided with fatigue by merely Accepting my today ??

    Community Voices

    Neuro-ophthalmogist - which tests he can do for pain in the eyes, blurry vision, tunnel vision? Devics Disease maybe?

    I have problems with spine but I also have a symptoms of multiple sclerosis. It wasn’t confirmed because I don’t have lesions on my brain. Neurosurgeon told me I have strange looking spinal cord but non of doctors told me the details. I ware eyeglasses but in last 2 years my vision gets blurry, I had pain in my right eye, I have tunnel vision. I don’t have glaucoma. My neuro - ophthalmologist will admit me to hospital for several test. Does anyone have any suggestions, personal experience? #VisionLoss #eyehealth #MultipleSclerosis #ChronicPain #PinchedNerve #Disability #DevicsDisease

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